Joint pain in my hip after lung cancer last year.

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Joint pain in my hip after lung cancer last year.

No. of entries: 23 | Posted on 23 Apr 2009 01:51

Joint pain in my hip after lung cancer last year.

  • Hi all,
    I'm just wandering if anyone has experienced something similar to me. I had lung cancer last year, an operation followed by chemotherapy sorted me out & I was told they'd got it all in November which was great news!
    These past few weeks I've been getting pains in my hip sometimes when I sit & when I lie flat. At first I thought I must have pulled something but its still hanging around. I've spoken to my hospital who have said its probably a side effect from the chemotherapy but they're sending me for a hip x-ray just to check it out. Then they've said if the pain is still here in a couple of weeks they'll send me for a bone scan.
    I know you can have all sorts of side effects from chemo but I'm worried its the cancer back again. They always seemed quite surprised that it hadn't spread anywhere so I'm thinking this is it!!
    Any similar stories would be a good help to me!
    xx
  • I think you're doing exactly the right thing in getting it checked out. Hopefully it is not the cancer returning, but if it is, then obviously you want to know as soon as possible, so you can get cracking on it second time around.

    I'm afraid I don't know enough about bone mets (as my husband did not have them) but I know a lot of people here do have experience of them, either as patients or carers.

    I'm glad you are getting an X-ray done, but personally, unless the X-ray is conclusively NOT cancer (and I'm sorry, maybe X rays can't say that definitively!), then I can't see the point in making you wait several weeks for the bone scan. I appreciate that NHS funds are always stretched, but this, after all, potentially cancer we are talking about, not something that can be safely left to see if it goes away on its own!

    Again, others here may well be able to give you much better answers, but I would think it only prudent to get a scan done anyway, unless the X ray can 100% rule out cancer. If there is, say, a waiting time anyway to get bone scans done, isn't it better to 'get in the queue' straight away, so the minimum amount of time is lost before a clear, unambiguous diagnosis is made.

    All the very best, and here's hoping it IS just something like post-chemo effects.



    Julie.

  • Hi Vicky
    I can give you our experience which may or may not be helpful. My husband had a bone scan before his surgery and they found a "hotspot" in his hip. It was very small so they thought it was probably arthritis and went ahead with his bladder surgery (Thankfully) however some months later he fell and hurt his hip, and it didn't get better. He had an x-ray which showed a hairline fracture in his pelvis. That would have been it, they weren't concerned at all, however I remembered the "hotspot" and insisted he have a cat scan (or was it MRI? can't remember now) Anway that showed he had 3 spots of bone cancer in his pelvis as well as lung mets.
    So you need to get it checked, but an x-ray is pointless, its a scan you need. Also bone scans only show "hotspots" believe it or not! Only a pet scan or (and here I get mixed up again whether its a cat or MRI?) can show whether it is actually cancer.
    I sincerely hope that your hip problem isn't more cancer, and I have heard that chemo can cause different types of reactive arthritis, which would obviously be simpler. However, even if it does turn out to be the dreaded C it will be treatable.
    Big hugs for you x x x
    HarryBarb x x x
  • my mother started getting hip pain 4 years after her chemo for bowel cancer, it started in her right hip and radiated down her leg to her toes and in2 her groin, she was diagnosed with sciatica and had an mri scan which showed up nothing (they did it on the base of her spine, we thought they'd done it on her hip).
    jump to 5 months later after several hospital visits, her losing the use of her leg, and my sister going nuts at doctors at the hospital to do some tests, they did a ct scan which showed up mets in her lung, liver and of course her bones.
    The doctor told her if the doctors had done an xray they would have definately picked up the bone cancer and tests and treatment would have been an option but as it was 5 months later the cancer was "extensive" and she died exactly 10 weeks later.
    Not a happy story that probably doesnt give you hope but I do have a point to this which is........ if you have 1 test done and you feel in your gut you are not happy with the result push for all the tests you want to put your mind at rest and do it asap. Hopefully it just shows arthritis, or a slight weakining of the bone or even a muscle strain and i wish you all the luck in the world but if you want it investigated push for it. Dont be scared or feel like you are being a nuiscance because remember its your body and your life on the line and if I could go back I would love to just fight for that 1 xray that would have given me just a few more months with my beautiful mother and i'm sure your family would feel the same if anything was to happen to you.
    As I said I hope its nowt but check it out from every angle asap and get the treatment you deserve.
    best of luck
    kirby xxx
  • Hi Vix, Sorry to hear about the pains you are having. It's such a worry when you have already been through the mill.

    I have only had the Lobectomy so far for lung cancer, still awaiting full results. i know I had hip pain before the op which I was concerned with but haven't had it just lately. I am getting some weird pains since the op on the same side but put this down to the nerves and muscles all affected. i did have a pet scan before the op which the dr said did not show any other hotspots other than the lungs so I suppose in a way this put me a bit at ease (not sure if this shows bones). I also know that i sit differently and tend to favour one side to the other which puts a strain on the hips and back.

    It is always best to get it checked out so make sure you have the xray and scans. What you have been through can affect your body for a long time in the future. Keep us posted .lots of Love and hugs Dee X
  • Hi All, thanks for all the advice. I had the hip x-ray & it showed up nothing at all . My oncologists first response was that its a reaction to the damage done by chemo; the x-ray has backed that up so I'm feeling much happier. Its hard not to think every ache & pain is something bad but I'm trying to be sensible! The hospital has been very good and have said if I'm at all doubtful or if the pain is still there in a couple of weeks them I'm to go in for more tests. So I'm happy with that! They were really quick about it all too which I think is great that they're sensitive to how I'm feeling.
    Dee, even now, nearly a year after my lobectomy my nerves are still on their way back to life!! So I know that can go on for a long time around the wound etc. I've not got the feeling back in a few places yet but I think over time that will improve. I think the PET scan shows everything up doesn't it? Mine just showed the lung problem too so I think thats good news!
    I'm feeling good this weekend, (I've learnt which positions make my hip go bad!) and we're about to have a bbq in the sunshine. It may sound a bit 'touchy-feely' but after everything, a simple thing like nice weather & a bbq makes me feel stupidly happy!!
    I hope everyone is managing to enjoy the weekend and the sunshine. XXX



  • Brilliant news Vix, it;'s such a relief when you get the thumbs up and it's good to know that they act on any worries you have. Hope you had a great BBQ. days like that are the special times in life and make everything worth while.(especially when you've worked out comfortable hip positions!)

    Only just realised I hadn't posted on here. Not used to all the different threads, trying to find them again was my prob but have realised if I tag everything in my discussions they are all there.

    Can you remember Vix how long it took for you to feel comfy exercising. At the moment I'm doing little walks (more like shuffles) round the block etc which is a start.
  • Hi Dee,
    To be honest I'm not sure, I was walking around, just down the road etc, after about three weeks but not exercising. I started my chemo six weeks after the op & I hadn't started any exercise by then & obviously that stopped any thought of it so its a bit tricky to say I'm afraid. Plus, I got an infection at the top of my scar & it opened up again (sound gruesome I know but if its on your back you can't see it!!) so again that probably slowed me down too. I'm a great believer in listening to what your body says!
    How're you feeling now? A bit easier on the moving around?
    xx
  • Hi Vix, hope you've had a good day and are looking forward to the weekend. Funny the scars that hurt me are where the 2 chest drains were, so I have not bothered too much with the back one. you've never seen someone dash as fast as me to the mirror to check mine out after I saw what happened to you....all is fine (I think)
    Managed to get out shopping today and picked up a few loose new tops for over the scar (latest excuse for new clothes!!!!!!!!!). it's funny how a new pair of sandals got into the bag aswell!!!!!!!!!. Have a great weekend, dee xxx
  • Hey! How's the excercise going Dee? Are you getting on a bit further now? If you're out & about shopping then you're definitely well on the way to mending!!

    I've still got the pain in my hip & the other day it was really bad & shooting pains down my leg so I've telephoned the hospital & they're sending me for the bone scan this time. Just to be on the safe side! (I hope!!). So I'm just waiting for my appointment. Fingers crossed!! I told my dad about it & said its probably fine & he replied without thinking "that's what they said last time", he was so shocked that he'd said it outloud to me, and quickly said "I realised as I was speaking that I shouldn't say that!". I had to laugh at him!! I know he's worried & was a bit panicky but its a good job I wasn't emotionally charged at the time!! You've got to see the funny side...!

    Take care all xxx

  • Hi Vix, Yes I'm managing to do a bit more. Today I went to the hosp and then brought the dog for a little walk with hubby and then went food shopping. Hubby did all the lifting. i'm shattered now. At the hosp I was disgusted the nurse said" my goodness you've put weight on" It's because I gave up smoking before my op .When I had my op, I hardly ate anything and still gained 3 kilos (the others all lost). So now you can see why I'm so keen to exercise, plus can't afford too many new clothes!!!!!

    It is best you make doubly sure if the pain is still there. You need to get it sorted so lets hope the app comes through quickly so you can put your mind at rest. Your poor dad, mind you it so easily happens. It shows his concern. I think once you've been touched with cancer everytime something crops up we all think the worst until it's proved different. Its great we can laugh at these things. Hope you have a lovely weekend love dee xxx
  • Hi Dee, I had a good weekend thanks. Hope you did too!
    I got my appointment through for the scan, its on Wednesday this week with my follow up appointment the following Wednesday so that's good & quick! No waiting around which I'm grateful for! I'm not exactly worried but I'll be glad when a week & a half has gone by!! I thought I'd have a bit more of a wait so I'm pleased with that.
    I can't believe the nurse said that to you, cheeky woman!! What does she expect when you can hardly move around?! I bet she'd put a lot of blommin weight on too! I know I did, not just from that but from the drugs & comfort eating too!! Plus the 'get well' chocolates you get! Its all working against you! Its the last of your worries at the moment but you don't want someone else pointing it out!
    Eat your chocolate & enjoy it! xxx
  • Hi Vix, thats great news that the appointments are through so quickly. You will have to keep yourself busy till the results. I know that when I have a test and have to wait for results, even though there is probably nothing to worry about, I always get a tremendous relief afterwards. Yes I think I did my survival and comfort eating before the op expecting to lose some once it was done. With giving up the fags I have put on more. i know that i'm being silly especially when at points with this disease people struggle to put it on. I've always struggled with the weight as I love food but you are right there are more important things so I will eat my chocs and not worry. It's just that my clothes are too tight and I don't want to have to get into another bigger size!!!!!!! I'm definitely feeling so much better getting out for walks. will be thinking of you and try and pamper yourself this week. Love dee xxx
  • I cheated a bit with my clothes size & just went for a lot of 'baggy' styles that weren't quite as baggy on me!! They probably weren't very flattering either but I was in denial a bit!
    I did have one 'friend' who when she heard I was ill said to me "I thought cancer patients were supposed to be skinny" !!! I think some people just speak without realising how hurtful it could be!
    I will definitely be pampering myself this week - surely a bone scan earns me a couple of nights on the sofa being fussed over by my boyfriend?! Ha! xxx
  • Hi Vix, I've been thinking of you today with the bone scan and hope that you are now back home on that sofa being pampered and fussed over by your boyfriend. I reckon you should get more than two days seen as its a bank holiday weekend coming up and he needs to keep you occupied.

    Yes i'm lucky it's summer there's nice smocks and loose stuff around at the moment, a good excuse for a change of style. xxx