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  • Blog Post: Supporting macmillan

    Posted by
    Posted 7 days ago
    It has been a difficult week for all warriors with the loss of Debbie Brewer who was such an inspiration to so many. News also of other losses, some only in their forties with young families and our thoughts are with them. The devastation of this disease is felt by so many. I know you can’t measure...

  • Blog Post: Is there hope on the horizon?

    Posted by
    Posted 20 days ago
    For the third year in a row, UCLA and the Pacific Heart, Lung and Blood Institute of Los Angeles organized a symposium focused on lung-sparing therapies for patients dealing with difficult-to-treat malignant pleural mesothelioma (MPM). According to a press release by the institute, this year’s...

  • Blog Post: Standing with our American friends to help combat mesothelioma

    Posted by
    Posted 1 month ago
    A short while ago, I was contacted by Susan Vento whose husband Bruce - a serving congressman for the state of Minnesota - died as a result of mesothelioma. Susan is a spokesperson for the Asbestos Cancer Victims Rights Campaign (ACVRC). Recently in the states, asbestos companies have been using their...

  • Blog Post: An update on the NGR-hTNF and ADI-PEG trials for mesothlioma in the UK

    Posted by
    Posted 4 months ago
    NGR-hTNF This is a study in second line treatment for patients with advanced mesothelioma who have been pre-treated with no more than one pemetrexed (aka Alimta) based chemotherapy regime. It's currently recruiting in Manchester, Maidstone, Leicester, Northwood, Glasgow, Sutton and London. The trial...

  • Blog Post: News of a nine year mesothelioma survivor

    Posted by
    Posted 7 months ago
    The case of a German man who has lived more than 9 years with malignant mesothelioma is bringing attention to the drug that may have helped him defy the odds. The 67-year-old former German asbestos worker who is the subject of a new published report has stable mesothelioma, almost a decade after his...

  • Blog Post: Living With mesothelioma My Diary Thursday

    Posted by
    Posted 8 months ago
    Although dry today it was a very grey and dark dawn today and it didn’t look promising at all. I didn’t have any plans for today, sat on the computer and sorted emails and messages out, a lot of work to catch up on. We decided to go to Wincheap to buy dog food and a toy for him so when...

  • Blog Post:

    Posted by
    Posted 8 months ago
    This is my First post. I am sure it wont be my last., I bought this on ebay today. Its an upgrade to my current one. You just cant sit back and give up.

  • Blog Post: Good news scan stable

    Posted by
    Posted 9 months ago
    Good news the scan shows no progression, still have the usual inflamation but no development in anything nasty since the last one six months ago. Here’s hoping everybody elses scan results are as good and thanks to everyone for their best wishes. We had the usual walk of doom to the appointment...

  • Blog Post: One more day to scan results

    Posted by
    Posted 9 months ago
    Even more nerve wracking than exam day results, given the stakes involved, puts waiting for your GCSE’s in the shade- no retakes allowed with this one unfortunately. Have been majoring on distraction techniques the last couple of days, on Sunday we went to the Chelsea Autolegends show –...

  • Blog Post: post olympic blues

    Posted by
    Posted 10 months ago
    Well we are now firmly back to earth after a fantastic two weeks – back to bargain hunt rather than the joys of greco roman wrestling and all those other sports in which we have become experts. Making the most of our Olympic tickets was one of our targets, when I booked them Ray never thought he...
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