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Thanks Pam! He's finding the tiredness and horrible flatulence the worse. Had quite a bit of tingling in hands and feet last week after 3rd session. He had to have his steroids adjusted the first time round as he was completely knocked off his feet. Trying not to fight it and go with the flow and listen to his body. Folfox via PICC was his choice of the 3 options offered and I sometime think he wishes he'd just gone down the oral route but then I couldn't play 'nurses'!! Getting used to removing his infusor bottle and changing the dressing. At least I don't feel helpless like I did in the beginning.
Keep feeling positive and keep in touch.
Dare to be different and set your own pattern. Live your own life and follow your dream.
There was a post recently with a link to a story about someone who only had radiotherapy for rectal cancer, and the cancer cleared without surgery. It's not for everyone; there is only a small percentage of cases where it happens, but sometimes patients do respond so well to radiotherapy that the initial tumour actually disappears.
There is still the risk of recurrence, and of secondary tumours, so I don't want to pretend that radiotherapy is enough; it's very experimental (there are current clinical trials).
The reason for mentioning it at all, is that your consultant is reluctant to give you a prognosis because s/he really doesn't know what will happen next, and can't predict the response you will have.
Hope all goes well for you :)
Hello Julie -
My husband was just diagnosed the the same T3N1 Rectal Cancer with node involvement last week. As scary as this all is all the doctors involved are saying they are very optimistic this is curable. We met with the doctor this morning who will oversee the radiation part of his treatment and see the Oncologist this afternoon with the Chemo part of the plan. My head spins daily as we have been running in circles with all the testing and appointments the last few days. I tell myself daily this is all for a good reason as I never want to loose my husband so we will fight extra hard but still keep life as normal as possible for us. The plan right now is 6 weeks of radiation and chemo then a 6-8 week break for my husband to recover and get back on his feet then he will have his first surgery mid February 8 week re-coop period then they will do his second surgery another re-coop period and then 6 more months of chemo. I find myself rambling and I hope part of this helps put you at ease somewhat. As hard as it is try as hard as it maybe to stay positive some days will be worse than others and your entitled to that. Please keep me posted and I wish you the very best of luck and feel things will turn out fine. Best of luck! :)
Hugs & Kisses to All
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