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  • Blog Post: Good news scan stable

    Good news the scan shows no progression, still have the usual inflamation but no development in anything nasty since the last one six months ago. Here’s hoping everybody elses scan results are as good and thanks to everyone for their best wishes. We had the usual walk of doom to the appointment...
  • Blog Post: A frosty morning

    A great two days, lovely weather , clear and frosty. We took the car out to Stockbridge yesterday, although still didn’t get to eat at Stokes, as was full , so we ended up at the Three Tuns instead. Had a lovely lunch and then a great trip back home, we checked out a couple of other places with...
  • Blog Post: Next scan booked

    A CT scan it is – booked in for next Thursday , followed by the Barts appt to discuss on the Friday. So our weekly countdown is underway. after another good nights sleep, Ray is brighter again today, although still has the stabbing pains along the diaphragm, they have been there a long time so...
  • Blog Post: Feeling much better-

    Having felt very sorry for himself yesterday, today is much better, the throat is a lot less sore. Luckily some lozenges from the local chemist helped- so we didn’t need to resort to a morphine based drug!!! I like to feel I helpfully pointed out, just because you have one big thing wrong, doesn’t...
  • Blog Post: One more day to scan results

    Even more nerve wracking than exam day results, given the stakes involved, puts waiting for your GCSE’s in the shade- no retakes allowed with this one unfortunately. Have been majoring on distraction techniques the last couple of days, on Sunday we went to the Chelsea Autolegends show –...
  • Blog Post: A lazy day with leek & potato soup for lunch

    Sitting in the warm looking out at a cold, blowy day. Nothing at all planned today other watching old films on the TV. Ray made a fantastic potato and leek soup with garlic croutons, which was just what the doctor ordered on such a day. He still has his cough , however, the test results came back...
  • Blog Post: An update on the NGR-hTNF and ADI-PEG trials for mesothlioma in the UK

    NGR-hTNF This is a study in second line treatment for patients with advanced mesothelioma who have been pre-treated with no more than one pemetrexed (aka Alimta) based chemotherapy regime. It's currently recruiting in Manchester, Maidstone, Leicester, Northwood, Glasgow, Sutton and London. The trial...
  • Blog Post: A better couple of days

    Ray seems to have got back some of his energy, we have been away for a couple of days to the cotswolds- yet another part of Britain I’ve never visited. We did think we were going to have to make the best of it in the rain, but we’ve had brilliant weather although we both have a rather glowing...
  • Blog Post: yet another milestone

    We realised today was another milestone that had crept up on us rather without thinking, it was a year ago to the day that Ray started chemo. Can honestly say that was a terrible few months, then again when you consider the alternative it doesn’t seem so bad. I remember us discussing the chemo...
  • Blog Post: News of a nine year mesothelioma survivor

    The case of a German man who has lived more than 9 years with malignant mesothelioma is bringing attention to the drug that may have helped him defy the odds. The 67-year-old former German asbestos worker who is the subject of a new published report has stable mesothelioma, almost a decade after his...