Petrified right now....

Cervical cancer

For people affected by cancer of the cervix to get together, ask questions, share experiences and support each other

Petrified right now....

No. of entries: 21 | No.of favourites: 0 | Posted on 27 Jan 2013 09:45
  • I feel like I probably don't have the right to post here yet or maybe I will do soon, but il start with what has happened so far..........just before christmas I had my first ever smear (I'm 31 but i was pregnant every time I was due a smear in the past and that is the only reason for not going when i was called) anyway I rang and booked my appointment, had my smear and 5 days got a letter saying my smear showed severe dyskaryosis and I was being sent for a colposcopy, I had my colposcopy on the 16th jan and also the loop as she said it looks like what my smear result said and she could treat me now instead of coming back again, so i had it done and she also took two biopsys, the nurse who did the procedure was really nice and I felt at ease throughout. At the end of it all she said the biopsy is sent to confirm they have burnt away the cells picked up on my smear test and I would get a letter to confirm this within 6 weeks and an appointment for a follow up smear in 6 months time, well 8 days after my treatment a hospital receptionist rang me to say a consultant has asked me to come in on Tuesday to discuss my results, my heart sank straight away and I was shaking for ages after, I asked her if that means they have found something bad and she said I'm just a receptionist i don't know any details, which I expected to be honest, anyway she said she would send me a letter to confirm my appointment. I got the letter yesterday and this is what it says.... Dear Rebecca, I am writing to let you know the result of the cervical loop treatment that you had in colposcopy clinic on 16th January. The result has confirmed the presence of an early stage abnormality of the cervix. To discuss the result in full detail and to give you further information regarding further investigations and treatment, I enclose an appointment in gynaecology clinic with the appropriate specialist. That has made me panic even more, has anyone had this letter or similar? I'm just assuming this means early stage cancer, I'm so worried, Tuesday can't come round quick enough. Sorry for rambling :) Rebecca x
    went for my first smear test aged 30 in dec 2012, results came back severe dyskaryosis, colposcopy and biopsy then confirmed cervical cancer, MRI staged it at 1b1, march 2013 radical hysterectomy and lymph nodes removed.
  • Hi Rebecca

    The not knowing and the waiting is DREADFUL. There are many people on here who understand the agony of waiting. I'll be honest, your story is very similar to mine and yes it does sound like they've caught something. BUT be reassured, if it was terrible news they would have asked you to come in straight away. It sounds like a VERY EARLY cancer which can be treated and they'll treat you quickly. 

    Try and fill your time before Tuesday as much as you can so you don't go loopy with the wait and the chattering in your head. Make sure someone goes in with you and try to write down some pre-prepared questions so you can get some answers.

    Good luck honey

    Sarah x

  • Thanks for replying to me, your the first person to be honest with me, everybody else says oh it's nothing it will be fine, or they are calling you back because they forgot to do something at the colposcopy etc. I agree the only reassuring thing is the word early on the letter, my hubby has booked the day off work to come with me, so not long to wait now. X
    went for my first smear test aged 30 in dec 2012, results came back severe dyskaryosis, colposcopy and biopsy then confirmed cervical cancer, MRI staged it at 1b1, march 2013 radical hysterectomy and lymph nodes removed.
  • Hi Rebecca My god reading your story is like, listening to my own all over again, I have now had two cone biopsy's but it seems like yours is at an early stage and they may do a cone biopsy but I was also petrified my world came crashing down but after the first cone I got 95% all clear which is why I've had to have the second cone, I am now waiting for more results and I know how hard the waiting is, you never know til you get there, I think everyone automatically thinks the worst and I think it's our bodies own way of preparing mentally for what may come, try and keep busy till Tuesday I know it's hard but I just through myself into my family and work and didn't stop until the day! I think that was my way of dealing with things and everyone's different, Either way of your outcome, comeback and let us know how you got on, I wish you well and this forum is great for support and advice! X Gemma X
    Gemma 28 North west
  • Hi Rebecca, sounds a lot like my story too. I had stage 1b1 which meant it was early and there were options open to me. I've had a trachelectomy, which had removed my cervix, but left me with my uterus meaning I can still try and have a baby. I fact, I'm I otherwise perfect health now! Keep yourself as busy as possible. It does sound like they have caught it early, which is good. Nothing I can do will make Tuesday better, but try to write down as many questions as possible. Stay strong. X
  • Thanks Gemma, everybody on here seems so nice, I don't have any close family at all and I'm a stay at home mum so I'm pretty lonely (omg how sad does that sound?!) I will let you know what happens Tuesday morning. X
    went for my first smear test aged 30 in dec 2012, results came back severe dyskaryosis, colposcopy and biopsy then confirmed cervical cancer, MRI staged it at 1b1, march 2013 radical hysterectomy and lymph nodes removed.
  • Thanks cervy1b1, It's nice to know I'm not alone and I appreciate you sharing your experience of this with me x
    went for my first smear test aged 30 in dec 2012, results came back severe dyskaryosis, colposcopy and biopsy then confirmed cervical cancer, MRI staged it at 1b1, march 2013 radical hysterectomy and lymph nodes removed.
  • Rebecca, it is so scary what you are going through and I know it all too well..I am a stage IIB cancer survivor of almost 20 years now. I had a hysterectomy and radiation..20 yrs have gone by ( so fast ) and let me tell you, it can be done and especially at an early stage sweetie! You are NOT rambling and you have every right to post here! You are a woman, and are HUMAN and are scared!

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