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  • Forum Post: Re: not responding well to abvd

    Posted by
    Posted 3 months ago
    ABVD did give me the usual ill-effects (weakness, fatigue, loss of taste / appetite, sore mouth, hair loss, wrinkling and darkening of skin and nails etc) but the 'B' (Bleomycin) so badly scarred my lungs after the 4th dose that breathing became painful and laboured even after a short walk. My...

  • Forum Post: First chemo over!!

    Posted by
    Posted 4 months ago
    Hi all, I have been pretty vocal on here sice being diagnosed in january (Stage IA), apologies for recently however, all will become clear :). This is an update on myself along with a couple of questions. I recieved my first treatment of ABVD (no 1 of 8 in total) last thursday 7th Feb. I felt...

  • Forum Post: Re: Tests ongoing

    Posted by
    Posted 9 months ago
    I work in contract security on a shift basis. I work 4 days have 4 days off then do 4 nights and have 4 off. If they can sort out the treatment to start on my 1st off day then I am hopeful it will not affect my work. Next week I should know more and I will be settled in my mind a bit more I...

  • Forum Post: Hypothyroidism after ABVD?

    Posted by
    Posted 9 months ago
    Hello there I finished my chemo about 18 months ago and have been borderline hypothyroid for a while, i was just wondering if this is a typical path... i know radiation therapy is thought to affect the thyroid but just chemo? I did 6 months of ABVD and haven't felt absolutely tip top at ant...

  • Forum Post: Recurrent Hodgkin Lymphoma

    Posted by
    Posted 11 months ago
    Hi Guys, Back using the site again....well had popped in and out every now and again to see what everyone was up to every now and again....For those of you who haven't read my blogs in the past I've composed a brief timeline.... Time line of events so far...August 2011 Our son was diagosed...

  • Forum Post: Totally paranoid....

    Posted by
    Posted over 1 year ago
    First of all, let me apologise as this will seem ungrateful and insensitive to anyone not yet in remission. I am and I'm truly grateful to be BUT I am constantly on the lookout for the cancer to return. I suppose this is normal but it's quite hard to talk about as it seems uncharacteristically...

  • Forum Post: Re: Relapse of Hodegkins Lymphoma

    Posted by
    Posted over 1 year ago
    Hello! I didn't have many symptoms this time. Last time the tumour in my chest was 15.2cm by 10cm, which gave the Hodgekins away. But this time I had a small lump in my neck, which was nothing at all, but the CT scan showed cancer in my chest and spleen. Since then the lump in my neck has become...

  • Forum Post: picc line going in tomorrow

    Posted by
    Posted over 2 years ago
    Hi having this done tomorrow do any of you have good results from picc line as terrified and got in a right state over it already fealing sick with worry, I have had 3 chemo sessions and got very anxious as iv bin soo sick and still have 9 to go!!!!!

  • Forum Post: Re: Pins and needles

    Posted by
    Posted over 2 years ago
    Hi Hen,Pins and Needles are common side effects of AVBD(Bleomycin ). I too had it from my first chemo onwards, but I had in my hands, legs and back and they reduce with time. It is annoying and in my case it was like periodic; i will have pricking sensatins for a while and then it will stop for sometime...

  • Forum Post: Neutropenia - Neutrophils never above 0.5

    Posted by
    Posted over 2 years ago
    Hi, Just wondering how other people cope with neutropenia? I'm finding it quite scary and isolating. I haven't had any problems with infection just yet (touch wood) but I'm worried about getting an infection. I'm spending so much time at home and find it frustrating having to screen my...

  • Forum Post: Son in first stages of diagnosis

    Posted by
    Posted over 2 years ago
    Just wondering if anyone can give advise as a parent of what we're about to go through, our son had his first appointment today at the hematology unit in our local hospital and was told that the lumps he has under his arms are more than likely to be caused by Hodgkin Lymphoma. Next stage is CT...

  • Forum Post: Re: results after 6 months of abvd

    Posted by
    Posted over 2 years ago
    Great. I have walked down this path and also underwent autologous blood stem cell rescue. Latest scan 2 weeks ago showed no evidence of disease and in order to avoid radiation exposure, my doc says that in future only routine physical exams, blood tests and maybe ad odd MRI will do. Off for a well-deserved...

  • Forum Post: Re: hello - - ive been diagnosed two weeks ago

    Posted by
    Posted over 2 years ago
    Hi I just wanted to say welcome to the site and I'm sure you will find it very helpful and make many friends here. The last fortnight must've been a whirlwind of emotions for you, I have been on my sons "journey" with him and it is all a bit crazy but we are getting there slowly...
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