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Good Evening Gra
Just a quicky as I am off to bed soon. Want to be fresh as a daisy for my 9:15am chemo session!!! Also inlaws are collecting girls - need all my energy to cope with them!!!
So a total baldy eh?! Is your head cold? Sitting in Path lab today waiting to get bloods done and noticed quite a lot of fluffy chick men. Also I can spot a wig a mile off now. I am thinking of going to the hairdressers. I figure as I have kept my barnett I should really have it looking tip top!! Not had it cut since my diagnosis at the start of Aug. But keep the clippers away from me!!!
My eldest daughter has discovered number 72 on TV, CITV I think, so no more gentle CBeebies for us! She watches this thing where all the creatures just wear under pants - it is strange. Perhaps you are familar with it?!? The channel has lots of horrible adverts. I only let her watch it for 30 mins and then it has to go off!!!
Well I'm off. You take care, and hope to chat again soon!
Hope your chemo went well! Had my 3a session yesterday. Not bothering with the anti-sickness drugs at all this time as I haven't really needed them yet.
I don't mind the cold air on my bonce really, I'm pretty used to it as I've been shaving my head to the bone for a year or two anyway so it's no different! One thing I will say though is that my hair no longer grows at all in patches on my head so when my hair grows back there isn't very much of it growing, looks a little odd. However, the stuff that hasn't grown back hasn't fallen out either so it's not too bad I guess.
I'm getting a bit good at spotting wigs myself! It's not hard to spot at my sessions to be fair. They always belong to 60+yr old blokes who look like they have the hair of an 18yr old. Badly styled too. I'm going to get a wig for Christmas at my mums. Planning on getting a comedy one though!
I double checked the length of my chemo sessions yesterday with a different consultant to my normal one. She told me that I'm almost certainly down for 6 months, not 3 months, although she couldn't find the decision in my file to confirm it 100%. What she did tell me was that normally they do either 2 months of chemo with radiotherapy afterwards or they do 6 months, they don't do a 3 month course as far as she's concerned. Looks like we misunderstood, easily done when you're mind is blasted to bits after being told you have cancer. When the consultant originally said 6 sessions we both took it as 6 individual visits (ie 3 months) but it looks like he meant cycles. So I'm still not halfway through. I wanted to bury my head in my hands at the time and it upset my wife a lot as she's about had enough as well! We were all getting ready to have me off the chemo for Christmas but it looks like I'll not get finished until well into February now. Bah. Not over the moon about it but what will be will be. No point getting annoyed about a misunderstanding. Fortunately my 'good week' falls in line with the Christmas week so I should be ok for that. New years Eve is the day after the next chemo so I'll not be having a great new year but I can't complain if it ultimately sorts me out!
My Lymphocites or whatever they're called are low this time round, down to 0.57 at the moment and they've told me to be careful to steer clear of infection etc this time. Typically my eldest son has developed a nasty throat/chest infection and has had to stay at his grandma's house while he recovers from it so he doesn't pass anything to me! It's his 7th birthday party today as well and I can't go because of it. Pretty sad about that but I don't want to go back to hospital so I'll just hope my wife gets a few pictures!
No PET scan results though. I fell asleep in the scanner, they had to wake me up. Quite embarrasing really but I was tired, what can I say?!
As for TV channels - our kids tend to watch the Disney channels, they're pretty good, plenty of decent content and although you still have to put up with adverts I don't mind them. I think the channel number is in the low 600's if you have Sky. There's a lot of kids channels from 600+ and most are ok.
Time to go make a sandwich. I'm starving!
Speak soon! Hope you're side effects haven't been too bad!
Good Morning Mr.
So 3a done - nearly half way. Sorry to hear your consultant hadn't made sessions clear. My session was ok. It was better going in the morning as it seemed quicker. However arrived home to very bright and alert children who still had 4 hours until bedtime!! Usually its a quick kiss goodnight and off to bed for me! Booked in for midday next time so back to normal.
So you have crap immunity! Good that you can ship your children off to avoid anything to bad. (Not good that u had to miss party, but there will be others). I have had to cancel meeting with friends a few times as their children are full of cold. My counts usually seem to be ok. All those years of teaching little children have built it up I guess. Is there a count that they wouldn't do chemo at? My dr said they used to give people a shot to boost their immunity, but now they don't bother, it's usually improved by the next day when you have your chemo.
How's the old weight? I had gone up a kg - but planning to bake quite a bit this week!! Want to try a Lemon Drizzle Cake. I am nearly back up to the weight after I had second child - a least I had breast feeding to get rid of the weight then - now I have chemo to pile it on!!!
So you are used to being a baldy. I find I really feel the cold now. I always wear hat and gloves for the school run. I always have to have a jumper or cardi on at home and often blast up the heating! Still have numb finger tips and toes.
So I had my hair cut yesterday. I saw the hairdresser that I took my wig to. He was really knowledgeable about the affects of treatment on your hair. He was impressed with my cool cap. I thought as I've got my hair- I better make it look a bit more presentable! Next step - eyebrows - I will be a professional make up artist by the time I've been to Boots and Debenhams! Not much for the old make up - it takes me 2 minutes in the morning! I imagine it's going to take longer than that just to do one eyebrow!!
Well I have been mooching about in my PJs for long enough! Bacon and egg sandwich went down a treat!
Enjoy rest of weekend
I'm sitting here eatting mince pies. I know I shouldn't but do I care? I think not!
Got some slightly disturbing news yesterday following my PET scan last week. The team at the hospital have the results back in from the Radiologist now and it's good in some ways, but not good in others.
The good news is that the lymph nodes in my chest are certainly shrinking. That was a relief to hear!
Then I got the line I didn't want to hear... "Look, it's nothing to worry about but something else showed up on the scan...."
The not so good news is that the PET scan showed that there's something happening in my lungs now. They think it might be to do with the Bleomycin, possibly a reaction to it, but whatever is happening it's causing nodules to grow in my lungs so they want to send me for a high definition CT scan now to have a closer look. I'm waiting for a an appointment for that now.
Needless to say I'm a little worried about it. They're sure it isn't a bacterial infection as there's nothing physically wrong with me so they're pretty sure it's to do with the chemo.
I suppose the worst they can say is that I'm getting Bleomycin induced pulminary toxicity and they'll have to remove Bleomycin from the ABVD for the rest of the treatment. I don't know what that'll mean long-term but I can't help thinking it probably isn't good. Sometimes Google is a good thing, sometimes it's not. In this case I wish I hadn't bothered! I just read a study which was quite detailed and also quite worrying if I have what they think I might have (and certainly if it develops further).
So tonight I'm not exactly fantastic. I wasn't feeling great (chemo wrecked me this time) when they told me yesterday anyway so it didn't help much. I think I instantly felt worse!
Anyway. Enough moaning! I have more mince pies to eat! My weight stayed the same last time so I was happy about that.....if I keep going I think I'll put a few pounds on this time though!
Unfortunately this time I don't have a lot else good to say. I've been struggling with feeling really crappy this time round and this new development hasn't helped!
Hope you're having fun doing your eyebrows! lol
I'll have far more interesting stuff to say next time! Promise! :-)
sorry your having such a crappy day, Mince pies sound like a great way forward. I also find warming them with a little spash of cream helps too. Enjoy!
Sending you a huge hug and a Wispa Gold Bar for your crappy news. I hope u scoffed all the pies!!
Must a have been a very strange consultation, telling you cancer under control but a lung issue. I had a respatory test before I started chemo. Did you? The fact that you feel ok is good. So have you got a date for another CT scan? Get on their backs if you haven't!
So what happens with your chemo next time if you haven't had another CT? Yes going on the net is sometimes the worse thing to do! My husband is terrible for researching everything. He is science boy.
I hope you get some answers soon.
So I have been fine. Went out for tea with boss and a few other teachers from school last week. Saw a few friends and had to cancel a few to as they were full of cold. Did a bit of Christmas shopping.
Girls went to Mum and Dads for a sleep over on Saturday. Hubbie and me went out for a meal with friends as we have been together for 18 years - half our lives!!!! Meal lovely and lie in next morning even better! Sunday lunch at Mum and Dad's, and I got out of taking eldest to Wacky Warehouse Party. Husband is really loving having to do that - not!
Has your son got rid of his cold yet? Lots of my friends kids have got colds - I guess it is inevitable.
So help me out with a dilema. Eldest Christmas Concert is on the day of Chemo and day after so I can not go. Should I ask if I can pop in for dress rehearsal which I think would be on Monday or Tuesday before? I know the headteacher so that might hold a bit of weight. Should I be going at all?
Well I am off now - have discovered 'Words with Friends ' on my iphone!!!
Hope you hear about another CT soon.
Love and hugs, Hen xxxxx
Forgot to say - eyebrows looking good and natural - thank you Clinque.
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