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  • Forum Post: Macmillan benefit musical show about BRCA in London

    Posted by
    Posted 11 days ago
    Hi everyone. I'm new to this group and BRCA1+ (just like Angelina!) I actually live in Seattle, but I'm coming to London this week to do a show as a benefit for MCS. It's a one-woman musical comedy about my BRCA experiences called "The Mutant Diaries: Unzipping My Genes" Here's...

  • Forum Post: Breast cancer- second time at a young age

    Posted by
    Posted 30 days ago
    Hello I'm new to this site but here goes... I was diagnosed with breast cancer aged 22 and had local wide excision, lymph nodes removed, chemotherapy and radiotherapy. Now, 12 years on and aged 34 it has returned in the same breast. I have to have the affected breast removed and I have also...

  • Forum Post: Worried.... Any help appreciated!

    Posted by
    Posted 1 month ago
    Hello :) I'am 27 years old, my mum died of breast cancer 5 years ago, 2 weeks ago I found a hard lump in my left breast in the lower quadrant. My GP also found nodulation, what does this mean? I have received an appointment for the breast clinic, but was wondering what will happen there? I'am...

  • Forum Post: Want your thoughts - 10min online survey

    Posted by
    Posted 3 months ago
    My name is Natalie Seebeck and I am a student at the Lo ndon Metropolitan University studying Psychology. As part of this course, I am conducting a research project on people’s beliefs towards their illness/health condition and related treatment. You have been invited to take part in this study...

  • Forum Post: Re: Breast Cancer

    Posted by
    Posted 3 months ago
    Hi Ethel Me too... I have just been diagnosed and we are all in shock and are also in limbo as I don't have any certainties or understanding of what has been found as I was bundled from the consultant's room straight into the clinic room for a load more biopsies and I never got the chance...

  • Forum Post: Cancer patients and the feeling of 'Otherness'

    Posted by
    Posted 4 months ago
    My name is Alex Reitemeier, I'm a psychology student at Nottingham Trent University doing some research into cancer. I want to find out if other people's reactions to a person's cancer shapes and changes their self-perception. I have emailed and received permission form the Macmillan...

  • Blog Post: More information on breast screening

    Posted by
    Posted 4 months ago
    Breast screening: truths, harms and costs There was some choice reading in the bmj recently: ‘Editor’s Choice – Breast screening controversy continues’ Fiona Godlee , editor, ( BMJ 2013;346:f477) in which she flags up calls for more honest information on the harms of screening...

  • Forum Post: breast screening - real facts

    Posted by
    Posted 4 months ago
    I must apologise - on 11 January I wrote to say I'd be starting a Macmillan blog called 'compassion in healthcare' - it's actually 'compassionate care'. It's for people who want to know more about breast screening - the real facts, the up to date science and debate in medical...

  • Blog Post: Breast screening - wishful thinking, and who benefits?

    Posted by
    Posted 4 months ago
    Two of the responses to an editorial by Julietta Patnick, Director NHS Cancer Screening Programmes, are especially noteworthy (Benefits of screening take years to appreciate - bmj 16 January 2013 - BMJ 2013; 346:f299) are especially noteworthy. One, from Hazel Thornton, explains the difference between...

  • Forum Post: blog posts re breast cancer and screening

    Posted by
    Posted 5 months ago
    Hallo. When I posted some information on this group before Christmas some people found it difficult to accept, even though it was reliably sourced. It can be hard to learn that there is another side to an intervention previously hailed as life-saving. So rather than write in this group, where people...

  • Blog Post: Eye-opening article explains mammography debacle

    Posted by
    Posted 5 months ago
    Blogged here with full permission of the author, Cornelia J. Baines MD, MSc, FACE Professor Emerita, Dalla Lana School of Public Health, Ontario, Canada. Published on Canadian Women's Health Network ( http://www.cwhn.ca ) Unpacking the great mammography debate December 18, 2012. ...

  • Forum Post: Re: screening mammography

    Posted by
    Posted 6 months ago
    Thanks Clare. But I don't want people to read into messages about screening that gruelling treatments are a waste of time. In fact the opposite - there is still the good news that women are living longer with breast cancer, but research shows it's due to improved treatments, not to screening...

  • Forum Post: Re: screening mammography

    Posted by
    Posted 6 months ago
    I have the benefit of contact with leading experts in this field - not boasting - just appreciate how lucky I am - so have been abreast of the research and opinions for some time. ground - you are right - this is not happening at the moment - that's why, after much campaigning and research, the...

  • Forum Post: Re: screening mammography

    Posted by
    Posted 6 months ago
    And I'm disappointed but not surprised at this reception - it is usually a case of shoot the messenger of uncomfortable news. The devil is in the detail. To understand fully one needs to follow the research. But the article by Welch in the NY Times is one the best explained and most easily understood...

  • Forum Post: Re: screening mammography

    Posted by
    Posted 6 months ago
    The screening debate has been about inviting targeted women in the general population, women who have no symptoms of cancer ie healthy women - to participate in regular screening by mammography - when it has found to be mostly ineffective but to cause major harms. Mammography for women with symptoms...

  • Blog Post: to screen or not to screen?

    Posted by
    Posted over 2 years ago
    Like most people, I used to think screening for breast cancer was a good thing. Finding cancer 'early' meant it would be small, so could be taken out with minimum treatment and your life was more likely to be saved than if it had grown and spread. Commonsense? Not so. I've been following...

  • Blog Post: 1st blog, Going threw it again

    Posted by
    Posted over 2 years ago
    hi all thought id start my own blog see how it goes feel free to join in. im now on my 1st session of my second course of chemo. i was diagnosed with breast and ovarian cancer in september last year and had a lot of other probs too but after 6 courses of carbo taxol got better.that finnished in...

  • Blog Post: The cruel hand of fate

    Posted by
    Posted over 2 years ago
    I have just been diagnosed with breast cancer, well in fact just 5 long whole days ago. I am not sure how I am feeling as it is all still quite surreal i am numb. I think i may have lost touch with reality or in total denial....................... Before i know it i will be going through a mastectomy...

  • Blog Post: hormone + breast cancer

    Posted by
    Posted over 2 years ago
    Hi, I'm 37 and have had a lumpectomy and now need to have a masectomy and reconstruction as my margins weren't clear. I have also learned that my cancer is hormone +, the Dr's seem to think this is a good thing. All I can work out is that it means I will have to go through early menopause...

  • Blog Post: breast reconstruction

    Posted by
    Posted over 2 years ago
    Hi, I found a lump 8 weeks ago, I have had a lumpectomy and the margins are not clear. I have opted for a masectomy and reconstruction - can anyone give me some personal experience stories of this operation. I'm 37 years old and just feel I have been given loads of information from Dr's but...

  • Blog Post: Life is a rollercoaster ...

    Posted by
    Posted over 3 years ago
    You know ... I used to say “ if only I could have a pound for every compliment I receive for them red shoes.” However, over the last few weeks it would be for each time someone has said to me “Go sh ... doesn't time fly ... where did that year go ...? ” These comments have...

  • Blog Post: Bit of background - second time for breast cancer

    Posted by
    Posted over 3 years ago
    Hello, I have been reading many other blogs and have found it really helpful, so thought I would outline a bit about my situation to see if any others have had similar experiences that I can learn from, or if anyone is going through the same thing now. I first had breast cancer back in 2004 when...

  • Blog Post: You are one in a million ...

    Posted by
    Posted over 3 years ago
    Well, actually I am not one in a million ... I am one in 28 million. What I am not sure about is whether that makes me more or less special ....? Last weekend saw the end of the Tour de France. Yes, I know what you are saying. “ Tour de France?! What is she on? " That it is up there with my...

  • Blog Post: What a difference a month makes!

    Posted by
    Posted over 3 years ago
    Greetings my macland buddies. I try to post good news news to give people a boost and show that there is hope out there in macland. The last blog just over a month ago was to celebrate my 12 months in remission. Well my friends a lot can happen in a month. Last week I had an emergency resection...

  • Blog Post: Progress so far....

    Posted by
    Posted over 3 years ago
    Hello Mac World Things are going well with Pats so far. First lot of Chemo was ok, was scary as no one knew what to expect. It was quite a surreal experience just to accompany someone! Surreal but not in a bad way, was actually a remarkably calm experience for Pats. The nurses in the Medical Day...
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