We are Macmillan. Cancer Support
Hi LinnieLu and welcome,
My light weight husband was diagnosed in january and is coming to the end of his first cycle of oxaliplatin and capec. He has managed to avoid the sickness but had a small bout of 'soft stool'. He was given a 3 day course of an anti-sickness tablet plus others 'just in case' for diarrhoea or vomiting. Could be worth having another chat with your oncology dept.
My husband made mistake of overdoing things just after drip which then made him feel pretty rough for a few days - nurses had a few words and he knows to listen to his body and rest more.
In our case the morning capec is the worst so he's been trying to have cereal ( gold top milk plus sugar) and a banana or toast and jam before taking and it seems to help. Seems to be a certain amount of stubborness and willpower needed to get the day going but worth battling through.
Lack of appetite is an issue. At 6' I struggle to get mine to 10 stone. Still not there. I just try not to make mealtimes an issue. I try to serve small portions of high calorie food and make sure there are lots of snacks around. Plenty of sauces made with cream as a base or gravy with some Complan added can make food easier to swallow. If he has a sweet tooth a small millionaires dessert from the finest range of a supermarket has 400 calories. Melt butter and honey, throw in a banana and he gets one of his 5 a day too. Frijj milkshakes seem to have about the highest calorie count and a screw top lid so he can go back to it. Smoothies are easy to take and help with fibre.
Good luck with the treatment, my man believes it's working for him.
Hugs to you xxx
Another welcome. My mum too lost loads of weight and I also worried. We used milk shakes that could be sipped and some of M and S desserts were full of cals.
It does take a little time to manage the chemo side effects. I again would also speak to the treatment team or GP and make sure you have enough anti sickness tablets. My mum stayed on them until the cap had been completed. If they feel the full dose is too much for him they can reduce the dose slightly and you would be amazed the difference regarding symptoms. We had to consider the fact that my mum had a secondary spread but they carefully considered all aspects.
Just to reassure you despite losing three stones she managed well in the end including surgery and the weight has returned slowly.
My husband is currently on the same regime as yours, five cycles in. Really difficult going at first but after 3 changes in anti sickness drugs and a very slight reduction in dose of capecitabine he is loads better. He also has an ileostomy and I think that the oral chemo hits harder when he only has his small intestine in use. He lost weight, felt nauseous all the time and was so tired. now he is back on domperidome anti sickies with the reduction in dose he is managing fine. Scandishake and fortisip plus work well at keeping the weight up.
Hope things improve,
Please click here for more information
If you have any questions about our organisation our Macmillan team would love to hear from you
You can also follow us on Facebook, Twitter, Flickr or YouTube.
© Macmillan Cancer Support 2010
what are these?