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I'm new to this, only had the news of cancer on the 12/01/2011 and have already been operated on .... Wow warwick are quick!!!
I had a TT on the 18th along with a few lymph nodes and muscle tissue being removed for analysis, during the op it was found that my tumour which was very large had attached itself to the jugular, windpipe and vocal chord. My fantastic surgeon, Ms Markham did a fab job of removing the tumour without killing me :-) and leaving the vocal nerve intact, but i am still unable to speak more than a whisper and it is very frustrating.
Just wondering if anyone else has any experiences with loss of voice and what I may expect to happen, It may seem strange but the cancer isnt freaking me out at the moment, my loss of voice is. It's probably because I feel well in myself apart from tiredness and the only effort is to talk, which when everyone is visiting to see how you are, takes a lot of effort to do.
I know its only been a week but my 5 year old is starting to run rings around me, as you can imagine :-)
Any help/info/support would be great, thankyou so much,
Hi Ali, I'm Ollie. I've been in clear for just a week, but take me back one year exactly when I was diagnosed , just hearing your express journey so far brings it all back. Must have been very worrying about the cling-on thyroid tumour. I was lucky in that things didn't get to that stage for me(far as I know). But I wondered if you had all the vocal chord tests before your op, though perhaps not after(yet). One thing I found was that the spray the registrar sqirted up my nose before the endoscope was fed (question? shaped) down to my chords - the spray was far the most uncomfortable thing. After the op one of the surgeons(few days later) did the same procedure(with a bit of vaseline) without this 'tear gas' without a hitch.
Anyway rest up. Have you got a laptop you can use to chat with your friends &family? - on big script? This group is buzzing at the mo too - Yours Oliver.
Hi Ali and welcome. My lumps and bumps weren't as dramatic as yours (TT in Sept '10) and the surgery didn't make my voice any worse than before, although it is a bit croaky sometimes.
I haven't really got any practical advice for you. Just wanted to say hello and welcome you on the journey.
I was croaky for a few weeks and my colleagues say I sounded 'funny'. I also couldn't shout and I couldn't sing more than about half an octave. But now 6 weeks after the op all is back to normal (and has been for 2-3 weeks).
Forgive my fascination with size, but how big was your lump?
I had worse voice loss after my partial than my completion, I have suffered no voice loss after the latest op at all.
After my partial I suffered with a very hoarse voice for about 6 weeks, no shouting voice at all... one monotonous sound - and my singing voice was totally shot. I couldnt raise much more than a whisper and when i could it was very low so not much use... I found whistling at my 3 yr old was the loudest noise I had to get his attention!
Good news is that it came back - my singing voice not so much - but im pretty much back to normal now otherwise :) x
I haven't had voice problems as such but after 4 thyroid ops over the years my voice doesn't stand up in certain situations, making myself heard in a pub or projecting in a large room. On the whole it's fine though.
Welcome to the group Ally, i had a large tumour (6cm) and have done very well although have just had a raise in bloods which may necessitate another dose of RAI.
Welcome Ally, what a start to the new year eh?!
I didnt have problems with my voice but as a mum of 3 boys i can imagine how this would frustrate you. Maybe try a whistle, footy coaches use them so why not mums with delicate voices?!
Im from the midlands, near Coventry, so not a world away from you. Ive been treated by an oncologist based at the Queen Elizabeth in birmingham and my ENT is based there.
Good luck and take care
Thanks everyone for all your kind words and wisdom :-) Ollie I have had that camera down the nose thingy :-) pleasent as it is?? :-) I had it done before the op to check the vocal chords and then I've had it done twice since, the day after the op and then again the next day and they said there was very little movement but a slight improvement from the one day to the next. Im having it done again in a week so hopefully there will be further improvement, in the mean time my other half is enjoying some nag free time and I'm perfecting 'the look' :-)
The tumour showed as 7cm on the scan and when my consultant described it to me after the op she said it was the size of a very large orange!!! looking back at photos of me now you can obviously see it there but I think as it was so slow growing that I havent noticed it over time and those around me just thought it was how I was. I had no illness with it and it caused me no pain, no weight loss/weight gain, extreme tiredness, nothing at all, if my aunt who is a ENT nurse hadnt mentioned it then I would probably still be unaware of it now!!
Now just have to wait a week for results to see what type of cancer it is, if it is spread and where we go from there. I have been told that I most likely will have to have the RAI, for those of you with small children how did you cope with this, eg expaining why they couldnt see you and how long did you have to be away from them?
Thanks again and much love to you all xxx
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