We are Macmillan. Cancer Support
Just had a session on the internet. Reports of bcg shortage from USA and Canada go back to April. The FDA posted an alert on the subect early May. Yet the only reports I could find from the UK are from this group starting 30 June. I think it is strange, well alarming actually ,that there have been no reports from Department of Health, NHS etc and nothing apparently in the papers. And this despite my efforts to pass this story to the media.
I wonder if NHS ,or D of H officials, read Macmillan community posts to get the latest news. If they do you might have expected some official information, advice and reassurance by now.
Thank you for putting on this link. It is the first news I have found for this Country-all other information has been for USA. My dad has had his BCG maintenance treatment stopped - he should have had it six weeks ago. He has to go for a check-up on Friday so fingers crossed all is OK. I was told by Cancer Nurse not to keep pestering the hospital (and her) for news as they did not know anything. Felt totally lost and unable to help my dad (and mum) out. At least now I can pass on the information to them.
Hi just see your Blog on the BCG shortage Im in the south east and was due for my second course of BCG in August but I have recieved a letter from the hospital to say due to the fact there is a global shortage of BCG and they are not expecting the 2 companys who supply it to start production again untill late 2013 we are all going to have to be assed for altenative treatment.
If you have any questions about our organisation our Macmillan team would love to hear from you
You can also follow us on Facebook, Twitter, Flickr or YouTube.
© Macmillan Cancer Support 2010
what are these?