My Journey so far with stage 4 advanced kidney cancer

1 minute read time.

Hi,  Just thought I'd write this for anyone interested, and just to recap, was diagnosed in feb 2009 with advanced kidney cancer & Mets to the Lymph nodes adrenal gland gall bladder, liver & lung tissue, I had radical nephrectomy and removal of kidney adrenal, gall bladder lung and liver tissue.  Had Avastin and interferon 6 weeks after surgery, had to come off it as went into a hypertensive crisis, which was the worst part of the journey as was so ill, having lumber punctures while throwing up, and the worst headache imaginable and blood pressure so high I should be dead!! My treatment was stopped and refered to Thames Hospice Care through the macmillan nurse.  Obviously my family were in turmol, my son failed his exams at school and my mum and dad and gran became very depressed.  My husband however has been my rock and I thank him and my girls and son for being there for me, and the torment they must have gone through at the thought of loosing there mum.  I was given a very short time to live, but obviously they could not say how long, but somehow did pull through and got better and better and put on weight, I'm now nearing the second year in remmission, and yesterday had the best news ever is that my scan shows No active tumours or cancer, and I'm now actually planning things for the future! During this terrible time came good as now have 2 new grandchildren and my daughter has set a date for her wedding next May 2012 which is going to be a big affair in our local church!!  I hope my story gives some inspirational hope to those diagnosed with advanced cancer like me. xx

Anonymous
  • FormerMember
    FormerMember

    how wonderful to read such an inspiring and hopeful story - it's really touched me xxx

  • FormerMember
    FormerMember

    Jilly, your story has really made my day!

    I am so pleased for you and your family.

    Long may it continue.

    Christine xx

  • FormerMember
    FormerMember

    What a traumatic journey you've had, but it's wonderful to hear that you've beaten the odds. It must give those who have had a similar diagnosis, hope. Thank you for sharing your story with us, and may you have many many more years with your family.

    Angela xx

  • FormerMember
    FormerMember

    Hi ya Jilly,

    Thats the kind of story that makes living worth while.

    From being told you are going to die,to turning things around. Now you can look forward to the road ahead. All the best and Good Luck Long may it

    Last. You look after yourself.

    Take care and be safe Big Hugs Love Sarsfield.xx

  • FormerMember
    FormerMember

    Thankyou for your comments, and yes I'm now living my life with new vigor and appreciation for my 'second life'!!!!  :-))) xxx