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For people having an ileostomy or colostomy or living with a stoma. Support each...
A support group for patients with Lynch syndrome (also known as Hereditary Non-polyposis...
Hi Katy Marie,
So sorry you have to find yourself here but you will get lots of support. I don't have specific experience but I wanted you to get a reply while everyone else is waking up...
I have anal cancer and innumerable liver lesions all over my liver but so far they are just the same so they are just tracking and saying they may not be cancerous. I don't have experience as your husband, but I do know that they can do some things for people with liver tumours so you keep on staying positive.
There is a group called secondary liver tumours and you could look in there but try not to look too much on the internet and scare yourself. Stick to here and cancer research site etc and remember statistics are just that....
This is the worst time the waiting and worrying and what ifs. Once you get going with a plan and know what you are dealing with, it does get easier and there are some amazing people on the bowel group who will support you all the way.
You can phone the advice line anytime too though they don't open till Monday and of course you will have seen to onc by then.
oh and there is also a carers group who are lovely too if you need to chat with other carers and partners.. they will understand
big hug and good luck
Little My xxx
I am another always determined, usually loving wife of a husband who was diagnosed nearly 3 years ago with bowel cancer with secondaries in the liver and lungs.
I agree with Little My that the waiting is the worst and when you have a plan of action you able able to focus on actuals rather than what ifs. Treatment for cancer in the liver has progressed so much, as has treatment for bowel cancer. There are different types of chemo, surgery, RFA, so if one thing doesn't work it doesn't mean others won't. Members of the group Little My suggested will probably have more information on treatments. I know my husband was reading about a new treatment at Southampton University hospital which isolates the liver and bathes it directly with chemo - new treatments are being tried all the time.
Do try and stay positive even if tests suggest otherwise - it is the results to treatment that matter and every patient will respond differently. Never be afraid to ask questions of the doctors and oncologists about treatment.
I am sorry you have had to find yourselves here but you will find lots of information help and support. I only joined quite recently and wish I had much earlier. I am also a member of the Carers Only group - if you need people to talk to who will understand exactly how you feel about what your husband and you are facing, that is the place!
I hope your meeting on Monday is useful and you leave with at least the start of a plan of treatment.
Hiya Katy Marie, my father - in - law has the exact same going on at the mo. He is classed as incurable. Oncologist suggested 6 fortnightly chemo sessions with Folfox and 5Fu. We have got to treatment no.4 next wk, with very little or no symptoms whatsoever. I also say my f-i-l is 73 and VERY STUBBORN. I think that his no way is this happening to me stance on the cancer is getting him a long way. I will just say that this thing aint easy. We are hoping 4 a success story with a scan after treatment no.6. I wish u and hubby well, The most important thing to remember is take some time out for yourself, its easy to let the bloody cancer take over your life. Make sure u have plenty of support and some ME time. You will need it!!!
Welcome to the site.
It is great that you are getting informed about your husbands condition. It is a big system to negotiate and being informed has helped us ask for other opinions that have altered treatment plans and changed outcomes.
This will be our fourth Christmas since my mum's cancer was detected and she had an established spread of five tumours in the liver. As others have said even if surgery is not possible there are other treatment options available and chemotherapy has been a major player in keeping my mum here, rough as it was.
Interestingly enough my mum has ignored most of the details of her condition focusing on what she needed to do to stay well through treatment. We did the research!
Glad you joined us.
I am very sorry that you have received this news about your husband. I hope that he has a successful operation this Thursday. Please do not give up hope.
I wish I could give you a huge hug and hold you tight.
Wanted to let you know how sorry I am about your dear hubby, but wanted to agree with Matt, never give up hope, being positive really helps.
Am sending a big hug to you both.
Hope your husband is starting to show signs of recovery now. It can be slow for some people initially and I had similar concerns for my mum , then all of a sudden she made progress. I would imagine he would have a period of recovery before they start chemo.
I was just wondering if you have come across "The colon club". It is based in America but there is a lot of contributions from around the world and I am sure there was someone on recently with a similar spread .
It is very hard to be on the receiving end of one of the dicussion about prognosis, however in a stage 4 setting it can be more about how you respond to chemo and reducing the tumour burden, opening up other treatment options and pushing boundaries. Germany seems to get a good reputation and it must be good to trust the team he is under already.
Chemo alone opened up other options for my mum and one treatment lead to another.
Thinking of you both and your might be able to access treatment options on the above mentioned site.
If you have any questions about Macmillan, or would like to talk to someone about cancer, we have a team of experts who can help.
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