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Two phrases should be banned for ever from all medical establishments...
(1) 'We got it all!' (Surgeon to post-op cancer patient)
(2) 'You're too young for cancer!' (GP/doc to undiagnosed cancer patient)
PS - could probably add 'It's just IBS'....
How about this email from my consultant! I asked why my sense of smell still hadn't returned after 12 months.
Not sure that I know where to take this. Loss of smell can be due to damage in the olfactory nerves which come from the front part of the brain to the back of the nose. There is no good reason in your case for them to have been damaged. It can be due to a frontal lobe tumour or trauma, but we are not suspecting either in your case.
I may well not be at the clinic on *th Apr as I am currently working at **** **** hospital. See what my colleagues think.
I have removed hospital deatils to protect his identity!
To say I was a little shocked to receive this, is an understatement.
its so sad. I despair! My mums gp was the same. rubbish. I had just started nursing and knew fluid on the ,lung on a 44 year old meant cancer. He wanted to send her home!! she was so ill and I stood in the reception and said 'i'll stay here til you get an ambulance for her' and he had to back down.
I reported his conduct and it did get taken seriously (she was dangerously ill and had i not forced his hand she would have died at home) but he called me ' an overemotional young lady who should have known better)!!!!
there are no words other than swear words for this man. My mum was desperately ill and died witin a month. His conduct would not have changed the outcome but it was his attitude and pomposity that I knew more than him and i was merely a student nurse!!
I say to people time and time again. Go back to your gp and keep going til you get a satisfactory answer and dont stop!
This happens time and time again. Always with cancer sufferers. They are too quick to dismiss symtoms as something else. As I said my dad was told he has IBS like lots of other people. It's coming up to Dads birthday on Friday 9th April. He would have been 82 this time. I miss him and wish if he had been diagnosed earlier then he would have had a chance to see his birthday. He had a good life with a good family which we have been deprived of. This for which I cannot express my disgust at the doctors dignosis of Indigestion in the beginning. His whole journey started only a year ago until July 09. This is not a long time to be told you only have a short space of time to live with this terrible disease. The doctors will never learn that each case of cancer is individual and they should treat everyone respectively. I agree if you have to ask too many questions don't stop unitl you get the answer you deserve to know. And if you think something does'nt sound right ask again. XXX
this happened to us with veronica i was back ward and forward for a year i wouldnt give up because veronica had special needs she couldnt do it her self
they said it was wear and tear on her body give her parcatmol
i must say she did have a ct scan on her head has she was having lots of headaches but that came back negative in the end she had a x ray on her shoulder that when they found the tumor and it was all go from then sadly we lost v 3 months ago
but keep going back
love janice xxxx
they bloody do!! i am so sorry to hear about your brother, its just not fair, our lives are in the hands of these people and they are failing us.
I have been going to the docs for two years!!!! with blood in my urine and passing blood clots and was sent home with antibiotics each time.. ive just been diagnosed with bladder cancer, they think its quite advanced, ive just had a baby, they may have given me a death sentance, im 27.
they need to start taking notice of people and not fobbing them off with medication every single time.
I'm sorry no one has answered you, and I think it is because yours is such a terrible story that we don't know what to say. It's absolutely dreadful what has happened to you, and that you weren't investigated properly. I suspect you have fallen victim to the dreaded 'you are too young to have cancer' which seems to be the stock answer in all too many cases. Sometimes it seems that GPs behave as though they've never heard of cancer. I have read, I believe, that GPs see very few cases of cancer in their working career, and, as we know to our cost, the symptoms of cancer are more likely to be that of something else, less dreadful.
But somehow, we have to find a way in the UK of getting people diagnosed in time, before the disease progresses.
I do, do hope that you can be successfully treated. Therapies are making some dramatic improvements in quite a lot of cancers now, with new drugs, and if there is one 'upside' (I speak figuratively....) of being so young, it is that PCTs have even less 'justification' (in their own eyes, even if no one elses) of denying you the drugs you need on the grounds of cost. If there are new drugs available for your cancer, it can become a matter of using them as stepping stones, one after another, as more come out of the labs, to keep you going. I can't speak about your cancer, but with my husband's cancer, for example, (renal cell), there are patients with advanced (metastatic and spread to lungs, liver etc) cancer who have been kept alive for a good few years now, moving from one new drug to the next.
My thoughts with you in this nightmare - Julie.
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