That is fantastic Poppy, thank you. I had found Sarah O'Dwyers name before and it is very interesting as she deals with inflammitary bowel disease too and John's cancer came from ulcerative colitis, so she may well be very useful.

Thank you also for the advice re: starting now. Although it may be a fantastic course it is a little hard to take that first jump I suppose as you never know if you are doing the right thing. So this is probably the push we need.

John's oncologist is on holiday until the 17th so I think I will speak to his GP tomorrow and see what she can start now and get in motion.

Thanks again,

Dawn xx

Hi Poppy, My last chemo finished last aug and I was making progress with the tiredness particularly as I had returned t o work full time. However I did seem to take a backward step with energy levels earlier this year which probably ties in with my latest cancer developing and right now I'm not motivated at all given he impending chemo. Once im up and about I'm alright but if I sit down its really hard to get going again Mooster

Hi dawn, My cancer was the opposite side to john's I think as mine was in the bowel but next to the appendix and had gone into some lymph nodes. Not sure of the name of the heated chemo op that has been suggested to me but the hipec seems to fit with what I was told but is dependent on the chemo I need to have reducing the spread of the peritoneum first. My consultant at the christie is Dr Braun (pronounced brown) and I have found him to be extremely good at explaining everything to me without too much technical speak. I agree with Poppy don't hang around with these things - did john have a specialist nurse assigned to him maybe she could help. I have found that sometimes asking a few people the same thing gave me a variety of answers . Good luck, would be interested to know how you get on Mooster

Hi Mooster,

No John's treatment has been really "bitty" to be honest. He only got a Macmillan (well Marie Curie actually) nurse about 10 days ago after much pushing from me to his consultant and ward nurses. The general level of continuity between hospitals and care staff has been very poor until recently. Thankfully John's GP is very good and has been helping us hold everything together and chase people.

John's own consultant is currently on holiday for 3 weeks, so I have contacted his GP today to ask if she can contact Miss O'Dwyer's secretery and see how we go from there. I will of course keep you both updated as to how we go and likewise would be interested in your treatment also.

Thank you so much, as you have both been very helpful. I think this type of spread is relativley rare and the sharing of info can hopefully help us all to get answers and the best treatment available.

Fingers crossed for you both too,

Take care,

Dawn xxx