I have just been diagnosed with Vulva cancer last week one week after my 40th Birthday and the day before my divorce was made absolute !!!! I had brain tumour last January and this was successfully removed with no major lasting damage and then i get hit with this bugger. Could really do with some friends to chat with, as my feelings are one extreme to the other. From being totally lost and scared then angry then positive then confused oh I dont know anyway enough of me moaning, xx

Hi Lisa

I am really sorry to hear about your diagnosis. It's not a common or well known cancer which is why it's so hard to find anything about it but the women on here are amazing and will give you any advice you need and support to get you through it.

Have you been told how they will treat it. I had Vin 3 which is pre cancerous and had a wide local excision 7 weeks ago unfortunately my wound has still not healed and I am just finishing my 4th course of anti biotics. That is just me though because lots of other women heal with no problems.

I find it really hard to talk to my friends and family as I dont feel they really understand especially as I have no clue how I feel most of the time.

Anything you want to ask go ahead

Take Care

Hi - I'm new to this group too.  I haven't got cancer but VIN 3 only.  I am having the same problem with infection, I think mainly due to the top layer of stitches not holding so leaving an open wound. Thankfully the second layer of stitches remained intact.  It's been five weeks since my op and I was beginning to think it was just me that has this problem ...  I'm now on my third lot of antibiotic treatment.

It is difficult to find information that isn't directed at clinicians, which is why i am finding this site so helpful.

Unfortunately my husband isn't particularly useful LOL.  He's concerned and sympathetic but doesn't want to know anything about it at all.  He saw me on this site and said "what do want to go on there for?"  When I explained I wanted to find out as much as possible  he thought I was mad.

Anyway Lisa - use the group for support and information.  There are things I forgot to ask my consultant so I suggest jotting things down before you go.  Ask who is doing the op, it is rarely the consultant and I would advise asking for someone at Registrar level.

I hope it all goes well for you

Hi Chrissie - I had exactly the same proplem following my biopsy. I go into hospital tomorrow (25 October) for a vulvectomy they are removing the left side of my vulva some of the right side, my clitorus and my lymph nodes in both my left and right groins. Expected to be in hospital for at least 2 1/2 weeks.

They cannot tell if the cancer has spread without removing the lymph nodes so will then have to wait another week for results. Chances are I will need radiotherapy and poss chemo after that but it depends on results.How old are you if you dont mind me asking, I am just 40 so a little shocked at getting this as it usually for older peope.

My actual consultant is doing the operation and he is very good in his field so i am quite lucky there, Just not looking forward to the hospital food LOL. Men are quite funny when it comes to womens bits but your lucky to have your husband's support.

Stay strong my friend and hopefully hear from you soon,

Lisa

x

Good Luck Lisa

When I was in for op the girl across the bed was in for the same procedure as you she was 40 as well.

Just be patient and let yourself heal I found the staff in hospital amazing

Will be thinking of you over next couple of weeks

Fi

X

Hi Lisa - I hope it all goes well for you.  I can understand you being shocked.  I had never heard or thought about vulval problems until it happened to me.  I have a minor trip to the hospital tomorrow for them to look at the wound and see if anything can be done to sort it out.

I will be thinking about you - and hope the good luck vibes reach you.  It sounds as though you're in very good hands.  Hope it all goes as smoothly as possible and you make a good recovery

Take care

Chrissie xx

Hi Chrissie

How did you get on at the hospital

I have been back a few times but I keep getting told it takes time to heal and to give it some more time, like you a few of my stitches came out too early and left a raw area, its really not very pleasant.

Hope you managed to get it resolved

Fi

I have recently been diagnosed with vin 3.  I findiIt is really difficult as like most people on here I don't know anyone in the same situation as myself.  It is really helpful to know of others, such a depressing situation, I just wish I  had a crystal ball that told me everything would be all right.  I hope all the ladies on this blog are recovering well now, life is so unfair at times.

Thank you for taking your time to write, it has helped me.

Good Luck and lots of love

xxx