Rarer cancers, 24-hour nursing and getting back to work- do these matter to you?

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Rarer cancers, 24-hour nursing and getting back to work- do these matter to you?

No. of entries: 2 | No.of favourites: 0 | Posted on 17 Mar 2010 09:55
  • Hey all,

     

    If you’re a regular visitor to the main website as well as the Mac community you may have seen our latest campaign – Vote cancer support, which launched this week. We’re asking the Government to get back our three cancer calls, so that we can really make a difference to cancer care here in the UK. 

    We really want to hear your views on our calls, and whether we’ve picked things that matter to you. They are:

     

    1. Better support for people living with cancer - to help people get back to work if they want, and offering better post-treatment care.

     

    2. Equal access to cancer drugs for people with rarer cancers - so everyone can get the treatment they need.

     

    3. Access to 24/7 community nursing for people with cancer nearing the end of their lives

    Do you feel that these are important issues to you? And have you been affected by any of them? We'd love to hear your experiences below.

    Plus, don't forget to email your local prospective Parliamentary Candidate and ask them to pledge their support to this vital campaign at www.macmillan.org.uk/vote.

  • Hi Admin - Yes, I think all 3 of these points are probably the most important to raise - my cancer type is extremely rare - and it is genetic.  (Phaeochromocytoma)  And after reading in the paper on Monday that NICE has rejected funding for Sunitinib as a second line treatment, I felt really angry as there simply aren't many other options.  And as this is genetic, quite often very young people develop this disease, so what about them???

    Feel like I would like to campaign but not sure where to start!!!

    Jeanie x  

    Jeanie

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