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Liver, secondary cancer

Secondary liver cancer is cancer that has spread to the liver from a primary cancer somewhere else in the body. This group is for people affected by secondary liver cancer to share experiences and get support.

Secondary Liver Cancer - Eventual Liver Failure and What to Expect

No. of entries: 98 | Posted on 06 Feb 2014 10:57
  • Hi,

    Reading through this page has brought on a lot of tears but feel it has given me more of an idea of what to expect and what to look out for, thank you everyone who shares their story. I was told my dad had liver cancer nearly three weeks ago now and no treatment or full results since then. I am getting very angry with the lack of help we have only been told it is liver cancer and it is a very large growth which will continue to grow and has taken over most of his liver. 

    My dad is 61 and hadn't been himself for the past few months was constantly tired and lost a lot of weight very quickly (and he doesnt exercise) so he was referred to the hospital and after 4 weeks they told him it was cancer and now we're waiting by the phone for further results

    I am just wondering if anyone can be honest with me as I want to be prepared? Is liver cancer always going to have a quick downfall? Is it inevitable? My dad was doing well when he found out and was told he could come home while waiting for results but in the last week he has completely changed. He doesnt eat (all he had today was half a cup of soup) he stays in bed most of the day and when he is awake he is constantly angry and horrible to me and my mum but was never like that he worships me and for him to shout at me is unusual. He also used to shower twice a day now he barely gets up to shower. His face has changed he doesnt look like my dad anymore. Ive noticed a yellowing in his eyes but nothing extreme.

    Can anyone offer any advice of is this nearing the end or do we have a hope in hell? I just think how is he ever going to battle chemo (the doctor has mentioned this will be the option) if he doesnt eat.

     

    Thanks

    Clare

  • Hi Clare The first thing I wanted to say is that I first read this blog 7-8 months ago, and it was such a help for me in caring for my father. He was diagnosed with bowel cancer with secondary liver cancer in September 2011, and sadly lost his battle in February. Remember every one is different, and I can only give you an insight to the experience we had, dad was a fighter, he was still fighting it till the last day. In the last few weeks he became very irritated and snappy, he was much weaker as well, so a trip to the toilet in the night was a major event, but him being the proud person he was, he wouldn't shout for help. This meant that you didn't really sleep because you we're always listening out for him to help him when he needed it. One night just after Christmas I was helping him to the toilet, and he snapped at me, and I snapped back. When I got him to the toilet he broke down and sobbed "sorry" over and over. I was devastated that I had made him break down like this. One of my best friends died almost two years ago of lymphoma, and his brother is also a very good friend of mine. I have talked with him about this many times, and he gave a different perspective to this. They feel comfortable taking their frustration of their situation out on you, because you are the one that is helping them. They feel that they can do/say whatever they want, because you have been there for them. I actually think that this is true, and I take huge comfort that he trusted me so much, he felt that he coud do that. Our experience after diagnosis was very good. Dad was taken in for a colostomy one week after diagnosis, and two weeks after that they started his chemo. We met the oncologist, all the nursing staff at the day centre where he had his chemo. The first cycle of chemo worked very well and it wasn't until after the third cycle that my dad decided to stop the treatment. This was because the chemo they were going to change him onto had a 50% chance of making him bed bound, throughout the 12 week cycle, and would probably only extend his life by a month or two, and he did not want to spend his last few months in bed. This was June last year. When that decision had been made, the palliative care team were then introduced to us. They are district nurse team who looked after him until he died. Initially they came once a week and would have a chat about how he was feeling, at the end they were there 4-5 times a day. They did a fantastic job, and I am so grateful to them for making dads last few weeks as comfortable as they could. One thing which I found out was surprising is depending on where you live, the care that is offered changes. Where we live is on the border of two councils. My dads GP is in one council area, but we lived in the other council area. If dads GP had been in the same council area that we lived in then we would not have got the level of palliative care that we received. I doesn't make sense to me that the NHS can offer a completely different level of service depending on where you live. If I were you I would go and see your dads GP and ask him all the questions you need the answers too. If he doesn't know then he should be able to find out. I made my decision as soon as dad was diagnosed that I was going to be with him as much as I could be, to care for, to take on days out, to sit and talk, to cook him his tea, to drink with, to laugh with, to cry with, to take to his appointments at hospital and watch him chatting up the nurses ( he was 81 when he died, but he still had it!!). My only advice is make sure you spend a much time with him as you can, and even though the situation is horrible, try and enjoy your time together. I hope that my words have helped you in some way, as reading other people's helped me, and I truly hope the best for your dad, you and your mum. Kind regards Andrew
  • Hi Andrew,

    Thank you for taking the time to reply to me what you meant really helped when I was at one of my lowest points. My dad was taking into hospital the morning after I sent this post, he just was losing his mind and the breaking point for my mum is when he admitted he was frightened and asked if if was in his brain as he knew he was losing it. It was a lot down to medication for his diabetes he was told to come off but they gave us no explanation why or side effects, he has just been very poorly cared for by the doctors and there is only so much we can do i guess!! 

    He's in the best place now (well maybe) so fingers crossed

    C

  • Hi everyone, I have just joined this group and have read a lot of the posts on here and my heart goes out to you all.  The reason I am on here is that currently I have an older brother who is terminally ill with unknown primary which has spread to his lung and bones.  However, the main reason I am posting is because my best friends Husband was diagnosed in Feb this year (2013) with unknown primary which has spread to his liver and his lungs.  Reading other posts, I am astounded to read that they had tests, went for the results, told they had secondary cancer of the liver and offered palative care because there was nothing else that could be done, and some cases were given weeks to live or months to a couple of years at most.  My friends Husband first went to his GP last Sept (2012) with pains in his abdomen, cancer was not suspected as GP did not refer for any tests.  Feb this year went to GP again with a lump in his abdomen, loss of appetite and considerable weight loss, GP suspected a hernia and referred him to hospital for the hernia.   While waiting for an appointment, stomach got bigger and bigger, went back to GP and was told hernia had grown.  Various tests carried out and in March (2013) friend was told, not a hernia but cancer, massive tumor in stomach, unknown primary which has spread to liver and lungs.  No discussion took place, for example we cannot cure you, or you do not have very long to live etc nothing, the only thing they discussed was we do not know where the primary is, so further tests undergone.  These tests took another 2 weeks or so.  During the 2 week wait, my friend started to fill up with fluid and was told to keep his feet high when sat down and in bed.  When they went back to the consultant for test results, all they said was that they could not find the primary but in the 2 weeks between the CT scans, tumor had progressed by quite a rate and was now causing the fluid build up.  Once more no discussion of treatment, no mention of terminal, no mention of the cancer full stop.  What they did was to tell him they were keeping him in and were going to drain the fluid and take a liver biopsy.  What they actually did, was take him in, leave him for 5 days and then started to drain the fluid which currently stands at over 20 liters drained from him and still going.  He has now been in hospital 10 days and they said they would do the biopsy tomorrow (Mon 20th May 2013)  Once they have done the biopsy, he can go home as the results take 3 to 5 days to come back.  When he goes back, they can discuss treatment etc.  Over the weekend his wife has noticed that the whites of his eyes are now yellow and his skin looks yellow and feels clammy.  Nobody, not anyone has given them a prognosis, but while reading most of the previous posts on here, the fact that he is now jaundice does not give a good prognosis.  He is 61, is he going to die in the next couple of weeks.  I appreciate that everyone is different, but his cancer has gone untreated since Sept last year and currently still not being treated.  My friend is beside herself with worry because she keeps saying, every week they don't start the treatment, the cancer is growing and getting worse.  My gut feeling is that the hospital probably know the outcome, is this why they are in no rush to even discuss treatment.  OMG my friend has got the biggest shock in the world coming her way and she is not even aware of it.  I have no intention of informing her of what I have read today because that is the job of the doctors, but I do need to be there to support her when the penny does drop.  Any ideas/thoughts anyone please.

    Gill

  • Thank you This has helped me immensely and helps me to understand what to expect and how best to provide comfort and support. Thank you again My thoughts are with you. H
  • hi, oh my its alfull and so sad.

    i am at the point with my love,  he is yellow, and now sleeping so much, and geting forgetfull, its so sad, we were geting marriesdin june, alas i dont think that will ever happen now....he lives in kent i in sussex, both single parents...i have used all my hoilday for this year, and now will take unpaid leave, which is frightening,,as bills can build up so fast.

    i just dont want him to suffer or be in pain, he isnt at the moment, and i hope he will never be.

    i know he is scared of dying, and i am for him, what can you say to them, is alfull xxxx

    sue lane

  • I feel so sad for you two.  The only thing I can suggest is to LOVE him all you can, and spend as much time as you can together.  There may not be much longer you can be together. 

    My dearest husband of 2 years, died last week 5 days after the doctor told him he may have 6 weeks! He just went to sleep but moved enough for me to hold his hand literally just before he died. The morphine makes sure they are not in any pain.  I am still in shock. The Marie Curie nurses came for the last 2 nights, and were a great support.  See if you can get their help via the District Nurses.

    Make each day the best you can, my heart goes out to you both.

    x

    Helen

  • It is so very hard and my heart goes out to you. Take Helen's advice and just love him as much as you can. Taking unpaid leave is hard but you won't regret doing it to be with him and help him (I took unpaid leave to care for my dad). The Macmillan nurses and local hospice, as well as district nurses were great, so get all the help you can and don't be afraid to ask for it. They will all understand what you are going through. And remember that you're not alone in this... we'll all be thinking of you and your loved one.

    Rosie.