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  • Forum Post: RE: Chemotherapy cisplatin and pemetrexed - too much for mum?

    Hi Rosy, I am 68 and am in the same position as your mum. I too have secondary lung, liver and ...
  • Forum Post: sigmoidoscopy and biopsy results

    Hi Can anybody relate to this? I am a 35yr old woman who has had bowel changes, pelvic/abdominal pain, extreme lethargy and decreased appetite for over a year now along with problems swallowing and regurgitating food. I had a sigmoidoscopy on 3rd Feb and they took 6 biopsies.10 weeks later and...
  • Blog Post: Bowel cancer webchat 2014 – transcript

    Last week, cancer information nurses Anne and Kate were in the chatroom answering your questions about bowel cancer. Topics included hereditary bowel cancer, coping with changes to bowel habits, advanced bowel cancer, and fertility after bowel cancer treatment. Here are all the questions and answers...
  • Forum Post: Starting chemo tomorrow

    Hi everyone I haven't been on the site for over a week as had problems with internet connection - just as I had found you and felt there are people out there who could support and advise me! Anyway, problems sorted, internet connection now restored. I will be having my first chemo treatment...
  • Blog Post: Bowel cancer webchat – 8 April

    Questions about bowel (colon and rectum) cancer? Join nurses Jennifer and Anne for a webchat next Tuesday lunchtime. It’s Bowel Cancer Awareness Month, so Jennifer and Anne will be in our chatroom to answer your questions. Topics could include treatment, side effects, surgery or coping with...
  • Forum Post: Re: Advice on benefits sought

    Thank you Hiloa and Lawsjack . I have booked an appointment for a callback from a financial advisor as it does seem a minefield. Hopefully they can offer some insight especially as having checked out my PHI company on-line which hasn't eased my anxiety one iota. Hiloa, the infection is receding...
  • Forum Post: New Here

    Hi, I had bowel cancer two-and-a-half years ago and despite not being able to have chemotherapy because of pre-existing conditions, I hoped that was the end of it. However, three weeks ago, I was told that I had two secondary cancers in my liver. Three scans later, it was decided I had four and I was...
  • Forum Post: Advice on benefits sought

    Hi all I had a double resection of the colon back in January and was doing well, until a couple of weeks ago when an infection really reared up and went back into hospital for ten days. I have a temporary Ilieostomy .I'm currently building up my strength to commence Chemo My question is about...
  • Forum Post: Father is terminal, but advice needed on dealing with stepmother

    Hi, This is my first time on here as I would be grateful for any advice on a difficult situation: my father has been given about 2 months to live and he is deteriorating quite quickly and is in increasing amounts of pain. He is being "cared for" by my step-mother, who is not really coping with...
  • Forum Post: Re: Secondary Liver Cancer - Eventual Liver Failure and What to Expect

    This thread has been so valuable to me. My mom was diagnosed with bowel cancer, secondary liver and thoughout her abdominal cavity just over 3 weeks ago. Advised it was terminal with 3-6 months to live. also advised chemo would make her a lot worse and may not help so she decided against it. Since...
  • Forum Post: Re: First Timer

    Hi, tellmewhy, I really admire your brother and attempt to mirror his approach to life. Despite being 67, I have a much younger outlook and, even though I have limited mobility, I try to do as much as I can. I sincerely wish your brother well and hope his treatment continues to support him. ...
  • Forum Post: RE: First Timer

    Hi Hiloa, Many thanks. I still can't take it all in. I have to keep reminding myself that the cancer has returned and spread to such a wide area. I'm going to ring the oncologist's secretary tomorrow to see if she has received the referral from Birmingham. I don't want to get lost...
  • Forum Post: How long left????

    Mother's day tomorrow and 3 weeks ago my mum was diagnosed with terminal bowel cancer spread to liver and peritoneal cavity. 3-6 months to live. She is literally getting worse by the day. Cant eat anything now no energy at all and her feet and legs have swollen like balloons so she can barely walk...
  • Forum Post: First Timer

    Hi, This is my first time visiting the MacMillan Community (or as we call it, Douggie Mac's). Two years ago I had surgery for bowel cancer but was refused follow-up chemotherapy because of my various medical conditions. Three weeks ago, I was told I had two tumours in my liver, further scans revealed...
  • Forum Post: Help planning holiday for terminally ill mum

    My mum has ovarian cancer which has spread to her bowel and liver, that we know of. She had major surgery recently but has just found out that she has multiple tumours on her liver which are inoperable. We have been told that she will probably not be around to celebrate her 60th birthday and 30th anniversary...
  • Blog Post: The long road back to the new normal. (Life after cancer treatment).

    If you have finished treatment there is a belief that you should be jumping for joy. You’re in the clear; you don’t have cancer, why wouldn’t you be the happiest person on earth? It may frustrate you that people don’t understand, and are rushing you to get back to your old self...
  • Blog Post: Hello again

    Hi Everyone, So I haven't written on here for a while. To be honest I haven't written anywhere, I haven't thought and I haven't felt. It feels weird and slightly stilted coming back here and trying to be honest with myself because I've been doing a really good job of shutting everything...
  • Blog Post: Dreams

    Hi everyone, I know that listening to other people's dreams is a total drag - "I had such weird dreams last night" is a comment that stirs an internal sigh, especially when announced in the morning, pre-caffeine. You ask politely, then they go on to ramble about the fact that a their...
  • Blog Post: Why I am here, writing a blog.

    Hello, I just thought that I would introduce myself and tell you why I decided to start a blog on this site. First of all, hi and I'm sorry to see you here too. Consider this me giving you a virtual hug. So my dad died about two months ago and I have been wandering around in a very sad and...
  • Blog Post: Cancer genetics – Helping people understand and manage their risk

    Only 5 to 10% of cancers are thought to be linked to inherited genes. But if there are several people who’ve had cancer in your family, you may be concerned about your own risk. If you’ve had cancer yourself, you may worry about your relatives’ risk. In this blog, we’ll tell...
  • Blog Post: Question everything and ask for copies of letters

    Having had a chance to read my dad's letters from the hospitals, all the answers to the questions are there, just that my parents didn't understand the technical jargon and never asked the consultant to explain them. They expected the consultant to tell them verbally all what they needed to understand...
  • Blog Post: June 2013 update

    Why do parents feel it is for the best NOT to discuss important things with their children? So just a short recap: Dad had his operation, the cancer was worse than what showed on the scans, had to have a stoma which kept leaking and was causing a great deal of hassle and stress. After 3 attempts...
  • Blog Post: Bowel cancer – knowing the signs

    April is Bowel Cancer Awareness Month. In this blog, Vicky from the Cancer Information Development Team talks about her experience of bowel cancer and the importance of spotting it early. The facts Bowel cancer , also called colorectoal cancer, is the third most common cancer in the UK. More...
  • Blog Post: Bowel cancer diagnosis – what was your experience?

    You may have seen the news this weekend that bowel cancer rates have risen sharply among men in the last 30 years – much more than the rates in women. The reasons for the rise are not fully understood, although risk factors for bowel cancer include, age, diet, smoking, a lack of physical...
  • Blog Post: Are patients people or slabs of meat?

    Getting really fed up now. Why do doctors play on peoples emotions? Do they understand that patients are people who are ill, rather than slabs of meat they can play with like toys? I wanted to write a blog on how well my dad was doing following his operation, however that is not the case. First we...
  • Blog Post: Dad's op

    My dad had an operation to remove the tumour today. It was more severe than they thought from the xrays, and he has had to have his Colon and small bowel removed. He has also been given a temporary stoma and will need to have surgery again in about 6 months. He is in intensive care this evening, though...
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