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  • Forum Post: Re: not responding well to abvd

    Posted by
    Posted 2 months ago
    ABVD did give me the usual ill-effects (weakness, fatigue, loss of taste / appetite, sore mouth, hair loss, wrinkling and darkening of skin and nails etc) but the 'B' (Bleomycin) so badly scarred my lungs after the 4th dose that breathing became painful and laboured even after a short walk. My...

  • Forum Post: First chemo over!!

    Posted by
    Posted 3 months ago
    Hi all, I have been pretty vocal on here sice being diagnosed in january (Stage IA), apologies for recently however, all will become clear :). This is an update on myself along with a couple of questions. I recieved my first treatment of ABVD (no 1 of 8 in total) last thursday 7th Feb. I felt...

  • Forum Post: Totally paranoid....

    Posted by
    Posted 11 months ago
    First of all, let me apologise as this will seem ungrateful and insensitive to anyone not yet in remission. I am and I'm truly grateful to be BUT I am constantly on the lookout for the cancer to return. I suppose this is normal but it's quite hard to talk about as it seems uncharacteristically...

  • Forum Post: Re: Relapse of Hodegkins Lymphoma

    Posted by
    Posted over 1 year ago
    Hello! I didn't have many symptoms this time. Last time the tumour in my chest was 15.2cm by 10cm, which gave the Hodgekins away. But this time I had a small lump in my neck, which was nothing at all, but the CT scan showed cancer in my chest and spleen. Since then the lump in my neck has become...

  • Forum Post: Relapse of Hodegkins Lymphoma

    Posted by
    Posted over 1 year ago
    I am Lottie and I am 19 years old. I am studying Classical Literature, English and Latin at the University of Leeds. I have just been diagnosed with Hodgekins Lymphoma for the second time. The first time I was 15 and I was living in the Middle East, so even though I am quite used to the routine of...

  • Forum Post: Re: results after 6 months of abvd

    Posted by
    Posted over 2 years ago
    Great. I have walked down this path and also underwent autologous blood stem cell rescue. Latest scan 2 weeks ago showed no evidence of disease and in order to avoid radiation exposure, my doc says that in future only routine physical exams, blood tests and maybe ad odd MRI will do. Off for a well-deserved...

  • Forum Post: Re: Stem cell rescue done

    Posted by
    Posted over 2 years ago
    Hi Stacey The bone marrow aspiration was done right in the beginning (Jan 2010) along with the biopsy of a malignant node tissue that was extracted from the abdomen. Tests showed bone marrow was free from disease (they use the term 'uninvolved') but the sample lymph node tissue showed HL....

  • Forum Post: Re: NOT ANOTHER RELAPSE?

    Posted by
    Posted over 2 years ago
    Hi Martin I am shocked, but I hope it is only one of nature's pranks! I am hot on your tail. I was given a 6-week break after the last scan (23 Nov - all clear), then on the 4th and 5th of Dec, two sessions of stem cell harvesting yielded a total of 70% of the required amount. I am now resting...

  • Forum Post: Re: my sister

    Posted by
    Posted over 2 years ago
    Hi I hope the results are out and the doctors are taking good care of Chantelle. Hodgkin's Lymphoma is among the most easily treatable although one has to be patient. I have come down this 13-month journey to the last lap, my high dose chemo + stem cell rescue treatment is due next week. All going...

  • Forum Post: Re: worrying wife

    Posted by
    Posted over 3 years ago
    Hi I was diagnosed with Stage 4-B in Jan, and after 12 doses (6 cycles) of ABVD, the disease remained. I just finished 3 cycles of MINE salvage chemotherapy. A PET-CT scan scheduled for end Nov should hopefully give me an all-clear. All these months, I have had very low energy, nausea, loss of hair...

  • Forum Post: Re: not responding well to abvd

    Posted by
    Posted over 3 years ago
    Hi For what its worth, in my case (Stage 4-B), the disease still exists after 12 doses (6 cycles) of ABVD, and I have just finished 3 cycles of MINE salvage chemotherapy. A PET-CT scan scheduled for end Nov should hopefully give me an all-clear. Still, doctors are strongly recommending that I follow...

  • Forum Post: Re: Hodgkins Stage 4

    Posted by
    Posted over 3 years ago
    Hi I was diagnosed with HL Stage 4B in Jan and 12 doses of ABVD showed great initial progress, but failed to wipe it out. I am due to complete the final of 3 cycles of MINE salvage chemotherapy next week, and hope to see a clean result. Midway through the ABVD course, bleomycin (the 'B' in...

  • Forum Post: Re: Relapse in Hodgkin's Lymphoma

    Posted by
    Posted over 3 years ago
    Hi Rather than wait, I would advise you to get a scan, if I am not wrong, blood tests can sometimes fail to detect a relapse. I was diagnosed with HL in Jan and after 12 doses of ABVD failed to clear the disease in Aug, I am now due for my 3rd and final cycle of MINE salvage regimen next week,...
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