We are Macmillan. Cancer Support
I am very sorry to hear that you have had to join this forum. However,
as others have said, you have found the right place for support, for practical
and useful advice, and for just having a rant.
assure you that you are at the most difficult time now, and that things will
get much better from now on. The initial stage, of shock and worry is the worse
stage as you worry for yourself and your family, you have uncertainty about the
treatment ahead. You will find it very difficult to believe, but I can assure
you that you and your husband will feel a bit better when you know what your treatment is and
you will feel even better when you actually start the treatment, as you are
then fighting back and doing something positive to help the battle.
I was diagnosed with a bowel tumour last year at the age of 44, with two young boys. I was devastated and in shock. A friend of mine who has gone through breast cancer advised me that I would feel better after treatment started and that the first few weeks are the worst, until you start the treatment. She was right, for me. Since then I have successfully completed chemotherapy and radiotherapy and my tumour has shrunk to just scar tissue.
treatment of bowel cancer is now very advanced and successful and improving all
the time. Do not try to do research on the internet on bowel cancer as
the data is inevitably out of date. One of the others on this site, Lee, has
found a video on the MacMillan site from a specialist doctor on bowel cancer
which is very reassuring about the treatment of bowel cancer.
find out what your treatment is, come back onto this site as you will receive
lots of practical advice and reassurance on the treatment and how to minimise
any side effects. Do not be too daunted by chemotherapy or radiotherapy side
effects - they are not pleasant but they are manageable and a small price to
pay for successful treatment.
seem impossible at the moment, but try to stay positive and not to worry too
much. I am a big fan of complementary treatments, but always in addition to
chemotherapy/radiotherapy and surgery - never as a replacement to these
established, tried and tested treatments. When I was diagnosed there was an
article on the bbc website about a trial in the Netherlands of 4,000 patients
and the benefits of aspirin for those suffering from bowel cancer (search on
google for bowel cancer + aspirin). As a result, I take an aspirin each day. I
also take lots of multi-vitamins, turmeric, wheatgrass, and selenium. Always
check with your consultant before taking any of these pills, and if you have
chemotherapy you may be advised to avoid vitamin B and Folic acid as they can
interfere with chemotherapy. I take the view that these give the patient a
small degree of control and fighting back, and that is very important when you
feel powerless. They may just have a placebo effect, but it is an important
psychological benefit for a patient - or it certainly was for me at
wishes and try not to be too scared - you are not alone in this fight.
have to send you a big huge hug.
Waiting for tests and results is tough. The scans are simple enough. Then the docs can get husband into treatment. Will probably be small comfort but treatment can be worse than disease. But. . . it is curable.
My husband was diagnosed Jan this year, A work mate, my mortgage advisors father in law, a family friend and apparently my next door neighbours wife have all beaten the odds. The family friend and neighbours wife I wouldn't have guessed if not told.
The news is a bolt from the blue of all the bad stuff you wouldn't wish on an enemy but it will find a way of filing into the little recesses of your mind so that you will cope.
Hang tight and be Mummy. Daddy is still holding your hand.
I am so glad you have joined this group as I'm sure you will find it a great support to yourself and your husband.
Please know that the way you feel right now WILL improve and the enormity of the initial shock will get better. I really understand how you feel as we all do - and at this time it is very good to get some support as you are.
Please do not search the web with out of date information that scares us ! Macmillan and Beating Bowel Cancer are both superb with all the required and accurate information.
It does get so much easier - please believe me. I understand the disbelief and the feeling of devastation - BUT it really does get easier as you go along and a plan is made and support is given.
I worried for 2 weeks and then realised that the worry wasn't helping me at all - so began to carry on as normally as I could - which I have and it has helped. I haven't labelled myself in my head as 'with cancer' but think of it as an illness that I am recovering from - because that is what it is. But initially the thought of having the Cancer was overpowering. I don't feel that anymore. Of course I have up and down days - which is the way it will be. Thankfully more up days with a few down moments !
I was diagnosed with Rectal Cancer just before Christmas 2012 ( great timing !) I have had the radio / chemotherapy which you will hear and learn about - it was all manageable and the thought of it for me was worse than having it. Darshin has mentioned to you that I had 5-8 cm tumour which has now disappeared. My friend Matt - has had the same results and I know he will reply to you with his positive story and lots of helpful information and be a great support to you both.
I currently feel and look well - go to gym and loads of walking etc ... I am 9 weeks post the chemo and radiotherapy which lasted for 6 weeks. The treatments are all manageable and we can explain more later.I currently feel a bit down about having the surgery and the thought of having to sit still and rest for about weeks after ! So this is the bit I am currently trying to come to terms with at this stage.
When I first wrote on here I kept reading the replies to try and absorb what was being said to me as it is all so overwhelming at the very beginning.
You must both try to not think the worse outcomes which I know you are at present and as I did and probably everyone else on here.
You will find that the NHS service for cancer is the best - in my opinion. You will discover too that the treatments for this are so good now.
So with an 8cm rectal tumour with ? some lymph nodes affected - They said it was sizeable ... but they said that the aim was to CURE. They explained that the treatment plan is long but the outcome aim for it to have gone. Mine cannot be seen now by scan or eye but I am having surgery in a couple of weeks to remove that area to make sure.
I really feel that when you both know a little bit more it will become easier and you both feel more positive that you will be beating this..... Getting rid of this tumour and at his young age too and carrying on with life as before. A year of doing this will be worth it in the end.
Hoping that you both feel a little better very soon :)
Very Best Wishes to you both ,
hi matt im going to look up about the asprin sound's good but in which forms do you take the tumeric and wheat grass only there are so many vitamin websites its difficult to know which are genuine.
If you have any questions about our organisation our Macmillan team would love to hear from you
You can also follow us on Facebook, Twitter, Flickr or YouTube.
© Macmillan Cancer Support 2010
what are these?