We are Macmillan. Cancer Support
As R-CHOP is what my partner is no longer having due to it not shrinking his b cell quick enough they've changed him to R-DHAP & wanted to know others experience with it, as at the moment my partner is refusing the P.I.C.C line due to be fitted friday to let them administer treatment. I wanted to be able to give him more information to ease him into it as into the new treatment because its the unknown & quite understandably hes frightened. I'm finding it very annoying as such not wit him but other people, where I'm supporting him talking to him & trying to ease him into it i get so far & others just put him back to square one & feed his fear & its back to point blank refusal these people he could quite honestly do without speaking to, they're not the ones who go to chemo sessions with him, take the information from the doctors & nurses on board, nor do they care for him.
Hi I guess youhave read the above information, have they said why they prefer to give treatment via a picc line and was your partner given an option? I jusy wonder if you discussed in detail why the canula approach was not an option?
I feel your flustration that you and your partner are not able to discuss what goes on in the consultations and are able to come to an informed decision without the interference of others.
I always had treatment through a canula but I had rchop so cannot share any experiences other than to ask did they discuss the fact you can sometimes have issues with "lines" as I know over the years on this site people have posted problems they have had and the flustration that can cause.
Hope you manage to sort this out as the last thing you both need is friction, as this will be a big enough strain for you both to cope with and I sometimes believe we as the male species make it harder than it needs to be for our carers.
best wishes john
we all know this is a roller coaster ride, where we ride blind, never knowing where the highs and lows are
Thank you as always for your reply John. I've absolutely already read the above information. My partner always has fears when it comes to anything medical & at times its feels like i am somewhat trying to bargin like you would with a child ( that is how the situation comes across when seen)
I am currently working on that with him if he wishes to refuse the line, then that is absolutely fine, I'm not necessarily trying to ease in him into that idea anymore but play it down. I've said request a canula & when you come home a couple days later it can be removed , providing they can take blood from it & do all they need to do that may ease him into it slightly more.
Thank you very much for your post jen, I have passed this information onto my partner its help ease him slightly I dont think he'll entirely calm down until the treatment actually starts & he sees for himself he'll be perfectly fine & not shrivvle up in the bed, its already had a helping hand from R chop so hopefully this one will do the trick
If you have any questions about Macmillan we would love to hear from you
You can also follow us on Facebook, Twitter, Flickr or YouTube.
© Macmillan Cancer Support 2014
what are these?