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Due to start on the above. This will be my 3rd chemo. Wondered if anyone else has used or is using it.
Hi, I may be starting Trabectedin soon. How did it go?
Hi sorry for late reply! Well I started the Trabectedin but in October scan should kidney tumours not shrinking but lungs were. Had a 10 day course of radiotherapy on the kidney. Scan in December now shows not working on lungsbut radiotherapy did shrink the kidney!! Have come of Trabectedin and will now start 10 day radiotherapy on the lungs. There aren't many options left chemo wise. Also I still don't fully understand why they don't operate! They do tell me but I forget. Cheom brain! Anyway how are you doing?
Had three cycles of Trabectadin awaiting scan date to see the effect. Side effects mainly tiredness but no hair loss!
I have spinal tumour stabilised by doxi. But new lung mets bilateral 1-7mm and have ct on 20th feb results and decision on chemo on 25th.
plan on trabectedin 3wkly. 24hr pump. Plan discussion on poss combi with pazopanib too.
anyone else had dealings with trabectedin with sts or lung mets??
enjoying my chemo break and new hair growth.
I am getting my second dose of yondelis today. my mets in my lungs are around 30mm so this is last chance saloon for me. I find extreme tiredness Is just about the only side affect. but boy is it a frustrating one.hope its the chemo and not my lung getting worse.long wait till 3rd cycle before scan but then again time fly's when you have cancer.
Hope this helps.
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