guy's thought I would pop in and say hello. I recently went to my GP about this
lump on my arm that he told me 6 years ago was fatty tissue, because it had
grown rather large now (about the size of a lemon) but the real reason I actually
went to see him was the dull pain I was experiencing in my collar bone and
shoulder socket, the very next day I got a call from the hospital and was in 4
days later for x-ray, I saw a professor there in Reading. Then was called again
a few days later and told to come in to see another guy, this guy has moved my
case to the Oxford sarcoma centre, where I’m told a team will look over my MRI
results and get back to me. My MRI was yesterday, so if things stay as they
have I’m expecting a call any day now. I have no idea what this is yet, but I
don’t think I will be waiting too long before I know. Anyway, just wanted to say hi, as I’m sure I will
be back many times with questions John
Hi John It is a shame to meet this way but hi. I have had a liposarcoma in my left thigh. We are here for any questions. I am in ozs so our health care is different but still lots we can share. I really hope it is nothing but if it is there is still lots of hope too.Kate
Hi krazykat, thanks for the reply. How did your treatment
work out for you? Good I hope.
Right now it's a guessing game, I keep looking at all the
different Sarcomas trying to figure out what one applies to me. I guess I’m
trying to figure out what one I have and what the possible treatments will be
for me, so I can be ready mentally. I
see the amount of people that went in with a lump on the wrist and came out
without their arm and it’s kind of worrying, I know most people would say I’m
jumping to far ahead, but it’s the way I have always prepared myself, to be
ready for anything.
I am also interested in finding out what expectations
someone might have if they decided not having the treatment. I’m sure this is not
talked about here very often. But I’ve had this arm a long time now, worked it
at the gym many a time and really don’t intend on giving it up regardless of
Hope you guys are having a good day and are being inundated with
You sound very much like me. I crave knowledge, especially if I am anxious about something. I have done the same, searched the internet to discover limb saving surgery is now more available and thought OMG, I might lose my leg!
I get the results of my MRI tomorrow and as my NHS Scarcoma team deem me low risk, have paid for private surgery as I cant wait up to a year for it removing.
My lump is the size of a tennis ball in my thigh muscle, so I am worried that if it grows much more, there wont be much leg left... So I am hopefully in for surgery next Thursday and then a quite re-couperating Christmas with my family looking after me for a change.
So, I totally understand where you are mentally on this one, but my experience is limited so far, so all I can do is wish you well.
My father went to his GP several times with a lump on his upper arm. He was sent away until it grew so large he was unable to put on his shirt. He was then admitted to the Royal Marsden where they put our minds at ease and treated him. The biopsy showed it was high-grade cancer so it was removed and followed up with 6 weeks of radiotherapy. He is doing well, has quarterly scans and has good use of his arm.
It was a terrible shock to us all, didn't even know this type of cancer existed. However, I think if it is diagnosed correctly and early enough there is plenty of hope.
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