Cervical Cancer

Forum Post: Re: the mystery surrounding cervical cancer??

tanya1989 — Mon, 20 May 2013 16:03:00 GMT

Hi there, I agree before I had this disease I really didn't know much about it. I was 22 when I got the news this is my first issue as I wasn't even old enough to have smear so I for sure wouldn't be sat here typing this now I'm 9mths all clear :-) as I didn't have the "normal" hpv version of cervical cancer I had stage 3b small cell cervical cancer. This type accounts for only 2% of all cervical cancers it is very aggressive and is treated as if you have lung cancer as its the same type normally found in the lungs, survival rates are low within the first five years due reoccurrences. I feel that whilst it is important for young girls to have the hpv injection they need to be taught on signs and symptoms and be made aware that whilst they've been vaccinated against the most common type of cervical cancer there are still types they could still develop. In general I think women should be made aware of what the smear test is for at the end of the day it really does save life's! :-) x

Forum Post: Re: glandular cells on cevix , after biopsy... can u help, anyone ?

clfr31 — Sun, 19 May 2013 21:16:00 GMT

Hi, I have just read your post. I sympathise with trying to understand what is wrong, not always easy!

Unfortunately I can't help with your question, but have one of my own if that ok?

You mentioned an incurable pain disease. Is this due to cancer or as a result from any treatment associated with it? I am currently experiencing daily pain which is so far unexplained.

I can describe further if yours is associated.

Thanks

Forum Post: Travel Insurance

magicmummy — Sat, 18 May 2013 13:09:00 GMT

Hi all,

I got the all clear last month and we have recently booked a holiday for July. I can get travel insurance declaring the cancer and a pulmonary embolism I had (at a price) but I just wonder whether to declare or not as I'm well and unlikely to fall ill or need to cancel because of illness. Would I be naive not to get cover pre-existing conditions? Wanted to get annual cover and this proved more tricky than single trip declaring my conditions

thanks

Forum Post: Re: Confused!

magicmummy — Sat, 18 May 2013 13:04:00 GMT

Hi,

Sue's advice about going onto Jos is good. I also went down chem/rad route and I think treatments differ taking into lots of different factors. I hope you get the information yo need and stay strong for your Daughter...wishing you lots of love and best wishes

Andrea

Forum Post: Re: Just started radiotherapy

Deborahpear — Tue, 14 May 2013 21:24:00 GMT

Hi Sarah, glad you're doing ok :). I had my treatment last year and nothing was really said about the dilator until the end (I was given the prescription for it on the last day of my brachy therapy and told to start it in a couple of weeks). I remember my oncologist practically encouraging me to have sex during chemo/rads as it helps limit the scar tissue! :) x

Forum Post: Re: bloating and cervical cancer???

kmmr — Tue, 14 May 2013 20:25:00 GMT

Re the bloating specifically, I have no idea if it is a symptom, I didn't notice bloating any more or less than normal, other than when I was taking tablets that cause constipation (like codeine).

Remember it could just as easily stress, and the general fear that comes with a diagnosis. Hopefully it will calm down in time.

Forum Post: Re: First 6 month check after cc 1a1 and saw abnormal area

Rebeccajane — Tue, 14 May 2013 18:54:00 GMT

Hiya kath, Thank you so much for replying, I spoke to my nurse and she Basically said hysterectomy is likely but need to speak to consultant When results are bk, which is 2-3 weeks . The waiting Is just the worst ! Xxx

Forum Post: Partner Working Group

Bonnie2010 — Sun, 12 May 2013 21:22:00 GMT

Hi Everyone Jo's Trust are currently looking to further develop their work in providing information and services for partners of women who have gone through a cervical cancer diagnosis. Currently there is very little out there to help partners and they'd like to give more focus to this important topic. They will be putting together a partner working group and running a workshop on Saturday 8th June in London to better understand the needs of partners and the kind of information and services that they can provide. But, in order to do this they need input from actual partners. Do you have a partner or know of a partner that could really add to their work? They are looking for 10 - 15 partners to help them in their work and provide them with valuable insight and feedback. They are looking for people from all walks of life with partners who are at different stages of the journey. To find out more about the forthcoming partner workshop and for partners to register please visit http://www.jostrust.org.uk/get-involved/fundraise/events/partner-working-group It's a chance for partners to have their say. Thanks

Forum Post: Re: Cervical stenosis

cervy1b1 — Thu, 09 May 2013 20:22:00 GMT

You are so welcome. Keep me posted, I'll be very keen to know if you are pregnant!!

Forum Post: Re: Don't know what to think!!!

laura13 — Sat, 04 May 2013 08:12:00 GMT

hey , I think in your case one good thing is that it hasn't spread everywhere yet as in over the rest of your body that would show up on MRI, i really hope when you have your op that they can remove it then, i will be thinking of you next week could you let me know how it goes please, fingers crossed it's small and they can remove it ! Yes you are right their i'm only worried sick because since 6 months ago i've had terrible pains in my left side and top left leg ( thats why i went to doctors in first place) and that's why i'm worried. you take care xx

Forum Post: Re: i cant cry

sammy88 — Fri, 03 May 2013 09:43:00 GMT

hiya, its comforting knowin that other people are having similar feelings to me, im normally a really emotional person but its like there has been a switch flicked and they are now turned off. iv never heard of jo's trust but i will have a look. thank you. xxx

Forum Post: Re: Recently diagnosed

chook82 — Wed, 01 May 2013 15:16:00 GMT

Hi there Laurann1989!

I had my MRI on the 3rd of April then recieved a letter on Monday 8th informing me that my consultant appointment was on the 24th April so that seems quite normal to me. I'm at Addenbrookes in Cambridge.

I'm now booked in to have the Radical Tracheloctomy on the 16th May. I have stage 1B1 and he said all looks good.

I know it's easy to say but try not to worry but you have to have faith in the consultants and that they know what there doing. I just kept thinking that if it was bad they would have called me in a lot quicker.

Forum Post: Re: Trachelectomy experiences and questions

Parky — Tue, 30 Apr 2013 06:50:00 GMT

Hi sarah So sorry to read this. Is everything ok? Thinking about you and feel for what you are going through. Try and stay strong, you are in the best hands. Xx

Forum Post: Re: Some good news...

Monkey22 — Fri, 26 Apr 2013 08:14:00 GMT

Hey there!! That's great news!! I am also 2b...finished my treatment...now in the dreaded waiting period!!! So great to here your news!!!! K xxxx

Forum Post: Re: Blood test not good after chemo

Regina — Thu, 25 Apr 2013 09:27:00 GMT

Hi Kate,

It is very common as I understood when it happened to me. They ended up reducing the level of chemo, just a little as it also made my ears ring (another not so common side effect). I also ended up having a blood transfusion which frankly, scared me at the time since my understanding of it was what I saw in movies and it made me feel like I must be very weak and that is what scared me.

Always talk to your doc, as he/she knows your situation best, but the natural way (if only slightly low) is through diet. Veg, fruit, fish, poultry, lean meat, beans or tofu, as well as healthy carbohydrates such as whole grains. These foods all provide essential nutrients for your overall health, as may contain vitamins C, A and E to benefit your white blood cell count.

Also getting exercise and plenty of rest is how to round it all out. Zinc also boosts white cell count. There are prescription drugs your doc may suggest like pegfilgrastim and filgrastim.

Depending on how you are reacting to treatment, your body may not be able to support a healthy diet and exercise program until you finish treatment. If you can, great. If not, then a blood transfusion may be necessary, but not a big deal either.

Good luck and "live strong" :D

Regina

Forum Post: Re: A really good night in

Deborahpear — Tue, 23 Apr 2013 14:37:00 GMT

Hi x I'm doing one too :). We are going to have a 'free' pamper evening - doing each others nails etc with our own polish and going to get some if those cheap face masks etc. I love the idea f the helium balloons - I might borrow that one :). Have a lovely evening and really hoping it is good news soon xx

Forum Post: Re: Waiting.....

cervy1b1 — Sat, 20 Apr 2013 11:52:00 GMT

You are so welcome. I wish I'd had the detailed run-through of what to expect when I had it, so I'm happy to share my experience. Please remember that treatments will vary and experiences and recovery will too but it should hopefully shed some light.

Like I said, any questions anyone has, please let me know.

XXX

Forum Post: Re: Good news following treatment for 2B

Monkey22 — Wed, 17 Apr 2013 10:45:00 GMT

Hey!! Not been on here for ages myself.... Great news!! So so pleased for you!!:) I have just finished my treatment for my 2b cc...& now I'm in the dreaded waiting period for my 6mth follow up appt & scan in 3 mths or so :( . So this is really encouraging for me!! Lots of love Karen xxx

Forum Post: Re: Anyone else have a radical hysterectomy

Lyndsey84 — Mon, 15 Apr 2013 20:14:00 GMT

Hi Adele, I am glad your family will be on hand to help out with your daughter. I was in a similar position as we had moved away from our families about 6 months before i was diagnosed but they were brilliant. They all took it in turns to come up and look after myself post surgery and my son who thankfully was too young to really understand what was happening to his mummy being only 18months at the time.

I had traditional surgery as opposed to keyhole. I have a very attractive 7in or so vertical scar from just below my belly button right down to my pubic bone! I have always thought I had a very high pain threshold so I don't remember it bothering me too much. I do remember however having a sensation of something heavy sitting on my belly for the first day post surgery. I don't know if you will be the same but I had a cathetar in for 2 weeks and I would say I found this the worse thing to have to deal with and couldn't wait for it to be removed (i even phoned my doctor at the hospital asking for them to take it out early).

I also found the cocktail of drugs difficult to handle. I didn't feel i needed to be taking the painkillers as much as they were giving them to me but they insisted i take them. I think i was on 2 different painkillers but 1 of them made me feel sick so they also gave me an antisickness pill which had constipation as a sideeffect sotheyI also gave me something for this. I ended up being in hospital for about 6days but think i would have been home at least a day earlier had it not been for the drugs making me fee likel crap. You will probably not be in as long as your having keyhole surgery.

As soon i got home, started eating properly again and ditched all meds bar 1 painkiller (after a week or two at home) i felt much better. Apart from a second stay in hospital about 6 weeks post surgery (due to an unrelated infection - so they tell me) I havent had any problems and went back to caring for my son fulltime about 10 weeks after my surgery.

Sorry for the epic tale but hope it helps answers your questions and hasnt scared you in anyway. Just take care when recovering and don't push yourself to do things too soon. If you have more questions just ask and goodluck for wednesday. x

Forum Post: Re: Wendy woo

Deborahpear — Sun, 14 Apr 2013 13:07:00 GMT

Joyce xxx it is soooooooo lovely to hear from you again :-). I'm really glad your treatment is finally finished and you're feeling well x I'm sure that they will have things they can do about nerve damage, but like you say, after everything else a bit of nerve damage is not so bad xx I've made a note of your email address and will keep in touch x