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I don't know if this is the correct site to post on regarding this issue. I am due to have an Oesophogogastrectomy imminently. I saw the anaesthetist yesterday. I had to do a CPECTS test and then discuss the results using a software tool called 'Risk of Death during Surgery' calculator. I had the usual pre op stuff done as well. Because I am diabetic I will be spending some time in ITU/HDU afterwards. Apparently the diabetes is the biggest obstacle to my recovery over the first few days. Scared, but keeping it well hidden from my family (I think)
My issue is this. I will be some 60 miles away from home. My wife doesn't drive My wife will have to stay at home to look after our two young children (4 & 8) She will be able to arrange childcare for some of the time, but not all. I will miss my family and guide dog so much. I'm not sure I can cope with this. We have no other family nearby and I hate the thought of things going wrong and I have no family with me.
I know the Hospital in Plymouth is a very good hospital, and I feel safer knowing that. However, these issues are eating away at me and I don't know how to handle this.
You must be brave and go ahead with the surgery. I had my op three years ago, and I count myself so lucky that I was offered the chance of surgery. Of course you're scared, but the nurses will be with you all the time, there's one to one nursing in ICU. Your wife will come if she can, but remember she would only be able to visit for a short time , even if she lived next door. And while she's at home with the children you haven't got to worry about them.
Just go with the flow, relax and let the hospital staff do what they have done hundreds of times before. Trust the experts, but don't be afraid to ask for anything you need. I needed someone to hold my hand, and they did just that!
In a few weeks you'll be home again, starting the long road to recovery. Let us know how you got on.
My nan never gt the choice ov the operation which hink was wrong
I know how you feel on thursday I just got told that my gullet has pre cancerous cells in it I came home stunned and very scared I still am freaking out here as I got no advise about what I can do to stop it getting worse or turning into cancer. I am lucky I have my family for the most part near by but like you the thought of anything going and my family not being with me I can't even describe. I will pray for you Julian and your safe recovery xxx
My mum never got that option either she died of the same thing.
Thanks everyone for your replies. They have been really encouraging and I now find myself in a better place. I feel really bad about feeling worried and sad, when so many of you have much worse scenarios to worry about.
I am involved in the OPA (Oesophagastric Patients Association) - their helpline is 0121 704 9860 - and just wanted to let you know that there was one patient who had a gastrectomy and came along to a support meeting a week after his operation. St Mary's hospital Paddington allowed him off the ward for a while!
Do not be worried about feeling anxious and apprehensive - loss of health is a bit like grief - and you are entitled to feel normal. But I know lots of people who have had this or similar surgery, sometimes many years ago, and they have a good quality of life and have seen their children grow up.
The OPA have a website that you may find helpful www.opa.org.uk
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