Hello,

I first suffered from a TCC in 2004 which migrated to Para-aortic Lymph node in 2006. Both were resected successfully. Now there seems to be  a swelling of the Hilar Lymph Node in my chest and my local hospital CAN NOT do a biopsy. Im on my way to the Royal Brompton in London to have a EBUS biopsy this thursday, but i am wondering if they cannot do a conventional biopsy, thus surgery, does this mean the outlook is not favourable.

I have been told that the original TCC in a person of my age is extremely rare i.e 0.5% of 0.5% of the population and its migratary route is even rarer.

I have been strong throughout the past Two diagnosis's but this time i must admit i am worried that the results may come back as... well you know.. and i dont think i can deal with this. I am at present scared!

Has anyone had to deal with this at all?

Thankyou

Paul

Hi Paul

I have not dealt with what you have described but I could not pass by without sending my love and to say that I really pray for a positive outcome to all this for you. You have faced so much already.

Take Care

T xx

Hello,

Thanks for your message, its nice to finally get a reply. The Royal Brompton was a bit of an experience.....  lets just say the Sedation didnt work so felt everything that happened.

Now got to wait till 17th November to get results of what they found and to see what treatment (if any) will be sugested. Have been told that there is NO WAY that they can get this Lymph node out by surgery so only choices is Chemo or Radio, but last time i had Chemo it nearly killed me so caught between rock and Hard place at the moment.

And all i want to do is to get back to work and carry on with things!!!

Paul xx