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  • Forum Post: Re: not responding well to abvd

    ABVD did give me the usual ill-effects (weakness, fatigue, loss of taste / appetite, sore mouth, hair loss, wrinkling and darkening of skin and nails etc) but the 'B' (Bleomycin) so badly scarred my lungs after the 4th dose that breathing became painful and laboured even after a short walk. My...
  • Forum Post: Re: Tests ongoing

    Hi Neil, I am a hodgkin's survivor. 26 years old. I have been in remission since the summer of 2010, so approx 2 years. Things have been going well. Everything has returned to normal with my life except for constantly being in fear of recurrence which I am working on trying to overcome. I went...
  • Forum Post: Hypothyroidism after ABVD?

    Hello there I finished my chemo about 18 months ago and have been borderline hypothyroid for a while, i was just wondering if this is a typical path... i know radiation therapy is thought to affect the thyroid but just chemo? I did 6 months of ABVD and haven't felt absolutely tip top at ant...
  • Forum Post: Recurrent Hodgkin Lymphoma

    Hi Guys, Back using the site again....well had popped in and out every now and again to see what everyone was up to every now and again....For those of you who haven't read my blogs in the past I've composed a brief timeline.... Time line of events so far...August 2011 Our son was diagosed...
  • Forum Post: Re: results after 6 months of abvd

    Great. I have walked down this path and also underwent autologous blood stem cell rescue. Latest scan 2 weeks ago showed no evidence of disease and in order to avoid radiation exposure, my doc says that in future only routine physical exams, blood tests and maybe ad odd MRI will do. Off for a well-deserved...
  • Forum Post: Re: Stem cell rescue done

    Hi Stacey The bone marrow aspiration was done right in the beginning (Jan 2010) along with the biopsy of a malignant node tissue that was extracted from the abdomen. Tests showed bone marrow was free from disease (they use the term 'uninvolved') but the sample lymph node tissue showed HL....
  • Forum Post: In remission

    Hi The PET/CT scan of 23 Nov was clean and the docs have cautiously declared me to be in remission. They also bombarded me with statistical data and convinced me that the high dose chemotherapy and blood stem cell transplant is worth going for despite the risks and costs! Presently off all medication...
  • Forum Post: Re: G-CSF injections, any advice appreciated

    Hi I completed 12 doses of ABVD (fortnightly) and after the disease relapsed at the end of this regimen, did 3 cycles of MINE (3-wkly) salvage chemotherapy. In my case, I have been injecting myself with 300 mcg G-CSF for 7 days, starting the 2nd day after the end of each chemo. This has maintained...
  • Forum Post: Re: worrying wife

    Hi I was diagnosed with Stage 4-B in Jan, and after 12 doses (6 cycles) of ABVD, the disease remained. I just finished 3 cycles of MINE salvage chemotherapy. A PET-CT scan scheduled for end Nov should hopefully give me an all-clear. All these months, I have had very low energy, nausea, loss of hair...
  • Forum Post: Re: Relapse in Hodgkin's Lymphoma

    Hi Rather than wait, I would advise you to get a scan, if I am not wrong, blood tests can sometimes fail to detect a relapse. I was diagnosed with HL in Jan and after 12 doses of ABVD failed to clear the disease in Aug, I am now due for my 3rd and final cycle of MINE salvage regimen next week,...
  • Forum Post: Re: one lump two lumps 3 lumps more?

    Don't let anybody fob you off. My GP was brilliant, but I was misdiagnosed by one hospital and as I was getting no better I went for a second opinion at another hospital that admitted me immediately. A huge mass was removed and i was diagnosed with HL. I had 6 months ABVD, but then had the 1st relapse...
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