Hi, just posting this on the off-chance that one of you may have come across this genetic mutation. There's apparently only around 100 families worldwide with this but Im hoping just one of them comes on here. Just had Joe's DNA results back and been told this is the devil responsible. I'd really like to speak with anyone that has this mutation and is having screening or has had a prophylactic gastrectomy - got…
Hi everyone its been a long time since I last blogged but today feels like a good day. Ive caught up with site news and am so glad to see that some of you have happy news to share. Im afraid i'm not quite ready to be of much use to any of you and still really struggle with this horrible new life I am forced to live. Please know that though I don't comment you are all very much in my thoughts. Its been 3 1/2 months since…
My son, my darling boy,
Want to hold you in my arms,
Feel the warmth of your skin,
The softness of your hair,
Shelter you from harm,
Ive cried a million tears,
But they can never heal this pain,
What i'd give to see the light of life,
Shine on your face again.
Rest in peace my darling boy, Joel Lawrence 24/7/90 - 25/03/10
Joe has been in the Severn Hospice at Shrewsbury for 11 days now. For anyone reading this blog who has any misgivings about hospices please read on. The Hospice is fantastic, full of warm and welcoming people who truely care. The support we have received over the last few days has really strengthened both our bodies and minds to fight this bloody terrible disease. Sadly Joes pain is still an issue, he had a CT scan on…
Hi... where do I start? Joe was taken in to hospital with severe abdominal pain in the early hours of sunday morning. After several hours of no news (you can probably imagine what I was thinking) we were told that Joe has adhesions that have caused kinks in his bowel. Treatment is, morphine, NG feed and iv fluids to rest his bowel and hope that this is enough to put it right.... Fast forward to this morning. I met him…
