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  • Forum Post: Re: not responding well to abvd

    Posted by
    Posted 2 months ago
    ABVD did give me the usual ill-effects (weakness, fatigue, loss of taste / appetite, sore mouth, hair loss, wrinkling and darkening of skin and nails etc) but the 'B' (Bleomycin) so badly scarred my lungs after the 4th dose that breathing became painful and laboured even after a short walk. My...

  • Forum Post: In remission

    Posted by
    Posted over 3 years ago
    Hi The PET/CT scan of 23 Nov was clean and the docs have cautiously declared me to be in remission. They also bombarded me with statistical data and convinced me that the high dose chemotherapy and blood stem cell transplant is worth going for despite the risks and costs! Presently off all medication...

  • Forum Post: Re: not responding well to abvd

    Posted by
    Posted over 3 years ago
    Hi For what its worth, in my case (Stage 4-B), the disease still exists after 12 doses (6 cycles) of ABVD, and I have just finished 3 cycles of MINE salvage chemotherapy. A PET-CT scan scheduled for end Nov should hopefully give me an all-clear. Still, doctors are strongly recommending that I follow...

  • Forum Post: Life after cancer

    Posted by
    Posted over 4 years ago
    Hi Im new to this so apologies if i have posted in the wrong place or a post has already been started on this topic! I have just completed treatment for Hodgkins Lymphoma, i was diagnosed in May 09 at age of 24. Pretty much straight away i started on fertility treatment to have my eggs collected...

  • Forum Post: Silver Lining

    Posted by
    Posted over 4 years ago
    -‘We were caught off guard when the cloud descended, Suddenly my body had to be mended. -It hasn’t been easy for me and for you, But having said that it’s not all been blue. -The people around me have all been brill, They’ve gone the extra mile since I’ve...
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