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  • Forum Post: Re: not responding well to abvd

    Posted by
    Posted 2 months ago
    ABVD did give me the usual ill-effects (weakness, fatigue, loss of taste / appetite, sore mouth, hair loss, wrinkling and darkening of skin and nails etc) but the 'B' (Bleomycin) so badly scarred my lungs after the 4th dose that breathing became painful and laboured even after a short walk. My...

  • Forum Post: First chemo over!!

    Posted by
    Posted 3 months ago
    Hi all, I have been pretty vocal on here sice being diagnosed in january (Stage IA), apologies for recently however, all will become clear :). This is an update on myself along with a couple of questions. I recieved my first treatment of ABVD (no 1 of 8 in total) last thursday 7th Feb. I felt...

  • Forum Post: Hypothyroidism after ABVD?

    Posted by
    Posted 8 months ago
    Hello there I finished my chemo about 18 months ago and have been borderline hypothyroid for a while, i was just wondering if this is a typical path... i know radiation therapy is thought to affect the thyroid but just chemo? I did 6 months of ABVD and haven't felt absolutely tip top at ant...

  • Forum Post: RELAPSE - ANYONE HAD ESHAP?

    Posted by
    Posted 10 months ago
    Hi I discovered last week that my Hodgkin's Lymphoma has relapsed - I was originally diagnosed in June 2010 with stage 4B and have 8 months of ABVD then went into remission. This time it's stage 2B (thankfully) and the first step in my journey is ESHAP chemotherapy which is due to start on...

  • Forum Post: Mumps/Tonsilitis & HL

    Posted by
    Posted 10 months ago
    Just out of interest, did any of you who have had HL suffer much with mumps or tonsillitis or even glandular fever during childhood/teenage years? I know there's a link between Epstein-Barr virus and lymphoma and that that causes glandular fever but I've also discovered that EBV can also cause...

  • Forum Post: Re: Preparing for stem cell transplant after ICE

    Posted by
    Posted 11 months ago
    Hi Liz Sorry for late reply, I was travelling. Yes, I underwent autologous blood stem cell rescue after 3 different chemo regimens between Jan 2010 and Feb 2011. Due to my age (55+) and poor stem cell output, the doc did warn me that I was at best a 'marginal' candidate. I was symptom free...

  • Forum Post: Totally paranoid....

    Posted by
    Posted 11 months ago
    First of all, let me apologise as this will seem ungrateful and insensitive to anyone not yet in remission. I am and I'm truly grateful to be BUT I am constantly on the lookout for the cancer to return. I suppose this is normal but it's quite hard to talk about as it seems uncharacteristically...

  • Forum Post: Some Good News!

    Posted by
    Posted over 2 years ago
    So after 9 years, numerous treatment including various chemos, radiotherapy, a trial and an Allogeneic Stem Cell Transplant, plus all the various side effects you get from all the above treatments, plus being a relapse patient, I got the news today that I am in Full Remission :) It's been hard, having...

  • Forum Post: Yes worried

    Posted by
    Posted over 2 years ago
    Well it looks like my hubby is to be having treatment again .He had RT when his HL returned in march and things were looking good .First treatment was in 2009 6mths of AVBD. Yes we were going to enjoy the summer go away ect . Oh no thats not to be He has suffered back pain for weeks now after a...

  • Forum Post: Re: hello - - ive been diagnosed two weeks ago

    Posted by
    Posted over 2 years ago
    Hi Kel I am 28 and have been diagnosed with the same recently. My PET is complete and i am yet to discover my stage. Have to go through a lot. How are you now? Hope you have recoverd from the chemo effects. Take Care. Regards 26-July-2011

  • Forum Post: Re: Stem cell rescue done

    Posted by
    Posted over 2 years ago
    Hi Stacey The bone marrow aspiration was done right in the beginning (Jan 2010) along with the biopsy of a malignant node tissue that was extracted from the abdomen. Tests showed bone marrow was free from disease (they use the term 'uninvolved') but the sample lymph node tissue showed HL....

  • Forum Post: Re: doesnt feel like anyone is listening.

    Posted by
    Posted over 2 years ago
    Hi, Emma, Finally got to see the docs last week - bloods all OK & the specialist doesn't seem to think it's anything sinister. it's still there but I'm trying not to think about it. Hope you're well? Cheers, Martin...............

  • Forum Post: Re: NOT ANOTHER RELAPSE?

    Posted by
    Posted over 2 years ago
    Hi Martin I am shocked, but I hope it is only one of nature's pranks! I am hot on your tail. I was given a 6-week break after the last scan (23 Nov - all clear), then on the 4th and 5th of Dec, two sessions of stem cell harvesting yielded a total of 70% of the required amount. I am now resting...
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