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  • Forum Post: pregnant after abvd

    Posted by
    Posted 7 months ago
    hi everyone this is my first post on here. i joined in the hopes of having a bit of reassurance. i was diagnosed with hodgkins lymphoma last year and received 6 months of abvd. i finished treatment on 28th oct 2011. i have recently found out that i am pregnant ( 8 weeks atm ). although i'm...

  • Forum Post: Tests ongoing

    Posted by
    Posted 8 months ago
    Hi everyone, this is my 1st post on the group. My 1 st consultation was today at 13:00 although being told briefly on the phone about my biopsy being positive for Hodgkins we were both feeing awful waiting for today’s meeting. My doctor was running late so we didn’t go in till 13:45...

  • Forum Post: Sore nipples in a man

    Posted by
    Posted 8 months ago
    My friend has been suffering from extremly sore nipples and lack of libido for over a year and throughout his treatment. He came to the end of a 6 months treatment naerly 3 months ago and the scan shows all the tumours have gone. However the sore nipples and non-existent libido are still there. Has...

  • Forum Post: Hypothyroidism after ABVD?

    Posted by
    Posted 8 months ago
    Hello there I finished my chemo about 18 months ago and have been borderline hypothyroid for a while, i was just wondering if this is a typical path... i know radiation therapy is thought to affect the thyroid but just chemo? I did 6 months of ABVD and haven't felt absolutely tip top at ant...

  • Forum Post: Recurrent Hodgkin Lymphoma

    Posted by
    Posted 10 months ago
    Hi Guys, Back using the site again....well had popped in and out every now and again to see what everyone was up to every now and again....For those of you who haven't read my blogs in the past I've composed a brief timeline.... Time line of events so far...August 2011 Our son was diagosed...

  • Forum Post: Totally paranoid....

    Posted by
    Posted 11 months ago
    First of all, let me apologise as this will seem ungrateful and insensitive to anyone not yet in remission. I am and I'm truly grateful to be BUT I am constantly on the lookout for the cancer to return. I suppose this is normal but it's quite hard to talk about as it seems uncharacteristically...

  • Forum Post: Plagued by worry....

    Posted by
    Posted over 1 year ago
    I know this will sound like the sort of problem a lot of people would LIKE to have, indeed if I'd seen this post 18 months ago I wouldn't have felt at all sympathetic. I've been in remission over a year but last week started itching, which was my first symptom originally, now I have totally...

  • Forum Post: picc line going in tomorrow

    Posted by
    Posted over 2 years ago
    Hi having this done tomorrow do any of you have good results from picc line as terrified and got in a right state over it already fealing sick with worry, I have had 3 chemo sessions and got very anxious as iv bin soo sick and still have 9 to go!!!!!

  • Forum Post: Anticipation Nausea

    Posted by
    Posted over 2 years ago
    Hi, I just finished my 3rd cycle of chemo for stage 3 Hodgkins this week! Hooray halfway through. However, I've started to notice that I start to feel nauseous at the mere thought or mention of anything to do with chemo. Entering the hospital for chemo day is making me feel ill too. As soon as the...

  • Forum Post: In remission

    Posted by
    Posted over 3 years ago
    Hi The PET/CT scan of 23 Nov was clean and the docs have cautiously declared me to be in remission. They also bombarded me with statistical data and convinced me that the high dose chemotherapy and blood stem cell transplant is worth going for despite the risks and costs! Presently off all medication...

  • Forum Post: Re: worrying wife

    Posted by
    Posted over 3 years ago
    Hi I was diagnosed with Stage 4-B in Jan, and after 12 doses (6 cycles) of ABVD, the disease remained. I just finished 3 cycles of MINE salvage chemotherapy. A PET-CT scan scheduled for end Nov should hopefully give me an all-clear. All these months, I have had very low energy, nausea, loss of hair...

  • Forum Post: Re: not responding well to abvd

    Posted by
    Posted over 3 years ago
    Hi For what its worth, in my case (Stage 4-B), the disease still exists after 12 doses (6 cycles) of ABVD, and I have just finished 3 cycles of MINE salvage chemotherapy. A PET-CT scan scheduled for end Nov should hopefully give me an all-clear. Still, doctors are strongly recommending that I follow...

  • Forum Post: Dealing with Life After Hodgkin's

    Posted by
    Posted over 3 years ago
    All I wrote a short account of life with ABVD and how I prepared for the task of chemotherapy. Some suggested that a few words on dealing with life after Hodgkin's would be useful so here's my take. Please do add to this. Statistically speaking, the overwhelming majority of us will get...
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