We are Macmillan. Cancer Support
I have been taking Testogel since April after my 2nd orchiectomy following testicular cancer. I have been taking 50mg per day and my consultant reported that my testosterone levels are a bit low and that I should up my dose to 75mg. This means that I need to take 1.5 sachets per day.
My question is if I open 2 sachets and leave 1 half full can I use it the next day or is it going to deteriorate and be ineffective? The doctor/pharmacist didn't seem to know. Are there alternative ways to take Testogel rather than the sachets?
Thanks in advance.
Like yourself, I underwent my second orchidectomy in June, 20 years after my first one! I have been on Testogel since.
I began on one sachet a day, like yourself, but that was not enough as I felt pretty awful and my testosterone level was below normal (about 8). So since July I have been on 1.5 sachets a day and I feel absolutely fine on that dosage. My testosterone level is about 18, which is probably about right for a guy of my age (I'm 43). I
I can't really answer your question but I wouldn't advise preserving the half sachet until the next day. One alternative is to take one sachet one day and then two sachets the next day, so there is no waste. But then the dosage is a little unevenly spread.
I feel a bit guilty as it seems wasteful.I currently need to arrange a repeat prescription of 100 sachets every seven weeks but I can't think of any way round it. I may ask the GP to increase the prescription to 200 sachets per prescription as this will be cheaper (for me) and will mean sorting the prescription every 14 weeks.
Re: alternatives to Testogel. Nebido might be worth a try for you. it is an injection every 10-12 weeks and I know there are a few guys on here who it works well for. I did try it myself but it didn't work for me.
Hope that helps a little
Thanks for your reply.
I am 42 and I had an 11 year gap between my surgeries! Good to hear that you sorted out your dosage. I will do as you suggest. I did think it was a bit of a pain to save 1/2 a sachet each day.
By the way, when you say "...this will be cheaper...", you are not paying for your prescriptions are you?
I am paying for them. Should I not be?
You can get a Medical Exemption Certificate which gives you free prescriptions for all cancer related treatment, including ongoing testosterone replacement.
You just need to fill in a very simple form and send it off and they send you a card a couple of weeks later. Do a search on the internet for Medical Exemption Certificate and you will find all the instructions.
Get one quick!
I can't believe that that never occurred to me before! I will defo sort that out. Thanks for the tip.
Just out of interest, what was your most recent testosterone reading? I've been chatting with one or two guys on here about what sort of T level is considered normal for men our age.
I think my consultant said it was around 6.5 and that it should be above 10. Does that sound right? (he had just told me my scan was all clear and I found it hard to concentrate on anything he said after that!)
Being totally honest though I have not noticed any adverse effects from it being at that level. Maybe once I get it to the right level I'll notice a difference...?
Fully understand the relief from a scan all clear. It feels like winning the lottery
The normal testosterone range is between 10 and 30. Below 10 is considered abnormal.
On diagnosis mine was 4.4 and I got chronic low testosterone symptoms (moody, dizzy, irritable, wanting to murder people!). I still felt bad when it was 8. The other main symptom was chronic muscle and joint pains, which are improving slowly.
But we're all different and maybe you are coping ok on your level.
I think there might be some knock-on health effects of low testosterone surrounding bone density and muscle aches, which might be why your doc may want it to be higher
If you have any questions about our organisation our Macmillan team would love to hear from you
You can also follow us on Facebook, Twitter, Flickr or YouTube.
© Macmillan Cancer Support 2010
what are these?