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Forum Post: anyone heard about Kezzerbird?

greybadger — Wed, 16 May 2012 20:56:00 GMT

I know she was quite poorly,and didn't find the new setup on here very good, but she hasn't been on for a few months. Anyone know the latest? She was such a spirited lady, and it seems very quiet without her.

Viv

Forum Post: So Scared..

kittycat — Wed, 16 May 2012 20:56:00 GMT

sorry to be selfish but can someone send me some good vibes or something....I'm F****ing terrified of what tomorrow is going to bring.

Get all breast stage/grade results. I think if I separate the bone 1cm abnormality hopefully it wont be too bad. That scan has yet to be booked and can deal with that when it comes.

Annie said earlier bout the wine/antidepressants issues... I think the wine is my crutch. Hopefully the chemo will turn me off that. The one saving grace is a couple of glases of wine has to be my limit as any more and it keeps me awake all night.

I have read a bc post earlier and someone said the onc told her she had at least another 5 to 10 yrs
!!!!!!!i thought if they got rid of it there was no life limit!!!!!!!! Just regular monitoring. Then read on here about secondary bone stuff and I won't even mention it on here too distressing.......I need the support and want to help others with the experience but I cant' take some of the info on here.

Sorry......I dont' feel I can voice stuff honestly as don't want to scare others who are at same stage.

Forum Post: Re: i am confused...

patricia51 — Wed, 16 May 2012 20:53:00 GMT

Hi Sasha, thank you for your reply of course never thought of the path report your right just would have thought my surgeon would have let me know all this extra stuff.... my head has so much to absorb hope your doing ok thanks again x

Forum Post: Re: warpy warpy doo dah

ruby500 — Wed, 16 May 2012 20:40:00 GMT

Yay for Hils to be back home in her nice cosy bed and not feeling too hurty, and hope we will hear from her soon xxxxxxxxx

I hope I'm off the front page now cause I may get into trouble for this and if it upsets anyone I'm sorry, but fuck,fuck,fuck,fuck, just had Yeti in tears thinking he is the biggest failure, poor kid thinks he can't do anything. Had his assessment for the whole dyslexia thing, when they came to talk to me at home I told him he was really ashamed of it all and being just on the verge of teenagehood and she said she would be discrete, well she needs a lesson in how to do that. Now he thinks that I shedevil has set it all up and when he confronted me with it all I didn't know what to say other than "we just want to help you". If only you could have a how to be a good parent book eh!!!!

Anyway looks like you lot have been doing norty things like swimming and changing not changing dressings AND someone is planning on going maggot hunting!!! Hey if it makes people happy I say what the hell, go for it.

Tye I love your sons tat, very cool and I hope you had a lovely mothers day xx

Tina so glad you got to see ned, I hope you got to give him a big kiss and a carrot or two.

Hi to everyone else, sorry for the moan

Smiles all round

Booby xxxx

P.s. got the all clear from my mammogram today so was very pleased about that. night all xxxxx

Forum Post: Re: what will happen during chemo if having a cold

Solent Lady — Wed, 16 May 2012 20:40:00 GMT

Hi Sandy,

I doubt very much you will be allowed to have the treatment or even go into the hospital as it will be a risk not only to yourself but to other patients - suggest you speak to the nurse and hope you are feeling better soon x

Forum Post: Re: Living without and beyond

jaxandtony — Wed, 16 May 2012 20:35:00 GMT

Tessa , welcome back! Who knows what mood any of us will be in tomorrow, let alone next week. I had am assesment for counselling about 4 weeks ago now and still waiting to hear back from them, its a good job I'm not suicidal. the lady I saw was really nice and she wasn't big on head tilts, always a bonus.

Jules. I read your post on anti depressants, I have been on them for a few months now, my doctor is considering lowering the dose next month, in my experience they have helped me a great deal, but we are all different and there are many different ones,

Still getting pain from my hand, getting used to it now, had enough of it limiting what I can do, normal service resumed, i will ask about it next time I see my GP, noy going to bother making a n appoinment especially for that, he might want to do another injection, not that I'm a wuss, but not overly impressed with the last one,

Time for a cuppa now.

Love to everyone Jackie xx

Forum Post: Re: Advantages of chemo ?

pat26149 — Wed, 16 May 2012 20:28:00 GMT

Thinking of you Julie how hard it must be my husband is 64 and I'm 63 just when we should be growing old together this happens Are you getting support from your family it must be so lonely without him so glad we can talk and share our feelings and thank you again x

Blog Post: sick people

andy19191 — Wed, 16 May 2012 20:21:00 GMT

havent wrote on here for a while but need a rant daves memorial stone car was stolen on monday from a memorial garden on monday 24 hours later a pcso came out for a statement then tonight she rings me saying no evidence so case is closed red rag to a bull that they was suspects and ppl can identife them. so 1 hour later after a phone call to the inspector of the police station who was called a muppet and couldent solve a game of cluedo and he was onkly getting on his high horse because i interrrupted his biscuit dunking case reopened witnesses contacted and 2 police officers round to take another statement and they wonderwhy the police have no respect any more

Forum Post: Re: The Big Knicker Ladies and The Right Honourable Kev

sk kev — Wed, 16 May 2012 20:15:00 GMT

oh no! its gone, try again,

false alarm, dont need the pills, walk the plank, walk the plank, quite mad Ha Ha, loony toons was another one.

Forum Post: Re: Final stages

oldandgrey — Wed, 16 May 2012 20:12:00 GMT

Hello Nick,

I joined this site back in 2007 when my wife was in the final stages of ovarian cancer. Like yourself I was reluctant to enter and take part in the activity of the site. In my case it was maybe because it would have been an admission that hope of a cure was over.

I trust you have in place, support from your district nursing team. Lean on them.

The mistakes I made were, not getting enough rest myself, and feeling guilty ,as though I should have been doing more.

The things I got right were spending as much time as I could,( when she could tollerate it) chatting about our life together and our faith.

You and your wife are in my thoughts and prayers.

Charles

Forum Post: Re: New to the site and need advise

Teasswill — Wed, 16 May 2012 20:10:00 GMT

That sounds much worse than me. I just had nausea & vomiting for a few hours, as well as intense bladder cramps after urinating. Had frequency of urination (e.g. every 40 min) for a week or so as well as a swimmy head from the anaesthetic. Took 2 weeks off work which I certainly needed to recover.

Subsequent TURBTs without the chemo wash weren't nearly so bad.

Hope you feel better soon.

Forum Post: Re: Why is he being sick or wretching do much?

knicnic — Wed, 16 May 2012 20:09:00 GMT

Hi I am so sorry to hear this bastard disease is affecting your family. It really is so horrible like a nightmare. I really hope your dad gets good results tomorrow let is know how he gets on. My dad is having radio everyday for 6 weeks and 6 sessions of chemo as well as chemo tablets. No improvement if symptoms just worsening which is awful. I am a member of inspire lung cancer survivors website which has some positive stories even from late stage cancer survivors xxx

Forum Post: Re: dad has prostate cancer that has spread to his bones

concerned01 — Wed, 16 May 2012 19:52:00 GMT

Yes I agree it is horrible. My Dad is 67 and hasn't been offered anything else, he is responding well to the hormone treatment at the moment. I think we just need to make sure that his pain is controlled and at the moment he is quite up beat and doing well, although he has had a bad time, but Dads tend to hide it from their little girls (even though we are not so little any more)

Hope your Dad starts eating a bit better soon and gets more information when he see's the consultant.

Send me a private message if you ever want to talk, sounds like our precious Dads are in a similar situation right now, it can be so difficult can't it!!!!

Good luck to you all

xxx

Forum Post: Re: Booster for the immune system??

HAIRBEAR — Wed, 16 May 2012 19:39:00 GMT

Hi Sparkler.

Go on let it bite you ( : it won’t hurt, promise. I am still on a bit of a rest day today. After walking to my course from Bristol station on Friday, Walking several miles and fishing of the rocks in Wales where I caught a cod and bass on saturday, trimming the hedge, planting some potatoes and cutting the lawn Sunday and travelling to Birmingham for a meeting on Monday. The Arthur has bitten back in my hips and lower back. So took a day off my feet yesterday ( ducked out off cardio rehab) and just set one small thing to do today. I visited Wilkinsons to buy some wild bird feeders, bird food and have hung them out in the garden.

My dozy cat Salem got the last laugh he thought the Macmillan seeds I had just planted in a new bed was his new toilet . So he’s dug half of them up!!! MOVED MORE FOR MACMILLAN LOL

I guess I have met my target thanks to Salem ( : . The secret apparently is to not set ourselves up to fail, so we do what we can when we can, we just try to do something so if we make a plan keep it small and doable. Summer will help I hope.

I had turkey mince spag bol last week , I confess I had to have a few grates of parmesan (used the smallest grater size), managed to get that past my wife (: I’ve set my target as two treats a week, I am in credit, the strange thing is I don’t fancy anything. Must be ailing, as for the red wine, I can’t drink much these days either, it seems to make my nodes in my neck jump about or ache?? Anyone else ever experience anything similar?

HUGS

Nick

Forum Post: Re: HELP

Eileen50 — Wed, 16 May 2012 19:37:00 GMT

Hi Lisa,

just wanted to say how sorry I am for you, your family and your dad. I know what you must be going through as I lost my husband of 35 years and my three children lost their dad 5 months ago from PC. We had a year after diagnosis with him and we all found the chemo absolutely gruelling although my husband never gave up hoping he might feel better one day. We supported him all the way and allowed him to do it his way but it was never easy. However because we were all in it together and we were honest in a very gentle way with the kids ( 29, 28 and 22 ) we got through it in a very loving and special way. None of us could ever really believe the end would come even though we knew it would. It was a bit like living in two worlds. The end did come and my husband was surrounded by us for his last few days and I think we managed between us to make it a very beautiful and serene process. The kids were magnificent and did not waver in all the cares we had to carry out. I will be proud of them forever. So would their dad. Looking back, I wonder how we did it all but for someone you love, you just do it. Being able to do all I did and to be there each step of the way makes it so much easier now for me to cope, knowing we made his suffering so much easier to bear for him. Five months later, it still hasn,t really sunk in but when I feel really down and weepy I think first of the strength my husband had all through his illness and then of the strength of our children and I know we could have done no more for him. He died surrounded by those he loved the most and those who loved him so much. What I,m trying to say I suppose is just be in the moment, take each day as it comes and when it,s a bad day, hope for a better day tomorrow and just love each other. It,s a precious time. I,m still just living each day as it comes, I,m back at work and I,ve promised myself to be kind to myself and spoil myself for a year. I also write about my feelings and in a year I will read what I,ve written and hopefully see how far I,ve come. It,s not easy, in fact I think it,s much more difficult to carry on with life than it would be to curl up into a ball and give up but I just think one death is enough and I know one of my husband,s main concerns was how we would all cope without him so for his sake we are living our lives for him as well as for ourselves. Please take care but I know you can do this

lots of love Eileen

Forum Post: Re: tonsil cancer

jojo65 — Wed, 16 May 2012 19:31:00 GMT

Thank you Joycee,

he doesnt feel pain so much and has the drinks, just difficulty in swallowing and vomiting, i suggest he increases anti emetics to max dose now, he is using Difflam an Mugard, the latter makes him gag and vomit, tho does help, I wish you well, yo all seem so brave and really go through it, and still support others , hugs x

Forum Post: Re: anyone take anti-depressants?

ruby500 — Wed, 16 May 2012 19:25:00 GMT

Oh Annabel,

This is a very difficult question, we all have our different coping levels with different events that take place in our lives. I was 34 when I was told I had breast cancer, I had a son who was five and was in a unstable relationship also I lost my father two months into my treatment, and to be honest things couldn't have got much worse, my whole world was turned upside down, but I got through it with believe it or not a lot of laughter and love from friends and family, I don't think I would be half the person I am now. I was scared shitless and at times I didn't think I was going to make it, but I did and all without the help of anti-depressants or drinking loads, what I would say is take proper cancer counselling because I didn't until now and it's now that I struggle.

I wish you the best of luck and take any help that's offered and maybe just let it all sink in for a bit, you may surprise yourself!

Btw my son is now twelve, I am 41 and still with my other half in a now very happy relationship xx

Ruby xx

Forum Post: Re: Hello everyone, i would like to ask a question please.

Karen_W — Wed, 16 May 2012 19:22:00 GMT

Hi I have IBC and I had the sharp needle feeling and the itchy feeling, the lymph nodes are difficult to feel by the breast,,,,so my advice is stand your ground and tell them you want an MRI. Then at least if you do not have it the MRI will show that and put your miind at rest good luck

Forum Post: Re: Fundraising for Leukaemia Care and research - Lynda's cycle ride from London to Paris!

leescroft — Wed, 16 May 2012 19:16:00 GMT

Hi Sparkler, you tink...!! but thanks for that, im sure that many people have over the years raised funds for their Charity one way or another...But have to admit the Cocktails and Canape's night went down a storm.

Butlers serving the ladies, suited and booted only to take most of it off for a good cause, the fashion show, me in a dress now that was scary...!!!!!!!! Plus of course the 'FULL MONTY' 3 wonderfull lads baring all for this cause....over 200 people attented the event, all dressed very glam!! and i have now managed to raise over £5500 for the Leukaemia Care Charity..............:)))))))Some pictures will be in the Cumbria Life next month, so will try to put a link on when i get one, or somepictures which is nice as you can at least attach without too much hard work on this site..!! something the other doesnt have.

This does seem cheeky but if you are interested in taking a quick look folks about me and a bit more about my ride and hubby, you can do it one of two ways, you can log into the Leukaemia Care site and im on the magazine section, you can see a picture of me and hubby in the snow..!! that us..not a pretty site honest..!! :((

or you can log into my justgiving.co.uk/lynda-leigh where more details are given. Im not asking you to donate, just check it out and see whats it all about.

So i battle with all sorts of problems, mostly self inflicted due to the sheer effort of trying to train, keep hubby amused, go to the hospital every day for his med (he no longer drives) blood transfusion every 2 wks and the spec every month..when the ride is over on the 10th of June, i for one will celebrate big time, i will get my life back, but you know what, im not sure if i will ever go back to the old me, couch potato, and tubby middle aged wrinkly women. This 61yrs old is the new me, long may it continue..

Sparkler....you have talked me thru the bad times, given ME loads of support through all this as well, you should also take a pat on the back for putting up with all my moaning..love you loads, big hugs coming your way, even tho we cant give them on this site...(used to love giving those out)...xx

Take care all

Lynda...x

Blog: Where do i go from here!

allim — Wed, 16 May 2012 19:00:00 GMT

feeling lost