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Hubby's tumour has grown back (4cm) and they can offer no more treatment.except for a stent in the future when the 'shape' is right. They've tried once but it wouldn't hold so abandoned it. If you've time, please read my profile where it's all explained).
Now that rotten docetaxel is leaving his body he's feeling and looking good; he's hungry all the time and generally can eat and drink without major throwups/blockages. He suffers tho with gungey, frothy white bile (mainly early evening) - so much it must be stored in his toes! The OPA suggested taking 2 x domperidone 30 mins before eating and it has helped - til tonight when he had major problems: at first it was just the foam which kept coming and coming, but we are both getting used to that. He couldn't even keep down sips of water. He tried the antisickness pill you put between gum/lip and it helped a bit I think. The the worst part was that he was left for 2 hours with excrutiating pain just below the breastbone area (he described it like a brick) which is area where the cancer is (adenocarcinoma ). He couldn't take any pain pills cos he couldn't hold them down. It breaks my heart to see him like this and know it's only going to get worse. Any thoughts or advise or experiences will be very much appreciated. Carol xx
This is an awful situation to be in, perhaps morphine patches for the pain would be a better soloution. It sounds as if the tumour is pressing against a nerve causing the pain. The truth is he should not be in pain which needs to be managed properly, he will not be able to hold anything down being in so much pain which has been left to get out of control, and I really do unerstand how that feels.
This is truly a wicked illness and I feel for you both, so don't be afraid to get an on call doctor out to him and insist on some proper pain releif i.e patches or IV.
Hi Steve: Thanks for your words of wisdom. After a night of little sleep for either of us, hubby got up at 10 a.m and said he really fancied a cuppa. Great, I thought. Made sure it wasn't too hot (I know hot things can set him off) and he gingerly took a couple of sips. Whoosh - up it came, together with the now familiar white froth. So rang GP (who's a treasure) and he came to visit after morning surgery. He's prescribing patches for the pain and has suggested that I keep something fizzy in the fridge having first added a spoon of sugar to make it flat!? How weird is that?! He says it's great for stopping upchucking - anything's worth a try. Wants to see us 2morro at surgery. Thanks again, Steve, for yoiur reply xx Carol
Hi Carol Ihave read through your profile, and my goodness you have certainly been through it all. My partner who is 50 also has OC and was told early on it was inoperable. He has had chemo and combined radiochem but has had not treatment for nearly a year. He is doing fairly well. I had really hoped that operating would be an option, but now have come to terms with the fact that it is not an option. I just wanted to post how much I admire your strength and your husbands courage in getting through what has been such a difficult journey for you both. It really makes me feel so humble. Love to you both ...... Sheena
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