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  • Forum Post: Re: not responding well to abvd

    ABVD did give me the usual ill-effects (weakness, fatigue, loss of taste / appetite, sore mouth, hair loss, wrinkling and darkening of skin and nails etc) but the 'B' (Bleomycin) so badly scarred my lungs after the 4th dose that breathing became painful and laboured even after a short walk. My...
  • Forum Post: Re: Tests ongoing

    Hi Neil, I am a hodgkin's survivor. 26 years old. I have been in remission since the summer of 2010, so approx 2 years. Things have been going well. Everything has returned to normal with my life except for constantly being in fear of recurrence which I am working on trying to overcome. I went...
  • Forum Post: Re: Tests ongoing

    I work in contract security on a shift basis. I work 4 days have 4 days off then do 4 nights and have 4 off. If they can sort out the treatment to start on my 1st off day then I am hopeful it will not affect my work. Next week I should know more and I will be settled in my mind a bit more I...
  • Forum Post: Hypothyroidism after ABVD?

    Hello there I finished my chemo about 18 months ago and have been borderline hypothyroid for a while, i was just wondering if this is a typical path... i know radiation therapy is thought to affect the thyroid but just chemo? I did 6 months of ABVD and haven't felt absolutely tip top at ant...
  • Forum Post: Mumps/Tonsilitis & HL

    Just out of interest, did any of you who have had HL suffer much with mumps or tonsillitis or even glandular fever during childhood/teenage years? I know there's a link between Epstein-Barr virus and lymphoma and that that causes glandular fever but I've also discovered that EBV can also cause...
  • Forum Post: Totally paranoid....

    First of all, let me apologise as this will seem ungrateful and insensitive to anyone not yet in remission. I am and I'm truly grateful to be BUT I am constantly on the lookout for the cancer to return. I suppose this is normal but it's quite hard to talk about as it seems uncharacteristically...
  • Forum Post: Re: results after 6 months of abvd

    Great. I have walked down this path and also underwent autologous blood stem cell rescue. Latest scan 2 weeks ago showed no evidence of disease and in order to avoid radiation exposure, my doc says that in future only routine physical exams, blood tests and maybe ad odd MRI will do. Off for a well-deserved...
  • Forum Post: Re: NOT ANOTHER RELAPSE?

    Hi Martin I am shocked, but I hope it is only one of nature's pranks! I am hot on your tail. I was given a 6-week break after the last scan (23 Nov - all clear), then on the 4th and 5th of Dec, two sessions of stem cell harvesting yielded a total of 70% of the required amount. I am now resting...
  • Forum Post: Re: my sister

    Hi I hope the results are out and the doctors are taking good care of Chantelle. Hodgkin's Lymphoma is among the most easily treatable although one has to be patient. I have come down this 13-month journey to the last lap, my high dose chemo + stem cell rescue treatment is due next week. All going...
  • Forum Post: In remission

    Hi The PET/CT scan of 23 Nov was clean and the docs have cautiously declared me to be in remission. They also bombarded me with statistical data and convinced me that the high dose chemotherapy and blood stem cell transplant is worth going for despite the risks and costs! Presently off all medication...
  • Forum Post: Re: G-CSF injections, any advice appreciated

    Hi I completed 12 doses of ABVD (fortnightly) and after the disease relapsed at the end of this regimen, did 3 cycles of MINE (3-wkly) salvage chemotherapy. In my case, I have been injecting myself with 300 mcg G-CSF for 7 days, starting the 2nd day after the end of each chemo. This has maintained...
  • Forum Post: Re: worrying wife

    Hi I was diagnosed with Stage 4-B in Jan, and after 12 doses (6 cycles) of ABVD, the disease remained. I just finished 3 cycles of MINE salvage chemotherapy. A PET-CT scan scheduled for end Nov should hopefully give me an all-clear. All these months, I have had very low energy, nausea, loss of hair...
  • Forum Post: Re: not responding well to abvd

    Hi For what its worth, in my case (Stage 4-B), the disease still exists after 12 doses (6 cycles) of ABVD, and I have just finished 3 cycles of MINE salvage chemotherapy. A PET-CT scan scheduled for end Nov should hopefully give me an all-clear. Still, doctors are strongly recommending that I follow...
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