After having a lumpectomy and sentinel lymph node biopsy on 20th June I returned to clinic yesterday (29th June) and was told that it was good news. I didnt have breast cancer but adenoid cystic carcinoma and that  the lymph node was clear.  The surgeon had only seen one other case in the last twenty years and had had to look it up on the computer before seeing me.  He said I will be having a body scan as is normal for his patients and that he will be writing to the radiographer but expects that they will recommend no further treatment.  He also suggested I google this diagnosis when I got home.

On returning home I did google it and am very alarmed by what I have found - on cancer research uk site it states that it is a rare form of breast cancer (accounting for only 1% of breast cancers). I have found instances where it has recurred in the same place or in other parts of the body - also secondaries in the lungs.  Also that it is usually treated, mainly with radiotherapy. 

Has anyone else had experience of this cancer, especially in their breast. 

If anyone has any help or advice for me I would be extremely grateful as I am feeling very frightened and confused and lonely at the moment.

Heather x

I think we have all scared ourselves by Googling illness - you focus or worst case senarios and your imagination goes into overdrive. If your oncologist says it is good news then that is what you should focus on and believe.

If you want to talk it over with someone then why not 'phone the nurses here on this site. Unfortunately you will have to wait until Monday as they operate Monday to Friday 9am to 8pm. The freephone number is 0808 808 0000.

Best wishes,

KateG