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Hi Ciara I am sorry that your mum is going through this.
Here is my recent experience of PCI.
I completed 6 rounds of chemotherapy for SCLC in December 2013, my results were pretty good, as my cancer is extensive they were better than hoped. I agreed to the PCI dubiously as I've had issues with radiation from a previous cancer.
I started the radiation on Feb 3rd and completed on Feb 14th on the 16th all the front of my hair fell out in massive clumps. Over the next few days the rest started to come out until i was left with a few bits of stubble. I had bad burns to the top of my head, forehead and ears. I also came out in massive yellow lumps all over my head, the pain from them was excruciating, it turned out I had a massive infection of all the nerve endings.
I was told that the radiation continued to work for 7 - 10 days after the treatment ended and that I could be suffering from exhaustion for months after and that it may take months for my hair to regrow if it did at all.
4 weeks later there's still no sign of my hair regrowing, I have a bit more energy but it burns out quickly and I have to rest. I've changed my diet to a super healthy diet with lots of fruit smoothies which is good for me because i put on a lot of weight during chemo.
I'm sorry I can't offer you anything more I can only give you a true account from my side.
Wishing you and your mum all the best on this rocky journey, Dee
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