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Hi all,
Son finished hi abvd at the end of february, since then he's had a lung function and a ct scan, plus a pet scan mid way. His lymphoma was advanced, and had spread to his lungs and spleen.
Pet scan showed he was clear, ct scan the same, although his lung function was down to what it was at the start of treatment due to the 1 drug, but has been told it may improve.
Dr has told him he's low risk of cancer returning, but it can happen, but still is cureable, he now has to get on with his life. I cant praise the dr enough, he was very positive and honest and open through out, so never be afraid to ask, my son wasnt.
The only thing he's not relishing is more ct scans lol, he dont like the drinks, but thats a small price to pay.
I''m sooo pleased and wish you all the same good news.
a happy mum xxxxx
That's fantastic news, all the best to you and your son :-)
im delighted for you, my son is just waiting for his pet scan and then get his results so hoping that will be clear too
Great. I have walked down this path and also underwent autologous blood stem cell rescue. Latest scan 2 weeks ago showed no evidence of disease and in order to avoid radiation exposure, my doc says that in future only routine physical exams, blood tests and maybe ad odd MRI will do. Off for a well-deserved vacation with family now and plan to get back to work in late June.
Some of you have wondered about long-term side effects of ABVD. In my case, Bleomycin caused some lung damage (scarring) and makes me breathless even with a little exertion. Other drugs have made the joints painful and stiff and extremities numb - but all improving slowly now.
For those who are suffering from vein damage, please consider inserting a chemoport in the chest. Do see my earlier posts for more info.
Cheers
Tinnedfruit