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  • Forum Post: Calling Ayrshire Supporters - The MacMillan Charity Ball & Auction

    Calling All Ayrshire Supporters! I really need your help. My name is Laura Cunningham, 21, from Kilmarnock, East Ayrshire. Before I tell you about the MacMillan Charity Ball & Auction I want to clue you up on me and why I support MacMillan. The brutal truth is... Cancer hasn't had that much...
  • Forum Post: exome sequencing?

    hi everyone, I have posted a few times on here. My mum had breast cancer 11 years ago aged 51, and has lost 2 sisters to breast cancer who were in their 40's. Mum was diagnosed with colon (stage 2) & ovarian (stage 3) cancer last July, and is now palliative after the chemo to shrink the ovarian...
  • Forum Post: Re: Travel insurance problems

    Thank you yo everyone for responding about travel insurance. I have booked now through Eurotunnel and they only ask you if you are fit to travel. As it happens I asked my Onc for a letter confirming this as well as my diagnosis and treatment so that I can carry this letter when I am away. The cost of...
  • Forum Post: Want your thoughts - 10min online survey

    My name is Natalie Seebeck and I am a student at the Lo ndon Metropolitan University studying Psychology. As part of this course, I am conducting a research project on people’s beliefs towards their illness/health condition and related treatment. You have been invited to take part in this study...
  • Forum Post: Cancer patients and the feeling of 'Otherness'

    My name is Alex Reitemeier, I'm a psychology student at Nottingham Trent University doing some research into cancer. I want to find out if other people's reactions to a person's cancer shapes and changes their self-perception. I have emailed and received permission form the Macmillan...
  • Blog Post: Monday 3rd December

    I'm feeling ok considering what's been pumped into me! I still feel nauseas in the night and on waking, but I'm fine once I start taking the anti sickness tablets in the day. The steroids make me feel restless, which is not a good combination when I feel so tired!!! My middle daughter came...
  • Blog Post: Saturday 1st December

    It's been a tiring and eventful few days since my last post. On Thursday, I had my PICC line fitted. As a real needle phobic, myself and my daughter were amazed at how calm I stayed throughout the whole procedure! I am convinced that the hypnotherapy session I had on Monday afternoon was the reason...
  • Blog Post: Wednesday 28th November, 2012

    Today is a much needed day of rest and I will not be changing out of my PJ's! It's also been a belated opportunity to create my blog!! I've been tying up a few loose ends this week, via emails and telephone calls, prior to the start of my treatment. I will also do an online shop today. I...
  • Blog Post: Tuesday 27th November 2012

    This was my first outpatient visit at the Velindre Cancer Hospital to have bloods taken and my oncology appointment. It felt surreal sat in the waiting area surrounded by cancer patients. I was there nearly two hours and passed the time thinking, reading a newspaper and even a bit wig spotting! I wanted...
  • Blog Post: Where it all began ..........

    As I'm a few months down the road on my cancer journey, I will fill in the gaps prior to today. I so wish that I had started this earlier as my friends suggested! I am 54 years young, with three grown up children. On Monday 3rd September 2012, I visited my GP, with concerns about a breast...
  • Forum Post: RE: Capability Sickness hearing and no Union rep

    Thank you Laura. I've already done that and, although the information is useful, is quite general.
  • Forum Post: RE: Capability Sickness hearing and no Union rep

    Dear all, I am in a terrible mess. HR is sending me to a Capability Sickness Hearing; this is because I had a 10 months sickness absence from work. The reason was related to the BC I had some years ago. I had to be investigated for mets and I just couldn't take it. Although the test came...
  • Forum Post: Mum diagnosed with ductal carcinoma

    The past few weeks have been a total whirlwind, mum went for her mammogram and it came back that there was something there. She went for a biopsy and that lead onto a lumpectomy and removal of lymph nodes. From this they discovered that mum had ductal carcinoma (grade 3) so it was very aggressive. But...
  • Forum Post: Please sign my petition to ask the Government to fund Cyberknife Stereotactic Radiotherapy treatment for all, and not just those who live in the right postcode.

    Please sign my petition to ask the Government to fund Cyberknife Stereotactic Radiotherapy treatment for all, and not just those who live in the right postcode (see link below) Last year the Government set up an Expert Committee (the National Radiotherapy Implementation Group), to consider the efficacy...
  • Forum Post: Breast Cancer Support Day in Swansea 3rd October

    Please visit http://www.thehaven.org.uk/how-we-can-help-you/whats-calendar/2012-10/breast-cancer-support-day-swansea-0 for more information.
  • Forum Post: Re: Is the cold cap worth it and chemo questions

    Hi Jo, I am glad you found my post helpful. My hair is still looking good and is about shoulder length now! I am planning on having it cut and coloured soon at Tony & Guy as they have staff trained in hair care for cancer patients. I know it will be mega expensive, but your hair can be totally...
  • Forum Post: Started losing hair 2 days ago :(

    Day 15 after first lot of FEC and I've noticed I'm losing my hair. I didn't expect it to start so soon. I thought I'd have another week until I started my second treatment. I'm prepared for it, but not emotionally. On the whole I've been ok, but it doesn't stop it upsetting...
  • Blog Post: new post

    Just to let you know I have a new post on my blog about secondary breast cancer. You can read it at... www.writtenoff.net Thanks for reading.
  • Blog Post: Secondary Breast Cancer Blog...

    After my recent secondary diagnosis, at 28, I decided to write a blog about my experience. I hope it can give an insight into living with cancer and also help those who are suffering from the disease by sharing my experience. Thanks for reading. http://writtenoff.net/
  • Blog Post: Last Day Of Radiotherapy :-))

    Well thats another hurdel over and done with :-)) I have been lucky, I've not really had any trouble with this treatment and what the nurses told me turned out to be true.... " If you've delt with chemo then this will be a breeze " The nurses were all fantastic once again and I didn't...
  • Blog Post: 50% survival statistic

    It's been a hard week; I found out that I have a 50 % chance of surviving over 5 years... a difficult one to get my head round, especially when everyone at the hospital talks in positive talk, preventative treatments aiming to cure.... ha.... I feel just a tad fobbed off really, although what they...
  • Blog Post: beaten up by chemicals.

    Wow, I had my 4th chemo and first Herceptin last week... and have felt like I've been beaten up since saturday. What a complete change in side effects .. I've gone from metal tasting and nausea to crawling up the stairs and shuffling about like an old age pensioner. My understanding of the phase...
  • Blog Post: Just thinking...

    Your present circumstances don't determine where you can go; they merely determine where you start. We should not judge people by their peak of excellence; but by the distance they have traveled from the point where they started. I still find each day too short for all the thoughts I want to think...
  • Blog Post: lessons

    The difference between school and life? In school, you're taught a lesson and then given a test. In life, you're given a test that teaches you a lesson
  • Blog Post: what will be, will be

    Having got over the hectic xmas prep, I had my second chemo Dec 22nd so xmas was as good as it could be although I did feel quite rough. Straingley though, this didn't bother me as much as I thought it would, I was confident that I would be starting to feel better by the new year and my daughters...