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  • Forum Post: Bloating after chemo...

    Posted by
    Posted 12 days ago
    Has anyone experienced this after chemo? I was diagnosed with HL in January this year and am 6 treatments in of ABVD with 7 to go. This last treatment (Wednesday last) I have experienced extreme bloating in my stomach. It literally looks like I am about four or five months pregnant and nothing alleviates...

  • Forum Post: Re: not responding well to abvd

    Posted by
    Posted 2 months ago
    ABVD did give me the usual ill-effects (weakness, fatigue, loss of taste / appetite, sore mouth, hair loss, wrinkling and darkening of skin and nails etc) but the 'B' (Bleomycin) so badly scarred my lungs after the 4th dose that breathing became painful and laboured even after a short walk. My...

  • Forum Post: First chemo over!!

    Posted by
    Posted 3 months ago
    Hi all, I have been pretty vocal on here sice being diagnosed in january (Stage IA), apologies for recently however, all will become clear :). This is an update on myself along with a couple of questions. I recieved my first treatment of ABVD (no 1 of 8 in total) last thursday 7th Feb. I felt...

  • Forum Post: Staging of HL

    Posted by
    Posted 3 months ago
    I am posting this as i have spoken to people here before an merely updating.I have today received my staging and have been told I am a 1A nodular sclerosing type. I'm pleased with this as it obviously means the disease is limited. However I am making sure I don't become arrogant or blasé about...

  • Forum Post: HIV positive + Hodkins Lymphoma = Unlucky but optimistic :)

    Posted by
    Posted 4 months ago
    Hey peeps - well, its only been 3 weeks since cancer diagnosis, so after having researched like mad "The Hodge" and ABVD I thought i would start chatting to some real people who have been there or going through the same "process" as I am. HIV was diagnosed back in 2007 and I have...

  • Forum Post: Tiredness/ fatigue after chemo

    Posted by
    Posted 4 months ago
    Hi. I had my last AVD chemo on 13th of Dec and am still feeling extremely tired and fatigued all the time. I'm waking up at 12pm and feeling the need for a nap at 5/6pm and going to bed around 11pm/12am. I have a job interview soon and really want to go back to work but am worried about...

  • Blog Post: Consultant.

    Posted by
    Posted 5 months ago
    After yesterdays appointment I am still upset and annoyed. Two months ago we were told I had stage 1 Hodgkins Lymphoma, but we now find it's stage 2. This means what was going to be two to three rounds of Chemo has changed to three to four. I know compared to others its not much but its an extra...

  • Blog Post: 4th or 2B lot of ABVD

    Posted by
    Posted 5 months ago
    Not long had my ABVD and feeling ok other than the shock of being told my Chemo is booked until March 2013! My consultant had said I should only need two or three rounds! We are hoping they book more 'Just In Case' apparently it's easier to cancel appointments..... Not been feeling...

  • Blog Post: 3rd ABVD

    Posted by
    Posted 6 months ago
    I had my third ABVD on Monday (12/11/12) they had trouble getting a vein again but that's not unusual the nurse said. I'm still getting really bad heartburn or acid reflux. I'm taking Ranetedine and Gaviscon but its still there grrr! My taste buds are all over the place too, it's that...

  • Blog Post: My second ABVD of ?

    Posted by
    Posted 6 months ago
    Yesterday was my second lot of ABVD Since my 1st one I have not been back to work. I have been very tired and short of breath. No way I could do a 12hr shift plus the traveling time on top of that. Also started developing mouth sores last week, I have a different mouth wash now so fingers crossed...

  • Blog Post: Chemo yesterday

    Posted by
    Posted 7 months ago
    Well that wasn't so bad.... Didn't realise how long it would take even though people had said, it always seems longer when it's you sat there lol All went through with no issues. I was sitting next to a guy who had Hodgkins as well but was back after being clear for 4 years. ...

  • Blog Post: Dates received

    Posted by
    Posted 7 months ago
    Well I now have the date for my 1st lot of ABVD so things are more settled in my head. Its 3 weeks off but I can now try and work out my shifts around the regime as long as people at work dont mind swapping shifts.

  • Blog Post: Late & Rushed or was it?

    Posted by
    Posted 7 months ago
    Well is it just our clinic/centre or all of them.... We get there early as you’re asked to do only to find they are running 1hr and 10mins late. This is only the 2 nd time we have been there and its the 2 nd time we have found it running late I’m wondering now if this is the norm....

  • Forum Post: Re: Tests ongoing

    Posted by
    Posted 8 months ago
    Hi Neil, I am a hodgkin's survivor. 26 years old. I have been in remission since the summer of 2010, so approx 2 years. Things have been going well. Everything has returned to normal with my life except for constantly being in fear of recurrence which I am working on trying to overcome. I went...

  • Forum Post: Hypothyroidism after ABVD?

    Posted by
    Posted 8 months ago
    Hello there I finished my chemo about 18 months ago and have been borderline hypothyroid for a while, i was just wondering if this is a typical path... i know radiation therapy is thought to affect the thyroid but just chemo? I did 6 months of ABVD and haven't felt absolutely tip top at ant...

  • Forum Post: Update on Second late relapse of early stage HL

    Posted by
    Posted 9 months ago
    So, a month later all the exams are complete; portacath was inserted 72hrs ago (that was an odd feeling under local!) - some extra details on the histology are coming from Lyon tomorrow which should show if the abnormal cells show enough CD20 or CD30 to add rituximab or brentuximab to eshap. This time...

  • Forum Post: Recurrent Hodgkin Lymphoma

    Posted by
    Posted 10 months ago
    Hi Guys, Back using the site again....well had popped in and out every now and again to see what everyone was up to every now and again....For those of you who haven't read my blogs in the past I've composed a brief timeline.... Time line of events so far...August 2011 Our son was diagosed...

  • Forum Post: Fertility

    Posted by
    Posted 11 months ago
    Im a 20 year old female. I was diagnosed with hodgkins lymphoma stage 4b. I started on ABVD and was told that it would possibly stop by period but they would more than likely return and my fertility would only have a small chancr of being affected, and i would more than likely have an early menopause...

  • Blog Post: Introduction

    Posted by
    Posted 11 months ago
    In August 2011 my whole world came crashing down and i was given the news that i had cancer! I had Hodgkins Lymphoma stage 4b. It didnt seem real. I was 19 year old! Before being diagnosed i was really ill and had nearly all symptoms of Hodgkins lymphoma so to finally know what it was and that there...

  • Forum Post: Re: HL Chemo Query - Your help needed!

    Posted by
    Posted over 1 year ago
    Thanks for all the feedback. It definitely helped! We saw the consultant yesterday and he is concerned about the pain. My husband is due his end of treatment PET CT scan in a few weeks so this will be investigated. I mentioned the possibility of infection e.g. bone marrow infection, and the consultant...

  • Blog Post: Our Journey: The story so far..part 4

    Posted by
    Posted over 2 years ago
    I've given a lot of detail in this blog and some of it may seem negative. This has never been my aim. I want to share our journey in the hopes that this can help others who have to face such challenges. So why add the negative detail over the PET CT scan? Was it to highlight inadequacies within the...

  • Blog Post: Our Journey: The story so far..part 3

    Posted by
    Posted over 2 years ago
    Now my poor darling has to be brave and start this battle to defeat the tumours in his body! I know he will win! His strong will and determination will not allow failure! The word doesn't exist in his dictionary! Go darling go!! He had his first chemo that afternoon. It was a very emotional day,...

  • Blog Post: Our Journey: The story so far..part 2

    Posted by
    Posted over 2 years ago
    We left the hospital grounds and went for coffee at a nearby store. We talked things through (as we always do) and I said that I'd support him on whatever decision he made; whether he chose to challenge this or just accept this is how it was and to therefore go back and start his treatment. There...

  • Blog Post: Our journey: The story so far

    Posted by
    Posted over 2 years ago
    I've neglected the blog updates as there has been a lot going on so I'll try to make up for it with this update. Where to begin...when I last posted my husband had just had his PET CT scan and was due to start treatment. Things didn't go to plan!  We arrived at the hospital all geared up...

  • Blog Post: Chemo all done and a good scan result

    Posted by
    Posted over 2 years ago
    Alex had his last chemo on Thursday, felt nauseous when we got to the hospital and unfortunately as soon as he had his canula fitted he was sick, the nurse did say it was quite common with the ABVD regime to have this nausea as things like the canula & smells remind people of the treatment &...

  • Forum Post: Re: results after 6 months of abvd

    Posted by
    Posted over 2 years ago
    Great. I have walked down this path and also underwent autologous blood stem cell rescue. Latest scan 2 weeks ago showed no evidence of disease and in order to avoid radiation exposure, my doc says that in future only routine physical exams, blood tests and maybe ad odd MRI will do. Off for a well-deserved...
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