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My husband has very recently been diagnosed with penile cancer and we are waiting to hear from St George's Hospital, Tooting. This has come as a huge shock as we've never heard of penile cancer before. I am aware it is rare and I see there aren't too many recent posts, so I'm not sure if I will get a response or not, but I am hoping......
Hi and welcome to the site. I'm really sorry to hear about your husband's diagnosis. It must be very isolating for you both to be faced with such a rare cancer.
You're right that the cancer being rare means that this group is a bit quiet. I hope that you get a response in here, but you might also find it helpful to join and post in our Carers group - this is a really good place to get support from others who are also supporting loved ones with cancers of all types.
Another really good way to get support is to give our team a call on the free Macmillan Support Line (0808 808 0000, Mon-Fri, 9am-8pm) - our nurses can help provide information if you have questions, or you can call if you just need someone to talk to.
There is also a charity called Orchid, which has nurses specialising in male cancers who can answer queries by phone or email. Find out more: www.orchid-cancer.org.uk/665/Speak-to-our-male-cancer-nurses
I'm so sorry for the reason you find yourself here, but welcome, you have come to the best place! You're right, this isn't a common cancer but that doesn't mean you won't find any information or support - quite the reverse!
St. George's Hospital Tooting is a renowned University Teaching Hospital and as I understand it, a centre of excellence for cancer treatment and care. One of our contributors who suffers from an unusual blood cancer and who blogs here:
feels he owes his life to the treatment he's been receiving there and does a lot of fundraising for them. So I think your husband will be in safe and expert hands. Also, a friend of mine did her nurse training there, many years ago but still a good reference!
If you need to talk about the actual disease you can call the lovely and experienced cancer nurses here at Macmillan. It's a freephone number, open Mon.- Fri., 9am - 8pm. and it's just below this post.
And any time you just want to let off steam, ask questions or just have a chat, you could join the group "Carers", where there are lots of super people who are looking after friends and relatives and will instantly understand your concerns.
Don't forget to look after yourself too - we often say that it can be worse for the carer than for the patient!
With love and hugs,
Thanks so much for replying. I have joined the carers group as you've suggested and I found Orchid on an Internet search and told my hubby about it. He has his first appointment at St George's on Tuesday so we haven't had to wait too long. I've also been contacted by a lady who's son is still undergoing treatment for penile cancer, which means I do have another person to talk to about things.
I was under Nick Watkin Ben Ayres and Mr Sharma at St George's and I'd say I owe my life to them after Kent and Canterbury hospital told me it was just a legion and sent me home. All the nurses on the vernon ward "thats the urology ward" I found excellent. Nobody likes hospital stays but I found it very pleasant. Spent 12 days 4 days and 15 days in there between September and november 2012
hi im going though the same thing with my hubbie he has his opp on wed with mr watking has anyony got any info on this
They are renowned as one of the best hospitals to have this type of treatment, so he will be in safe hands.
It is quite an uncommon cancer, so this group is fairly quiet, hopefully you will get a more informative reply about Tooting soon. Until then you could take a look at this Macmillan Information page about Penile Cancer (link) if you haven't been given much information so far.
There is also the Orchid Male Cancer website here that has more specific information regarding penile cancer and treatments.
Hope this is of some help for now.
Take care and best wishes for your husbands surgery, George & Jackie (breast group)
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