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  • Forum Post: Please help my Mum and Dad

    Posted by
    Posted 6 months ago
    Hello all I am brand new to the forum and to the Macmillan site so please forgive me if I say or do anything I shouldn't. First of all may I say what a wonderful, supportive and strong group of people you all are one here. It is really lovely to find :) I actually come here, somewhat cheekily...

  • Forum Post: Re: Any advice please - My Husband was diagnosed Dec 2011.

    Posted by
    Posted 7 months ago
    Hi Kerry_ann Sorry for your husbands predicament , but as it has already been said, he is young to be troubled with bladder cancer, however i have known much younger patients too, so i dont think age is a key factor although it does seem to manifest more in the over 50s. As we are all different...

  • Forum Post: Re: Diagnosis without cystoscopy

    Posted by
    Posted over 1 year ago
    HI First78, I have just read your posts and replies from people who have all gone through the mill which is bladder cancer in all its forms of severity, as a bladder cancer patient myself and having gone through all the diagnostics and a TURBT operation followed by 4 further checkup cystoscopy's...

  • Forum Post: Catheter advice

    Posted by
    Posted over 1 year ago
    Hi, My Father was diagnosed with Bladder Cancer a couple of months ago and is due to have the bladder removed subject to further tests and a pre-op check up. However he is very weak and tired and feels this is mainly because he has to have a painful pee every 90 minutes or so - day and night. He's...

  • Forum Post: Re: new to this and horribly confused

    Posted by
    Posted over 2 years ago
    Hello Boogaroo, Sorry to hear of your fathers diagnosis and all the confussion as to what & why, I imagine as we all do when first diagnosed and having that Cancer word directed straight at one self, we go into a protective shell, some will talk openly about it and the treatment others will say...

  • Forum Post: Chemo for advanced BC

    Posted by
    Posted over 2 years ago
    My father had a TURBT about 4 years ago, followed by an intensive radiotherapy course (37 sessions). He also had intravescular Mytomycin following the TURBT, and an additional two Mytomycin wash-outs following mini-TURBTs. He has just had another major TURBT when a deep rooted tumour was found. He...

  • Forum Post: Re: Get results today I'm scared

    Posted by
    Posted over 3 years ago
    Hello again, Well it apears that your hubby has the same as i do but a bit further down the road on the face of it, if that is how it works, like you this situation is still very new to me and i am not sure how the cancer progresses, or if it stays the same throughout! this is something i will have...

  • Forum Post: Re: just diagnosed

    Posted by
    Posted over 3 years ago
    Hi Dotty, Like me you are stewing, wondering what,when and how long! its a nightmare isnt it, i suppose i am coming to terms with the situation, i have found that this site is very useful in as much as it lets you talk and rant about your innermost feelings to people who are or have been through the...

  • Forum Post: Re: just diagnosed

    Posted by
    Posted over 3 years ago
    Hi Dotty, Nice to chat with you again, its day 5 post op TURBT for me, i think its about the same for you too, so i was glad to hear from you that you are feeling exactly the same as myself, it came over me last evening, feeling very odd indeed, tired, washed out, aching all over, and yes i still...

  • Forum Post: Re: Mums Bladder Cancer

    Posted by
    Posted over 3 years ago
    Hi Lynsey. Sorry to hear about your Mum's diagnosis - sounds very, very similar to my Mum's situation a couple of years ago and it's infuriating. My Mum also had a huge problem with the pain (though initially she wouldn't take anything stronger than paracetamol and couldn't move...

  • Forum Post: just diagnosed

    Posted by
    Posted over 3 years ago
    hello, I have just been diagnosed but am feeling very confused / angry / sad . The surgeon who did the flexible cystoscopy said it was ' probably cancer' and I am being referred for a TURBT, with the consultation in a few days time. The Tumour is 3.7cm. The letter I was given had lots of...

  • Forum Post: Re: Mums got to have chemo

    Posted by
    Posted over 4 years ago
    Hi Mike, thanks for your message. can i ask did your cancer spread locally (lymphs etc) before you had the chemo. you have given me some hope! mum has been told she cant have the op, but of course if chemo works she may very well be able to x x x Jackie
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