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  • Forum Post: Want your thoughts - 10min online survey

    Posted by
    Posted 2 months ago
    My name is Natalie Seebeck and I am a student at the Lo ndon Metropolitan University studying Psychology. As part of this course, I am conducting a research project on people’s beliefs towards their illness/health condition and related treatment. You have been invited to take part in this study...

  • Forum Post: Re: not responding well to abvd

    Posted by
    Posted 2 months ago
    ABVD did give me the usual ill-effects (weakness, fatigue, loss of taste / appetite, sore mouth, hair loss, wrinkling and darkening of skin and nails etc) but the 'B' (Bleomycin) so badly scarred my lungs after the 4th dose that breathing became painful and laboured even after a short walk. My...

  • Blog Post: Week/Weak 1

    Posted by
    Posted 3 months ago
    I'm one week into my treatment for Hodgkin Lymphoma and in all honesty not feeling half as bad as I expected. I'm aware that this will probably change and I won't be able to carry on "as normal" as I have been this last week, however I'll try to as long as I can. This week...

  • Forum Post: Cancer patients and the feeling of 'Otherness'

    Posted by
    Posted 3 months ago
    My name is Alex Reitemeier, I'm a psychology student at Nottingham Trent University doing some research into cancer. I want to find out if other people's reactions to a person's cancer shapes and changes their self-perception. I have emailed and received permission form the Macmillan...

  • Forum Post: Diagnosed with HL on 11/1/13

    Posted by
    Posted 4 months ago
    Hi all. I have decided to join the forum after reading the very helpful posts. I have been diagnosed with HL on 11/1/13. I am awaiting confirmation of dates for scans and start of chemo. I do not yet know the stage of it. I am 25 years old and work as a firefighter. I have never touched a cigarette...

  • Forum Post: Hypothyroidism after ABVD?

    Posted by
    Posted 8 months ago
    Hello there I finished my chemo about 18 months ago and have been borderline hypothyroid for a while, i was just wondering if this is a typical path... i know radiation therapy is thought to affect the thyroid but just chemo? I did 6 months of ABVD and haven't felt absolutely tip top at ant...

  • Forum Post: Just Diagnosed (help and any advice or info would be great)

    Posted by
    Posted 9 months ago
    Hi people, this is all quite new to me as i'm usually a healthy lad. Today i was diagnosed with Hodgkinson's Lymphoma and it's socked me beyond belief. I never thought i'd be told i have cancer and it's still quite surreal. Ready to beat it and get back on my track to a normal...

  • Forum Post: Mumps/Tonsilitis & HL

    Posted by
    Posted 10 months ago
    Just out of interest, did any of you who have had HL suffer much with mumps or tonsillitis or even glandular fever during childhood/teenage years? I know there's a link between Epstein-Barr virus and lymphoma and that that causes glandular fever but I've also discovered that EBV can also cause...

  • Forum Post: Totally paranoid....

    Posted by
    Posted 11 months ago
    First of all, let me apologise as this will seem ungrateful and insensitive to anyone not yet in remission. I am and I'm truly grateful to be BUT I am constantly on the lookout for the cancer to return. I suppose this is normal but it's quite hard to talk about as it seems uncharacteristically...

  • Forum Post: Re: Relapse of Hodegkins Lymphoma

    Posted by
    Posted over 1 year ago
    Hello! I didn't have many symptoms this time. Last time the tumour in my chest was 15.2cm by 10cm, which gave the Hodgekins away. But this time I had a small lump in my neck, which was nothing at all, but the CT scan showed cancer in my chest and spleen. Since then the lump in my neck has become...

  • Forum Post: Plagued by worry....

    Posted by
    Posted over 1 year ago
    I know this will sound like the sort of problem a lot of people would LIKE to have, indeed if I'd seen this post 18 months ago I wouldn't have felt at all sympathetic. I've been in remission over a year but last week started itching, which was my first symptom originally, now I have totally...

  • Forum Post: ABVD

    Posted by
    Posted over 1 year ago
    Hi my 18 yr old daughter has justed started ABVD regime. does anyone else who has had this able to say that sailed through it ? she started on the 5th jan so we are oin day 3 and anxiously waiitn for side effects to kick in!!! so far we have headache, blotching , tingling, eyes aching and feeling sick...

  • Forum Post: Re: Hi I'm new to all this.

    Posted by
    Posted over 1 year ago
    Hi Millie, Happy new year! thanks for you reply, sorry not replied earleir but been hectic time, what with christmas work and hospitsl appointments i've not really known what day it is unless my mobile tell mes LOL!. yes you are right about the right cancer... not to say that anyone would...

  • Forum Post: scared

    Posted by
    Posted over 1 year ago
    My husband has severe RA and has now been told he has hodgkins, he was in hospital for 10days and released for xmas , with loads and loads of drugs to help with the pain. hes 51 always worked never been sick, he is not coping with not being able to move or do anything for himself . Its bloddy bank...

  • Blog Post: Chemo end

    Posted by
    Posted over 4 years ago
    Well 6 months have gone and Alan had his last chemo today .He has a scan on 28th then see the doc in october ,we will have fingers crossed,Thks to all that have given support .No fellow chatters i am not planning on going just yet .Ofrf on holiday next Mon for 5 days it will be a break and a change of...

  • Blog Post: Newbie

    Posted by
    Posted over 4 years ago
    Apologies for the length & waffliness of this post. This is my first time on this site, so I thought I'd give a whistlestop tour of me having cancer for the past year. I was diagnosed with Hodgkin's Lymphoma last June (2008) & underwent a 6 month course of ABVD chemo. At the time, I...

  • Blog Post: Introduction

    Posted by
    Posted over 4 years ago
    Hello hello, I just wanted to say hi as I've stumbled across this site and it seems to be a good place to unload a fatigued mind! It's unfortunate that so many are going through the troubles of cancer but at the same time, it's comforting to see such a close group of support available here...
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