'Hiccups happen'

Stem cell transplants for blood cancers

A group for people to discuss stem cell transplants for blood cancers such as leukaemia and lymphoma. This can include transplants using a person’s own stem cells or stem cells from someone else (a donor).

'Hiccups happen'

No. of entries: 34 | Posted on 13 Dec 2012 09:45

'Hiccups happen'

  • Well, even 14 months post allogeneic transplant, coughs and colds can turn nasty.......daughter had resisted taking a sudden end from her tour, but a day after, she started with a raised temp, feeling unwell, and we decided ( since she stayed with us overnight) she needed to phone the hotline, her temp was 38.6. A long, foggy journey on the motorway followed, she was admitted to the transplant unit and had extra drugs to prevent pneumonia, since her chest X-ray looked dodgy. It all worked, she had only two nights in there and I drove her home to her house this evening! So tomorrow since she has someone to take care, I should be able to go home again. ......love and hugs to all here xxxxxxxx
  • Hi Helen 

    So glad to hear  your daughter is home !! 

    sending love and hugs 

    Maxine xx

  • Thank you Maxine, she is still asleep, which has to be healing, bless her, it seems she is able now to cough without it waking her, and it's a dry cough, not a nasty sounding one now, thank goodness. Hope you are doing ok? Love and hugs, Helen xxx
  • Hi Moomy

    Glad to hear she's on the mend. Did she manage to finish the tour before she came home? If so: what a trooper, although I do understand how it is on the road. It gets very tight knit and as much as everybody else would want the best for her, I'm sure she'd have hated to leave ahead of time.

    This is the kind of thing that I find scariest about this stuff. My doc said to me as I was leaving that she'd be "completely screwing up" my life for a year but it is more than that. My auto transplant (and the lengthy induction) a few years ago kept me off work for a good nine months - something which working for a small company now would cause difficulty - and it was a good year before I was properly back to normal(ish) and while I could easily have worked harder at my fitness in the meantime, here I am 5 years down the line only just getting decently fit. Now there's an allo with all the extra potential long-term trouble looming.

    I guess it beats the main (ultimate) alternative but I'm not looking forward to it just the same.

    Ian

  • Hi Helen,

    So pleased to hear she is home. It just goes to show that you always need to be on your guard and not start to think you can totally put behind you what you have been through.  Its 8 months since my auto transplant now and after 3 months I got a mixed viral and fungal pneumonia which put me back in a hospital bed for 3 weeks so I am now being very cautious with all the germs and bugs that are around.

    Interesting to hear what Ian says about how he found energy levels and fitness after an auto.  I am a huge amount better than I was but still find that I get extremely tired if I over do things and I need to really get my rest.  Have started yoga and Tai Chi as I am sure they will help me.

    Love and hugs

    Jen xx

  • Hi Ian and Jen, it is a slow job though possible to get fit after an auto, but you will find energy levels do take a while to enable you to really keep going and push yourself the way you would pre-auto. Daughter was able to build herself up gradually, but prior to the start of ABVD she was thinking of getting ready for a marathon, that has never been possible since. I think the allo takes much longer to get well, there is the blood group change with all the complications of whether red cell production works properly, after a lot of treatment that can take quite a long time! .......Ian, yes, she did manage to complete the tour and really went down with this about a day later, whether adrenalin kept her going, I'm not sure, but I bet it helped her get right through! ....... I suspect it will be a while till you can reduce the 'guard' but in any case anyone with any sort of pre-existing condition does need to be a bit more careful. She said a day or so ago 'will my immune system ever get really strong?' Hmm, a tough one, that, but I felt able to say that it should gradually get a lot better than it is now! ...... Keep thinking positive thoughts and do keep posting! Hugs to you both xxxx
  • Oh dear, it's a long hiccup, she had a few days when it all looked ok and now has a sore throat, snotty nose and painful face again as well as the cough back again, poor lass doesn't know whether she should drive down to us yet or not, maybe stay in easy reach of the hospital for a day or so more...... Love and hugs to all who pop in here xxx
  • Oh dear Moomy sorry to hear this.... Not what you or she wants. Have fingers and toes crossed that she gets on top of it in the next day or so. Healing vibes coming your way x
  • Thank you, Jen2, I've got everything crossed, she plans to try to come down tomorrow......

    To each and every one who looks in here, I hope you all have the best Christmas possible with love, joy, peace surrounding you and your loved ones xxxxxxx

  • Amen to all of that. Hey, do you reckon you can catch a secondhand cold via the internet? I reckon your daughter's passed whatever she's got on to me. Or, just maybe, it could've been the chap I sit next to at the office... :-)

    Bit gutted really; I was hoping I was going to do the whole year without getting sick (well, I guess I got "sick" this year but those little mutant cells lurking in my lymphatic system aren't causing me any issues and may well have been there for a decade or more so they don't count) but I just missed out. I ought to have spent today ODing on raw veggies but I'm baking for prezzies at the moment so the fridge is full of all the wrong things, and my belly is full of samples of the spectacularly unsuccessful batch of "fudge" I failed to create earlier.

    Anyway, like moomy said, let's all have a great Christmas and here's to a healthy and happy 2013 for everyone!

  • Unfortunately, Ian, I think the world and his wife has/had this particular bug, hubs and I have had it for around 6 weeks now, just beginning to feel better, and no, I didn't give it to daughter! She caught it on tour! Have a great time, folks, hope 2013 is a truly wonderful year for all xxx
  • Dear All,

    Well this bug has also got my son during the last 10 days, It all was going so well after his Auto SCT that this "Hiccup Happened" ..... very heasy sore throat (could not speak for three day), then high temp up tp 38.7 and cough... but thank fully the worst is over now.

    Lets all have a good Christmas day tomorrow.

    Helen you are a ture trooper. please keep up the wonderfull support you give to all, and looking forward to 2013 with a bright sun ray in the horizon for all.

    J xx

  • Oh, J, glad that your son is getting better, it's a nasty horrid unkind bug, isn't it?

    Looks like our son now also has it (and he is normally fit and well) ......we are all going to stay with him.......but actually I suspect hubs and I will go to son's, take care of him, feed and water him, then go on up to daughters and take food and fluids to her afterwards.......

    Have a good Christmas day, everyone, and hope for a wonderfully healthy and happy new year! 

    Helen xxxxx

  • Oh dear, it didn't happen, we just looked after son, she has been diagnosed accurately with full blown flu and is still trying to recover, poor girl. 

    The more worrying thing is that a 1cm node has reared its head around her collarbone, and did show low uptake on a previous PET, she will be having a further PET next month but is now really worried. As we all are......

    ARGH!

  • Oh no Moomy what can I say other than AARGH worrying times again on this rollercoaster of life. Everything is crossed that it all settles down and proves to be a storm in a teacup. Love and big hugs Jen xx