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That is fantastic Poppy, thank you. I had found Sarah O'Dwyers name before and it is very interesting as she deals with inflammitary bowel disease too and John's cancer came from ulcerative colitis, so she may well be very useful.
Thank you also for the advice re: starting now. Although it may be a fantastic course it is a little hard to take that first jump I suppose as you never know if you are doing the right thing. So this is probably the push we need.
John's oncologist is on holiday until the 17th so I think I will speak to his GP tomorrow and see what she can start now and get in motion.
No John's treatment has been really "bitty" to be honest. He only got a Macmillan (well Marie Curie actually) nurse about 10 days ago after much pushing from me to his consultant and ward nurses. The general level of continuity between hospitals and care staff has been very poor until recently. Thankfully John's GP is very good and has been helping us hold everything together and chase people.
John's own consultant is currently on holiday for 3 weeks, so I have contacted his GP today to ask if she can contact Miss O'Dwyer's secretery and see how we go from there. I will of course keep you both updated as to how we go and likewise would be interested in your treatment also.
Thank you so much, as you have both been very helpful. I think this type of spread is relativley rare and the sharing of info can hopefully help us all to get answers and the best treatment available.
Fingers crossed for you both too,
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