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  • Forum Post: Re: not responding well to abvd

    ABVD did give me the usual ill-effects (weakness, fatigue, loss of taste / appetite, sore mouth, hair loss, wrinkling and darkening of skin and nails etc) but the 'B' (Bleomycin) so badly scarred my lungs after the 4th dose that breathing became painful and laboured even after a short walk. My...
  • Blog Post: Consultant.

    After yesterdays appointment I am still upset and annoyed. Two months ago we were told I had stage 1 Hodgkins Lymphoma, but we now find it's stage 2. This means what was going to be two to three rounds of Chemo has changed to three to four. I know compared to others its not much but its an extra...
  • Blog Post: 3rd ABVD

    I had my third ABVD on Monday (12/11/12) they had trouble getting a vein again but that's not unusual the nurse said. I'm still getting really bad heartburn or acid reflux. I'm taking Ranetedine and Gaviscon but its still there grrr! My taste buds are all over the place too, it's that...
  • Blog Post: Chemo yesterday

    Well that wasn't so bad.... Didn't realise how long it would take even though people had said, it always seems longer when it's you sat there lol All went through with no issues. I was sitting next to a guy who had Hodgkins as well but was back after being clear for 4 years. ...
  • Blog Post: Dates received

    Well I now have the date for my 1st lot of ABVD so things are more settled in my head. Its 3 weeks off but I can now try and work out my shifts around the regime as long as people at work dont mind swapping shifts.
  • Blog Post: Late & Rushed or was it?

    Well is it just our clinic/centre or all of them.... We get there early as you’re asked to do only to find they are running 1hr and 10mins late. This is only the 2 nd time we have been there and its the 2 nd time we have found it running late I’m wondering now if this is the norm....
  • Forum Post: Re: Tests ongoing

    Hi Neil, I am a hodgkin's survivor. 26 years old. I have been in remission since the summer of 2010, so approx 2 years. Things have been going well. Everything has returned to normal with my life except for constantly being in fear of recurrence which I am working on trying to overcome. I went...
  • Forum Post: Hypothyroidism after ABVD?

    Hello there I finished my chemo about 18 months ago and have been borderline hypothyroid for a while, i was just wondering if this is a typical path... i know radiation therapy is thought to affect the thyroid but just chemo? I did 6 months of ABVD and haven't felt absolutely tip top at ant...
  • Forum Post: Recurrent Hodgkin Lymphoma

    Hi Guys, Back using the site again....well had popped in and out every now and again to see what everyone was up to every now and again....For those of you who haven't read my blogs in the past I've composed a brief timeline.... Time line of events so far...August 2011 Our son was diagosed...
  • Forum Post: Re: results after 6 months of abvd

    Great. I have walked down this path and also underwent autologous blood stem cell rescue. Latest scan 2 weeks ago showed no evidence of disease and in order to avoid radiation exposure, my doc says that in future only routine physical exams, blood tests and maybe ad odd MRI will do. Off for a well-deserved...
  • Forum Post: Re: Stem cell rescue done

    Hi Stacey The bone marrow aspiration was done right in the beginning (Jan 2010) along with the biopsy of a malignant node tissue that was extracted from the abdomen. Tests showed bone marrow was free from disease (they use the term 'uninvolved') but the sample lymph node tissue showed HL....
  • Forum Post: In remission

    Hi The PET/CT scan of 23 Nov was clean and the docs have cautiously declared me to be in remission. They also bombarded me with statistical data and convinced me that the high dose chemotherapy and blood stem cell transplant is worth going for despite the risks and costs! Presently off all medication...
  • Forum Post: Re: G-CSF injections, any advice appreciated

    Hi I completed 12 doses of ABVD (fortnightly) and after the disease relapsed at the end of this regimen, did 3 cycles of MINE (3-wkly) salvage chemotherapy. In my case, I have been injecting myself with 300 mcg G-CSF for 7 days, starting the 2nd day after the end of each chemo. This has maintained...
  • Forum Post: Re: worrying wife

    Hi I was diagnosed with Stage 4-B in Jan, and after 12 doses (6 cycles) of ABVD, the disease remained. I just finished 3 cycles of MINE salvage chemotherapy. A PET-CT scan scheduled for end Nov should hopefully give me an all-clear. All these months, I have had very low energy, nausea, loss of hair...
  • Forum Post: Re: not responding well to abvd

    Hi For what its worth, in my case (Stage 4-B), the disease still exists after 12 doses (6 cycles) of ABVD, and I have just finished 3 cycles of MINE salvage chemotherapy. A PET-CT scan scheduled for end Nov should hopefully give me an all-clear. Still, doctors are strongly recommending that I follow...
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