We’d love to know what you think about our new site.
My saved pages
Breast cancer is far less common in the under-50s, but this can leave younger people...
For people affected by triple negative breast cancer to get together, share experiences...
Secondary breast cancer is cancer that has started in the breast and spread to other...
I am new to the group so I am hoping someone can help me.
My hair started falling out today (day 15 after first chemo Fec). Not feeling great but sure I will feel better tomorrow. I thought I was prepared but still feel a bit upset.
Can anyone tell me, now that I have syarted to lose my hair, how long will it take foe the rest to fall out?
Sorry if I sound like I am moaning!!! xxx
crikey you are not moaning!!! i was in exactly the same position not that long ago.
I had my 3rd chemo wed 20th april but i have been using the cold cap so i still have my hair. however, i can relate to how you are feeling right now. i posted something so similar. 18 days after i had my 1st chemo i started to lose my hair. id had it cut short to a pixie style so that when i used the cold cap there would be less pressure on my roots/folicles.
nothing will ever quite prepare you (no matter how 'ok' you are with losing your hair) for that initial hair loss. i too felt really down about it and just spent far too much time running my fingers thru my hair panicking.
what have you got for yourself? i have a wig, several bandanas (pls go to the website 'anna bandana' excellent quality and brill prices....and some really funky ideas) and i have a few wider head bands.
like i said i had cold cap so i may not be in the exact position, i just hope you feel better soon. Many lovely ladies on here have gave me super advice so listen to it and use this fantastic website.
chin up and remember its not forever....accessorize and work scarves, bandanas into your new chic look.... xxx
Thank you so much for your reply.
Like you I can't stop running my fingers through my hair and pulling more out!!!
I have a wig and a few lovely caps but I will look at the website you suggested as I need some scarves (don't think I will want to wear the wig all the time)!!!
I think it's just the fact that I have just come to terms with my mastectomy and now I'm losing my hair and I have always made an effort to do my hair, make-up and stuff.
But you are so right - it's not forever and i have been really positive up to now.
Tomorrow is a new day.
Hope you are okay. Sounds like the cold cap has really helped you. xxx
Welcome Cookie.I start my chemo on 4th May,a wk b4 my daughters wedding.I was diagnoised on Valentines Day & had a left mast with immediate back flap reconstruction 5 wks ago(22nd Mar)Going 4 my pre chemo assessment app later this morning & meeting the hairdresser 2 chose & style a wig,I will get a bandana 2...Some of my BC friends told me 2 try stores like New Look,Pink,Primark,M&S for scarves.There a some lovely ones & not expensive.My lovely hubby Tommy bought me scarves in Pink on Good Fri,they had a half price promotion on 4 Easter & the Scarves were only £3 eh.Not looking forward to losing my hair but Im going 2 hav headwear 2 match all my outfits & 2 make me feel good(I hope)... ,Going 2 buy some hats 2.Good Luck with yr treatment.What side effects did u hav????
Love & Light...Ann (Northren Ireland)ps,Im having FEC....6 cycles...
I have just finishedmy last FEC, I lost my hair on day 15 after first chemo it started on the fri and by sunday there wasn't much left. my friend's husband gave me a number 1 with hair clippers and then my sister biced the rest (she's a midwife, so expert with razor lol), they were all upset.
The hair on my legs is just starting to grow back, wouldn't have minded if that never grew back lol. The biggest problem for me has been the cold,I have lived in beanie hats, even sleeping in them. I have a wig but find it very itchy and my head swells as the day goes on. The only hair that I have left is my eyebrows. My eyelashes went last week. I have used false eyelashes for special occasions.
You are not moaning, I thought I would be ok with the hair loss. I had my head shaved for cancer research in 2006. I have hated it, I think its the control etc and I loved my hair, which is very vain I know.
I have tried to make the most of make up, chunky jewelry, scarves etc
I know that I am very lucky and this chemo is helping to save my life.
Keep strong xxx
with ref to body hair..... ive had a mixed result!!!
my armpit and lady garden hair fell out and hasnt yet come back. i find this marvelous as its 1 thing i dont need to preen (hehehe). i still have my eyebrows and lashes and my leg hair is just patchy!
everyone is different and i hope you are all feeling well... clair xxx
Clair.louise...I actually just laughed out loud, after reading your comment LOL
my daughter and mum thought I was going completely mad!!!
Although I have called it lady garden hair myself, it sound so much funnier in your comment :)
I've had my 1st chemo 2 weeks ago today, and not (yet) lost anymore hair than usual. I am also using cold cap, it was blooming freezing, but worth it so far! I also haven't washed my hair since 2 weeks ago....how minging is that?! But my sister (she's a hairdresser) told me to not wash my hair and within 6 weeks it will start to cleanse itself! I try anything onse. My hair gets greasy after 2 days of not washing it anyway, and my wig lady told me to only wash it 1s a week. I am so OCD usually, about washing my hair and stuff, but have surprised myself how well I'm coping without washing my locks! I had my hair cut short into a pixie haircut before 1st chemo, and styling it with my fingers and only comb it 1s a day. Hopefully it will prevent hair from falling out! I'm not sure about wearing a wig, as I found it itchy already by trying them on. I have bandannas and scarves, so will stick to them, if needed!
I wish you and everyone else, all the best on their journey.
Lots of love Dani xxx
glad i brought you some joy dani! haha! lady garden is such a pleasant way to discribe that region! could be worse terms im sure...! hehe!
i wash my hair twice a week with a range called Naked from boots. my chemo nurses have me put the conditioner from the range on my hair before i use the cold cap to help protect it. i was the same before all this i had a cute bob and washed it every day and used my beloved GHDs (which ive put away for the time being...safe and sound hahaha) so like you i also thought it would be a struggle but in the grand scheme of things its funny how your mind set adjusts slightly!!!
i have had 3 chemos and i have a full head of hair! its quite sonmething! so persevere. to help with the pain i take 2 paracetemol half hour before then 2 ibuprofen just before as u can take the 2 together without causing yourself any upset.
xxxx clair xxxx
You are so not moaning and even if you were this is the best place to do it.
I had 6 fec, finished in March last year, I to starting losing my hair on day 15, I shaved it all off about a week later because i couldn't stand all the mess ( i'm a bit of a clean freak.)
I wasn't completely bold until well after fec number 2 and after number 3 it started to grow back, it was just fine and fluffy but it was hair.
After it falls out it's just another step in the whole process, just tick it off and get yourself to the end, i found losing my eyebrows and eyelashes much more upsetting as i just looked so different but the body hair going is great.
Take care, love Char xxx
Well Clair.... I drink to the lady garden :) not allowed alcohol at the mo, so I cheers it with a cup of fruit tea LOL
My hair is quite fine generally, as in I have plenty, but it might as well be cotton wool, that's how fine the indevidual hair is! Maybe that's the reason I was told not to wash it more than 1s a week!
Well, my motto is * I am being FEC'd every 3 weeks, so a bit of grease wont kill me :) *
Good job is, it's such lovely weather, I get away with the summer wet look hehe.
I had to have my lymphnodes out, and it crippled my armpit making it impossible to shave, as this ligament thingy keeps popping out when I lift my arm up..... causing me to totally sporting the Nena look *99 red baloons* possibly before your time LOL ...basically I have 1 German, and 1 English armpit....good job I can pull it off being German hehe!
Thank you all so much for your replies - they really made me laugh and I feel much better today.
I love the 'lady garden' comments (I call it my foo foo - think that comes from having daughters)!!!!
And it is so true that you can find positives in everything. Soon I won't have to wax, shave, pluck or trim!!!! Nor will I have to shampoo, condition, blowdry or straighten!!!! I have worked out that that is going to give me at least an extra 6 hours a week. Now I need to think of something I can with that time. ANY SUGGESTIONS? Please keep it clean!!!! HA! HA!
Thanks again for the advice, tips and support. It really does help.
Hope you are all well and enjoying the beautiful sunshine.
Love and hugs xxx
"Be who you are and say what you feel, because those who mind don't matter and those who matter don't mind." Theodore Seuss Giesel
Oh just reading your posting has brought all the memories of last year back to me and me loosing my hair, I started my chemo last april and finished in aug 2010. I remember it was just 2 weeks after my first chemo that my hair started to fall out. I always said i would be strong and would be prepared for it. But I just broke down. I remember standing in the shower and shaking and crying because it was that moment that it made it all clear to me what I was going through.
My hair fell out daily but not in lumps but in strands I tried not to brush it alot to keep as much in as possible. My good friend is also my hairdresser and she was a total star to me. She told me not to worry about washing it and try not to wash it alot. also not to use dry shampoo. She wouldnt cut it for me straight away just let it fall out naturally and i have to say it was the best advice. When she did eventually shave it for me she didnt take it all totally off i was left with a little bit. But I will always be gratefull to her. AFter all the rest of the treatment I never lost any more of it i was never totally balled and also my hair started to return before my treament finished. This amazed the macmillian team and the nurses. I used the Simply shampoo on the adivse of the hospital staff becuase it has no added stuff and is purely natural.
Be strong and know that your hair will return. Mine is now growing strong and curly !
keep smiling and be strong
love and smiles
You are definately not moaning. I was diagnosed with breast cancer in febuary im 26 and my first reaction was i dont want chemo as i dont want to loose my hair. I started with the cold cap which went fine but hair was coming out. 3 weeks later i tried the cold cap again but couldnt cope with it.Ifound hair was coming out in handfuls everymorning and was getting sick of it so I then decided i would take control of it and cut my hair very short, suprisingly I was fine with it. Its actually quite comfortable lol. I just think of it as im going to get a fresh new lot of hair thats not ruined from my hair straighteners and dying it! I am now coming up to my fourth session and only have the odd bald patch but do still have hair and i think its growing aswell. Im swapping drugs for my fourth session so a bit worried about that but positive thinking and all that.
Good luck with the rest of your treatment xx
Hey cookie, Like many of the ladies on here I have been to annabandana and have swooped on all the charity shop scarves (budget is £3 each) and ebay is good for classic vintage and silk scarves which have been much admired. Now the good weather is here, I have been going 'alfresco' and even sported the shiny pate look at a top notch restaurant at a special occasion on Weds night. People are very accepting and I have got to the point now where I think if someone stares then thats their problem, not mine. Have just noticed that ny eyebrows have nearly vanished but reckon I can draw them in if I need to, aftrerall if the Duchess of Cambridge can wear the look ......! I was more upset than I thought I would be but I feel the same as one of the other ladies, it's just another thing to tick off the list, it won't last forever and it's a new experience. I particularly like standing under the shower and listening to rain drops keep falling on my head..........!
Yeah i have to agree ive got a couple of good ones from ebay. Also try new look and matalan they are about £2.50 and have really pretty summery ones. My friends have all commented on them and want to borrow them lol. Get shopping!! xxx
If you have any questions about Macmillan, or would like to talk to someone about cancer, we have a team of experts who can help.
© Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 89 Albert Embankment, London SE1 7UQ.