TLA's blog

  • Sore Tongue

    FormerMember
    FormerMember

    Hi there was just wondering if there is any of you lovely people that have suffered terribly with your tongue since radiotherapy.  Im 15 months post treatment and my tongue has taken the most battering from the invasive treatment i had of 30 radical radiotherapy sessions and 4 chemos.  The dry mouth is bad enough but i manage to cope with that with plenty of water to hand.  Treatment was on the left hand side as the cancer…

  • The PEG s GONE

    FormerMember
    FormerMember

    Morning everyone, just a bit of a funny story to cheer you up this morning.   Those that know me through the site know i have this PEG fitted and now as im beginning to get better wanted it out of my body!   The hospital and in particular my dietician wasnt so keen in taking it out just yet, well on Tuesday during the night it came out on its own accord, i woke up feeling a bit wet and sticky and there by my side was the…

  • A Little Update

    FormerMember
    FormerMember

    Happy Easter to all my friends on here, just thought i d write a new blog for an update.   Almost 6 months post treatment and i feel just back to normal in myself (whatever normal is lol) just suffering a bit from the side effects of radiotherapy on the throat!    Last Monday i went for a videofleuroscopy (video xray of the throat) very fascinating watching food going down on the screen as you eat, anyway looks like im going…

  • Mouth Ulcers

    FormerMember
    FormerMember

    Morning to everyone,

    Is there anyone out there who can reccommend something for mouth ulcers caused by radiotherapy???  Im 5 months + post treatment and my tongue now is the worst effected.    Tried lots of mouth washes, gels, bonjela, had loads from the hospital but to no avail, you dont realise how bad you feel when your tongue is ulcerated, i only have two one either side in the middle but god they are so sore and stop…

  • Long time no Blog

    FormerMember
    FormerMember

    Hi to all my friends,

    Well i thought i would make the effort today and blog to let you know how i am!  Am now 4 months post treatment and i can tell you its been a long haul!  I am pleased to tell you i feel great at the moment have a "funny" tongue as i call it feels furry and rough all the time and really dry mouth,  both of which are unfortunately effects of the treatment.   I know though i have come on leaps…