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  • Blog Post: No change in Daisy who was happy in Italy

    Posted by
    Posted over 2 years ago
    Back from Italy last Wednesday for appointment with consultant on Thursday. Results - good? My consultant told me Daisy is not growing significantly, so my 'team' (Royal National Orthopaedic Hospital and University College Hospital Sarcoma units) is adopting a wait and see approach. I have...

  • Blog Post: On pain killers to get through Italian trip

    Posted by
    Posted over 2 years ago
    After 18 months of chronic pain in my right shoulder I have decided to take pain killers. I am pre-treatment, no surgery or other drugs, and have just about managed to deal with the searing pain and sleepless nights, that was until last Thursday. I avoided pain-killers before now because I was told...

  • Blog Post: Should be sleeping - not thinking...!

    Posted by
    Posted over 2 years ago
    I often feel guilty browsing the Mac site and wondering if I trully belong here, but have no where else to vent my thoughts and frustations at a condition cancer that isn't a cancer - if that makes any sense - given that the tumor's are agressive and invasive; can recur; but the big plus is that...

  • Blog Post: Operation scheduled

    Posted by
    Posted over 2 years ago
    Well Dr's confident about how to proceed in removing the mass. It's not near any major blood vessels and has well defined margins. He talked about the possibility it could grow back so will need follow-up MRIs in the future to monitor it and as time passes the likelihood for regrowth will decrease...

  • Blog Post: caelyx, day one or c day

    Posted by
    Posted over 4 years ago
    cycle one of caelyx down.. lots more to go, after 4 (my loints locked up, and muscel cramp, bright pink rash and usual reaction ro sterriods bout 30 mins in total) alleric reactions lots of different sterroids, piriton an stuff latter we finaly finished cycle one.. so far so good just feel too warm and...

  • Blog Post: my first bog, fibromatosis a life sentance?

    Posted by
    Posted over 4 years ago
    Hi There, My name is Samantha im 23 and i have a condition called aggressive fibromatosis, the best desciption i have for this is a soft tissue non malignant-malignat tummor that is very localy agressive and recurring,an mine is rather infaltrive..but they do not metastasize like malignant cancers, but...