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My 44 yr old sister was diagnosed with inoperable secondary brain tumours (the primary source is in the gall bladder) both caused by malignant melanoma metastasising from 10 yrs ago.
She had a seizure two and a half weeks ago, and CT and MRIs have shown that what was suspected as two brain tumours, are actually more and have spread through the brain.
It all seems all the more surreal as she seems so fit and healthy (no further seizure as steroids are controlling those) although perhaps a little more tired than usual.
The news didn't really sink in last week and we have a meeting with the consultant this Thursday afternoon to understand what impact i) radiotherapy ii) chemotheraphy iii) doing nothing may have and how the cancer may take hold. Will there be a dterioration of certain brain function, will she have just one almighty seizure etc.
I know that they can't conclusively say - every case is difference - but I would really appreciate guidance on the kind of questions to ask and as my sister is currently thinking of not having any treatment, what others' experiences of having radiotheraphy or chemotheraphy have been.
Thanks so much for the post. It sounds as though you have so much to juggle and I take my hat off to you with the organisation of the carers and keeping everything going. There are moments when life seems 'normal' but because my sister's cancer was only diagnosed three weeks ago, it then just hits you from nowhere.
We had the meeting with the consultant and he pulled no punches - it is Stage 4, it's spreading, there are no options for treatment, but it seems very un-real as she's still so well and waiting to see how it will manifest itself - and when that will happen - is almost the worst part.
I'm blessed with a family of my own, but am very aware of the tremendous pressure this places on my Mum & Dad (my sister still lives with them) and making sure that I remain positive for my own children (just 8 and 5), as well as my sister, but also supportive for my Mum & Dad is quite a juggling act. Thanks for the reminder to look after myself but as I'm sure you know yourself it's often tricky to do it in practice. Many thanks again for reaching out and please do keep in touch. Judith x
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